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star this property registered interest false more like this
star this property date less than 2019-10-01more like thismore than 2019-10-01
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
star this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
star this property hansard heading Babies: Screening more like this
unstar this property house id 2 more like this
star this property legislature
25277
star this property pref label House of Lords more like this
star this property question text To ask Her Majesty's Government what assessment they have made of the report by Genetic Alliance UK Fixing the Present, Building for the Future: Newborn screening for rare conditions, published in July, in particular its finding that the UK tests for fewer conditions in new-borns in its new-born bloodspot screening programme than similar high income countries; and what plans they have to increase the number of serious conditions they test for. more like this
star this property tabling member printed
Baroness Redfern more like this
star this property uin HL17975 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer less than 2019-10-08more like thismore than 2019-10-08
star this property answer text <p>In the United Kingdom, screening is an end to end service from test to treatment. This is not necessarily the case in other countries such as the United States of America. Therefore, comparisons with other health systems can be misleading.</p><p>In April 2014, the UK National Screening Committee (UK NSC) recommended extending the newborn bloodspot screening programme to include four additional conditions: maple syrup urine disease; homocystinuria; glutaric acidaemia type 1; and isovaleric acidaemia. The newborn blood spot screening is currently offered to all babies to identify nine conditions, as recommended by the UK NSC.</p><p>The UK NSC welcomes any new topic proposals through its annual call for topics. Using research evidence, pilot programmes and economic evaluation, the UK NSC assesses the evidence for programmes against a set of internationally recognised criteria. To ensure that screening is offered where the balance of benefit outweighs the harms.</p><p>In August 2019, the UK NSC published <em>Generation genome and the opportunities for screening programmes</em>. The report reflects the specific opportunities identified by each of the 11 population screening programmes, including the antenatal and newborn screening programmes. The report concluded that the advances in genomic technologies present exciting and potentially effective developments for screening programmes. Current and developing research and technology will be used to determine how, in future, genetics can best be used in screening. A copy of the report is attached.</p>
star this property answering member printed Baroness Blackwood of North Oxford more like this
star this property question first answered
remove filter
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4019
star this property label Biography information for Baroness Blackwood of North Oxford more like this
star this property attachment
1
star this property file name Generation_genome_and_opportunities_for_screening_programmes.pdf more like this
star this property title Generation_genome more like this
star this property tabling member
4551
unstar this property label Biography information for Baroness Redfern more like this