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1218807

registered interest
date	29/06/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Thrombotic Thrombocytopenic Purpura
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what data his Department holds on the (a) current prevalence and (b) annual incidence of thrombotic thrombocytopenic purpura (TTP) in England; and how that data is collected.
tabling member constituency	Harrow East
tabling member printed	Bob Blackman
uin	66028
answer	answer is ministerial correction date of answer 16/07/2020 answer text <p>The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) records people with congenital anomalies and rare diseases across the whole of England. Data collection for rare diseases is at an early stage and currently NCARDRS does not collect data on thrombotic thrombocytopenic purpura (TTP). NCARDRS is working to expand rare disease registration and will work with interested parties to advance data collection on rare diseases including TTP.</p> answering member constituency Bury St Edmunds answering member printed Jo Churchill grouped question UIN 66029 question first answered 16/07/2020 19:58:47 answering member 4380 label Biography information for Jo Churchill
tabling member	4005 label Biography information for Bob Blackman

1218808

registered interest
date	29/06/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Thrombotic Thrombocytopenic Purpura
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve the (a) diagnosis, (b) mortality and (c) morbidity rate of thrombotic thrombocytopenic purpura.
tabling member constituency	Harrow East
tabling member printed	Bob Blackman
uin	66029
answer	answer is ministerial correction date of answer 16/07/2020 answer text <p>The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) records people with congenital anomalies and rare diseases across the whole of England. Data collection for rare diseases is at an early stage and currently NCARDRS does not collect data on thrombotic thrombocytopenic purpura (TTP). NCARDRS is working to expand rare disease registration and will work with interested parties to advance data collection on rare diseases including TTP.</p> answering member constituency Bury St Edmunds answering member printed Jo Churchill grouped question UIN 66028 question first answered 16/07/2020 19:58:47 answering member 4380 label Biography information for Jo Churchill
tabling member	4005 label Biography information for Bob Blackman