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<p>The UK Rare Diseases Framework and England’s Rare Disease Action Plans are high-level
documents containing overarching priorities and underpinning themes for rare disease
policy. The documents are focused on improving the lives of all people living with
rare conditions, so there are no specific plans to support the needs of people with
spinal muscular atrophy (SMA) and other rare neurological conditions in isolation.
There are around 7,000 rare conditions, and whilst each is different, people living
with rare conditions often face common challenges with the healthcare system and wider
services, which the Department seeks to address through the implementation of the
England Rare Disease Action Plans.</p>
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