Linked Data API

Show Search Form

Search Results

1135751
star this property registered interest false more like this
star this property date less than 2019-07-01more like thismore than 2019-07-01
star this property answering body
Department of Health and Social Care more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading 100,000 Genomes Project more like this
star this property house id 2 more like this
star this property legislature
25277
star this property pref label House of Lords more like this
star this property question text To ask Her Majesty's Government whether those who have taken part in the NHS 100,000 Genome Project are being denied access to their own genome data; and if so, why. more like this
star this property tabling member printed
Lord Scriven more like this
star this property uin HL16844 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer less than 2019-07-10more like thismore than 2019-07-10
star this property answer text <p>Genomics England is committed to returning results to every patient in the 100,000 Genomes Project via their National Health Service clinical team. All of the patient results will have been returned to the NHS by the end of the year.</p><p>Under the Data Protection Legislation, participants in the 100,000 Genomes Project can request their genomic and clinical data. However, a whole genome sequence is around 3 billion letters long and written in code so it is very difficult to interpret. Genomics England can provide access to a visual representation on request or provide access to the raw data. A NHS clinical team is the best route to providing a clinical interpretation of the genome results.</p> more like this
star this property answering member printed Baroness Blackwood of North Oxford more like this
star this property question first answered
less than 2019-07-10T15:26:14.307Zmore like thismore than 2019-07-10T15:26:14.307Z
star this property answering member
4019
star this property label Biography information for Baroness Blackwood of North Oxford more like this
star this property tabling member
4333
unstar this property label Biography information for Lord Scriven more like this