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1134907
star this property registered interest false more like this
star this property date less than 2019-06-26more like thismore than 2019-06-26
star this property answering body
Department of Health and Social Care more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
star this property hansard heading 100,000 Genomes Project remove filter
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what plans his Department has to evaluate the 100,000 Genomes Project. more like this
star this property tabling member constituency Birmingham, Yardley more like this
star this property tabling member printed
Jess Phillips more like this
star this property uin 269788 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2019-07-05more like thismore than 2019-07-05
star this property answer text <p>As a Government Major Project, the 100,000 Genomes Project has been under regular review by the Infrastructure and Projects Authority (IPA) which provides independent assurance of the most complex and strategically significant projects across Government. As part of this, the 100,000 Genomes Project has undergone several significant reviews which considered the Project’s delivery, requiring the collation of extensive documentation evidencing the progress of the Project and several days of interviews with key stakeholders. Conclusions of each review were shared across delivery partners to inform successful delivery of the Project.</p><p>The Department, Genomics England and NHS England recognised the importance in embedding robust testing, assessment and evaluation throughout the delivery of the Project to inform the introduction of whole genome sequencing in the National Health Service under the new Genomics Medicine Service.</p><p> </p> more like this
star this property answering member constituency Gosport more like this
star this property answering member printed Caroline Dinenage more like this
star this property question first answered
less than 2019-07-05T11:40:47Zmore like thismore than 2019-07-05T11:40:47Z
star this property answering member
4008
star this property label Biography information for Caroline Dinenage more like this
star this property tabling member
4370
unstar this property label Biography information for Jess Phillips more like this
1135751
star this property registered interest false more like this
star this property date less than 2019-07-01more like thismore than 2019-07-01
star this property answering body
Department of Health and Social Care more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
star this property hansard heading 100,000 Genomes Project remove filter
star this property house id 2 more like this
star this property legislature
25277
star this property pref label House of Lords more like this
star this property question text To ask Her Majesty's Government whether those who have taken part in the NHS 100,000 Genome Project are being denied access to their own genome data; and if so, why. more like this
star this property tabling member printed
Lord Scriven more like this
star this property uin HL16844 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2019-07-10more like thismore than 2019-07-10
star this property answer text <p>Genomics England is committed to returning results to every patient in the 100,000 Genomes Project via their National Health Service clinical team. All of the patient results will have been returned to the NHS by the end of the year.</p><p>Under the Data Protection Legislation, participants in the 100,000 Genomes Project can request their genomic and clinical data. However, a whole genome sequence is around 3 billion letters long and written in code so it is very difficult to interpret. Genomics England can provide access to a visual representation on request or provide access to the raw data. A NHS clinical team is the best route to providing a clinical interpretation of the genome results.</p> more like this
star this property answering member printed Baroness Blackwood of North Oxford more like this
star this property question first answered
less than 2019-07-10T15:26:14.307Zmore like thismore than 2019-07-10T15:26:14.307Z
star this property answering member
4019
star this property label Biography information for Baroness Blackwood of North Oxford more like this
star this property tabling member
4333
unstar this property label Biography information for Lord Scriven more like this