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<p>The Government is committed to improving the lives of those living with rare conditions
and recognises the importance of patients across all areas of the United Kingdom being
able to obtain a quick and accurate diagnosis.</p><p>The Government will be publishing
a new UK Rare Diseases Framework by the end of 2020 which will outline the high-level
direction for rare diseases in the UK. Helping patients across the UK access specialist
care and get a final diagnosis faster will be priorities of this Framework, as identified
by extensive stakeholder engagement with patients, their families, researchers and
clinicians. The policies to deliver these priorities will be set out in future nation-specific
action plans and will be supported by the recently published Genome UK Strategy, which
outlines the Government’s vision to help people live longer, healthier lives using
new genomic and other technologies to diagnose and treat rare disease.</p><p> </p><p>
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