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1135751

	registered interest
	date	01/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	100,000 Genomes Project
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government whether those who have taken part in the NHS 100,000 Genome Project are being denied access to their own genome data; and if so, why.
	tabling member printed	Lord Scriven
	uin	HL16844
	answer	answer is ministerial correction date of answer 10/07/2019 answer text <p>Genomics England is committed to returning results to every patient in the 100,000 Genomes Project via their National Health Service clinical team. All of the patient results will have been returned to the NHS by the end of the year.</p><p>Under the Data Protection Legislation, participants in the 100,000 Genomes Project can request their genomic and clinical data. However, a whole genome sequence is around 3 billion letters long and written in code so it is very difficult to interpret. Genomics England can provide access to a visual representation on request or provide access to the raw data. A NHS clinical team is the best route to providing a clinical interpretation of the genome results.</p> answering member printed Baroness Blackwood of North Oxford question first answered 10/07/2019 15:26:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	4333 label Biography information for Lord Scriven

1134907

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	100,000 Genomes Project
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans his Department has to evaluate the 100,000 Genomes Project.
	tabling member constituency	Birmingham, Yardley
	tabling member printed	Jess Phillips
	uin	269788
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>As a Government Major Project, the 100,000 Genomes Project has been under regular review by the Infrastructure and Projects Authority (IPA) which provides independent assurance of the most complex and strategically significant projects across Government. As part of this, the 100,000 Genomes Project has undergone several significant reviews which considered the Project’s delivery, requiring the collation of extensive documentation evidencing the progress of the Project and several days of interviews with key stakeholders. Conclusions of each review were shared across delivery partners to inform successful delivery of the Project.</p><p>The Department, Genomics England and NHS England recognised the importance in embedding robust testing, assessment and evaluation throughout the delivery of the Project to inform the introduction of whole genome sequencing in the National Health Service under the new Genomics Medicine Service.</p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 05/07/2019 11:40:47 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4370 label Biography information for Jess Phillips

1378716

	registered interest
	date	15/11/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	100,000 Genomes Project
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what assessment they have made of the 100,000 Genomes Project.
	tabling member printed	Baroness Ritchie of Downpatrick
	uin	HL4029
	answer	answer is ministerial correction date of answer 26/11/2021 answer text <p>The 100,000 Genome Project was subject to a final review in July 2019 by the Infrastructure and Projects Authority (IPA). The IPA rated the 100,000 Genomes Project Gateway 5 as Green and found that the Project has “successfully delivered against its key aims and to the revised time scale, cost and quality”.</p> answering member printed Lord Kamall question first answered 26/11/2021 13:44:11 answering member 4909 label Biography information for Lord Kamall
	tabling member	4130 label Biography information for Baroness Ritchie of Downpatrick