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1124901

	registered interest
	date	07/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Nusinersen
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what discussions they have had with (1) NICE, (2) NHS England, and (3) Biogen, on a Managed Access Agreement for Spinal Muscular Atrophy treatment, Spinraza.
	tabling member printed	Baroness Thomas of Winchester
	uin	HL15576
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>Departmental officials are in regular contact with colleagues in the National Institute for Health and Care Excellence (NICE) and NHS England about a range of issues, including progress in discussions about a potential managed access agreement for Spinraza (nusinersen). Ministers have also held meetings with Biogen, NICE and NHS England on a number of occasions, at which the availability of Spinraza was discussed.</p><p>NHS England and NICE have made stakeholders and the public aware of the outcome of its appraisal committee meeting and NICE is now able to recommend the use of Spinraza for National Health Service patients in England, subject to a managed access agreement agreed between NHS England and Biogen. The final appraisal document will be published in due course.</p><p> </p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL15577 question first answered 17/05/2019 11:07:46 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	3785 label Biography information for Baroness Thomas of Winchester

1124902

	registered interest
	date	07/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	National Institute for Health and Care Excellence
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government when they estimate that NICE will publish the outcome of the NICE Evaluation Committee meeting held on 6 March.
	tabling member printed	Baroness Thomas of Winchester
	uin	HL15577
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>Departmental officials are in regular contact with colleagues in the National Institute for Health and Care Excellence (NICE) and NHS England about a range of issues, including progress in discussions about a potential managed access agreement for Spinraza (nusinersen). Ministers have also held meetings with Biogen, NICE and NHS England on a number of occasions, at which the availability of Spinraza was discussed.</p><p>NHS England and NICE have made stakeholders and the public aware of the outcome of its appraisal committee meeting and NICE is now able to recommend the use of Spinraza for National Health Service patients in England, subject to a managed access agreement agreed between NHS England and Biogen. The final appraisal document will be published in due course.</p><p> </p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL15576 question first answered 17/05/2019 11:07:46 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	3785 label Biography information for Baroness Thomas of Winchester

1125609

	registered interest
	date	09/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Heart Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what comparative estimate he has made of the number of emergency ambulance dispatches for coronary heart disease in affected areas in England during the pollution episode in April 2019 and (a) the expected average and (b) the average over the last five years.
	tabling member constituency	Southampton, Test
	tabling member printed	Dr Alan Whitehead
	uin	252463
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>According to the Daily Air Quality Index, there were ‘moderate’ to ‘very high’ levels of air pollution in some areas of the UK between 7 and 8 April 2019 and between 15 and 25 April 2019. The figures for emergency ambulance dispatches relating to coronary heart disease in this period are not available in the format requested and a comparative assessment has not been made.</p><p>In January 2019, the Government launched the Clean Air Strategy, which sets out plans for dealing with all sources of air pollution to save lives, protect nature and boost the economy.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 17/05/2019 12:30:27 answering member 4455 label Biography information for Seema Kennedy
	tabling member	62 label Biography information for Dr Alan Whitehead

1125399

	registered interest
	date	08/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Heart Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many emergency hospital admissions there were of people with coronary heart disease in affected areas in England during the pollution episode in April 2019; and what comparative assessment he has made of the figures for that period with the (a) expected average and (b) average over the last five years.
	tabling member constituency	Tooting
	tabling member printed	Dr Rosena Allin-Khan
	uin	252073
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>According to the Daily Air Quality Index, there were ‘moderate’ to ‘very high’ levels of air pollution in some areas of the United Kingdom between 7 and 8 April 2019 and between 15 and 25 April 2019. The figures for emergency hospital admissions relating to coronary heart disease in this period are not available in the requested format and a comparative assessment has not been made.</p><p>In January 2019, the Government launched the Clean Air Strategy, which sets out plans for dealing with all sources of air pollution to save lives, protect nature and boost the economy.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 17/05/2019 12:32:56 answering member 4455 label Biography information for Seema Kennedy
	tabling member	4573 label Biography information for Dr Rosena Allin-Khan

1125739

	registered interest
	date	09/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Voluntary Scheme for Branded Medicines Pricing and Access
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether his Department has plans to involve patient organisations in setting the success factors for the 2019 Voluntary Scheme for Branded Medicines Pricing and Access as part of the first operational review meeting.
	tabling member constituency	Carshalton and Wallington
	tabling member printed	Tom Brake
	uin	252468
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>The Department has engaged with patient organisations on multiple occasions as part of the negotiation and implementation of the voluntary scheme. The Department is currently working closely with NHS England and the Association of the British Pharmaceutical Industry to develop success factors for the 2019 voluntary scheme and will keep patient groups informed on progress.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 17/05/2019 12:34:07 answering member 4455 label Biography information for Seema Kennedy
	tabling member	151 label Biography information for Tom Brake

1125320

	registered interest
	date	08/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Asthma: Prescriptions
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the effect of asthma prescription charges on lifelong asthma sufferers.
	tabling member constituency	Romford
	tabling member printed	Andrew Rosindell
	uin	251955
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>The Department has made no such assessment.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 17/05/2019 12:34:53 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1447 label Biography information for Andrew Rosindell

1125364

	registered interest
	date	08/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Ocrelizumab
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what progress he has made on the (a) negotiations for NHS access to and (b) appraisal of Ocrelizumab as a treatment for primary progressive MS.
	tabling member constituency	South Cambridgeshire
	tabling member printed	Heidi Allen
	uin	252055
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based guidance for the National Health Service on whether drugs and other treatments represent an effective use of NHS resources.</p><p>NICE is currently developing technology appraisal guidance on the use of ocrelizumab for treating primary progressive multiple sclerosis, with final guidance expected in June 2019. NHS England and Roche have now reached a commercial agreement and on 9 May NICE published final draft guidance which recommended ocrelizumab within its marketing authorisation, as an option for treating early primary progressive multiple sclerosis with imaging features characteristic of inflammatory activity in adults. Ocrelizumab will now be routinely available for eligible adults.</p><p> </p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 17/05/2019 12:35:52 answering member 4455 label Biography information for Seema Kennedy
	tabling member	4516 label Biography information for Heidi Allen

1125432

	registered interest
	date	08/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Huntington's Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help raise awareness of Huntington's disease.
	tabling member constituency	Mansfield
	tabling member printed	Ben Bradley
	uin	252093
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>Huntington’s disease is a rare inherited progressive disorder that causes motor, cognitive, and psychiatric signs and symptoms.</p><p>The United Kingdom Rare Disease Strategy, published in 2013, is a high-level framework committed to raising awareness about all rare diseases, such as Huntington’s disease, and sets out a strategic vision for improving the lives of all those affected.</p><p>Steps to increase awareness of rare conditions are being taken through the implementation of the Strategy. The Department published an update to its implementation plan to achieve the commitments in the Strategy in England on 27 February 2019.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 17/05/2019 12:38:11 answering member 4455 label Biography information for Seema Kennedy
	tabling member	4663 label Biography information for Ben Bradley

1125394

	registered interest
	date	08/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Pharmaceutical Price Regulation Scheme
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much money was accrued to the public purse under the pharmaceutical price regulation scheme and (b) what proportion of that money was allocated to clinical commissioning groups between 2014 and 2019.
	tabling member constituency	Rotherham
	tabling member printed	Sarah Champion
	uin	252068
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>Under the 2014 Pharmaceutical Price Regulation Scheme (PPRS), scheme members made payments to the Department. The 2014 PPRS has now delivered over £2.7 billion of PPRS payments. The following table shows the annual aggregate PPRS payments from 2014 until the end of the PPRS in December 2018. The 2019 Voluntary Scheme for Branded Medicines Pricing and Access is the current voluntary scheme.</p><table><tbody><tr><td><p>Period</p></td><td><p>Aggregate PPRS payments</p></td></tr><tr><td><p>2014</p></td><td><p>£311 million</p></td></tr><tr><td><p>2015</p></td><td><p>£847 million</p></td></tr><tr><td><p>2016</p></td><td><p>£628 million</p></td></tr><tr><td><p>2017</p></td><td><p>£387 million</p></td></tr><tr><td><p>2018</p></td><td><p>£615 million</p></td></tr></tbody></table><p> </p><p>Further aggregate net sales and payment information can be found at the following link:</p><p><a href="https://www.gov.uk/government/collections/pprs-quarterly-net-sales-and-payment-information" target="_blank">https://www.gov.uk/government/collections/pprs-quarterly-net-sales-and-payment-information</a></p><p>Each year, the Department estimates the England share of expected income from the PPRS which is then included within NHS England baseline financial allocations. Decisions on how to allocate funding across the health system is for NHS England to determine, in line with patient need.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 17/05/2019 12:39:55 answering member 4455 label Biography information for Seema Kennedy
	tabling member	4267 label Biography information for Sarah Champion

1125398

	registered interest
	date	08/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Strokes
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many emergency hospital admissions there were for people suffering a stroke in affected areas in England during the pollution episode in April 2019; and what comparative assessment he has made of the figures for that period with the (a) expected average and (b) average over the last five years.
	tabling member constituency	Tooting
	tabling member printed	Dr Rosena Allin-Khan
	uin	252072
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>According to the Daily Air Quality Index there were ‘moderate’ to ‘very high’ levels of air pollution in some areas of the United Kingdom between 7 and 8 April and between 15 to 25 April 2019. The figures for emergency hospital admissions due to stroke in this period are not available in the requested format and a comparative assessment has not been made.</p><p>In January 2019, the Government launched the Clean Air Strategy, which sets out plans for dealing with all sources of air pollution to save lives, protect nature and boost the economy.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 17/05/2019 12:43:52 answering member 4455 label Biography information for Seema Kennedy
	tabling member	4573 label Biography information for Dr Rosena Allin-Khan