Linked Data API

Show Search Form

Search Results

228709
star this property registered interest false more like this
star this property date less than 2015-03-19more like thismore than 2015-03-19
star this property answering body
Department of Health more like this
star this property answering dept id 17 remove filter
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 2 more like this
star this property legislature
25277
star this property pref label House of Lords more like this
star this property question text To ask Her Majesty’s Government which organisation or body is responsible for assessing the needs of the local population for carrier screening for genetic disorders in at risk populations without an established family history. more like this
star this property tabling member printed
Baroness Deech more like this
star this property uin HL5891 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-03-25more like thismore than 2015-03-25
star this property answer text <p>The UK National Screening Committee makes recommendations on whole population screening programmes. It is for the National Institute for Health and Care Excellence or its accredited guideline producing bodies to recommend care and testing of people at high risk.</p><p> </p><p> </p><p> </p><p>NHS England has commissioning arrangements in place for carrier testing for Tay Sachs disease for at risk populations. Genetic testing will be undertaken where there is a known family history, which indicates a risk of the specific condition or in response to the individual’s clinical symptoms. In the absence of a family history or clinical symptoms it is the responsibility of clinical commissioning groups based on their local needs as to whether they fund referrals to clinical genetics for carrier screening for Tay Sachs disease.</p><p> </p><p> </p><p> </p><p>Genomics offers a great opportunity to improve our insight into genetic diseases. It is for this reason that the Government launched a world-leading project to sequence 100,000 genomes from National Health Service patients and established Genomics England, a subsidiary of the Department, to deliver the project.</p><p> </p>
star this property answering member printed Earl Howe remove filter
star this property grouped question UIN
HL5892 more like this
HL5893 more like this
HL5894 more like this
star this property question first answered
less than 2015-03-25T14:05:28.233Zmore like thismore than 2015-03-25T14:05:28.233Z
star this property answering member
2000
unstar this property label Biography information for Earl Howe more like this
star this property tabling member
3756
unstar this property label Biography information for Baroness Deech more like this
228712
star this property registered interest false more like this
star this property date less than 2015-03-19more like thismore than 2015-03-19
star this property answering body
Department of Health more like this
star this property answering dept id 17 remove filter
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 2 more like this
star this property legislature
25277
star this property pref label House of Lords more like this
star this property question text To ask Her Majesty’s Government which government department, NHS organisation or body is currently responsible for commissioning carrier screening services for (1) Tay Sachs disease, (2) Familial Dysautonomia and Canavan disease, and (3) other severe inherited genetic disorders, in at risk populations without an established family history. more like this
star this property tabling member printed
Baroness Deech more like this
star this property uin HL5894 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-03-25more like thismore than 2015-03-25
star this property answer text <p>The UK National Screening Committee makes recommendations on whole population screening programmes. It is for the National Institute for Health and Care Excellence or its accredited guideline producing bodies to recommend care and testing of people at high risk.</p><p> </p><p> </p><p> </p><p>NHS England has commissioning arrangements in place for carrier testing for Tay Sachs disease for at risk populations. Genetic testing will be undertaken where there is a known family history, which indicates a risk of the specific condition or in response to the individual’s clinical symptoms. In the absence of a family history or clinical symptoms it is the responsibility of clinical commissioning groups based on their local needs as to whether they fund referrals to clinical genetics for carrier screening for Tay Sachs disease.</p><p> </p><p> </p><p> </p><p>Genomics offers a great opportunity to improve our insight into genetic diseases. It is for this reason that the Government launched a world-leading project to sequence 100,000 genomes from National Health Service patients and established Genomics England, a subsidiary of the Department, to deliver the project.</p><p> </p>
star this property answering member printed Earl Howe remove filter
star this property grouped question UIN
HL5891 more like this
HL5892 more like this
HL5893 more like this
star this property question first answered
less than 2015-03-25T14:05:28.627Zmore like thismore than 2015-03-25T14:05:28.627Z
star this property answering member
2000
unstar this property label Biography information for Earl Howe more like this
star this property tabling member
3756
unstar this property label Biography information for Baroness Deech more like this
228711
star this property registered interest false more like this
star this property date less than 2015-03-19more like thismore than 2015-03-19
star this property answering body
Department of Health more like this
star this property answering dept id 17 remove filter
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 2 more like this
star this property legislature
25277
star this property pref label House of Lords more like this
star this property question text To ask Her Majesty’s Government which government department or organisation or body in the National Health Service is currently responsible for setting or determining the national policy for carrier screening for (1) Tay Sachs disease, (2) Familial Dysautonomia and Canavan disease, and (3) other severe inherited genetic disorders, in at risk populations without an established family history. more like this
star this property tabling member printed
Baroness Deech more like this
star this property uin HL5893 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-03-25more like thismore than 2015-03-25
star this property answer text <p>The UK National Screening Committee makes recommendations on whole population screening programmes. It is for the National Institute for Health and Care Excellence or its accredited guideline producing bodies to recommend care and testing of people at high risk.</p><p> </p><p> </p><p> </p><p>NHS England has commissioning arrangements in place for carrier testing for Tay Sachs disease for at risk populations. Genetic testing will be undertaken where there is a known family history, which indicates a risk of the specific condition or in response to the individual’s clinical symptoms. In the absence of a family history or clinical symptoms it is the responsibility of clinical commissioning groups based on their local needs as to whether they fund referrals to clinical genetics for carrier screening for Tay Sachs disease.</p><p> </p><p> </p><p> </p><p>Genomics offers a great opportunity to improve our insight into genetic diseases. It is for this reason that the Government launched a world-leading project to sequence 100,000 genomes from National Health Service patients and established Genomics England, a subsidiary of the Department, to deliver the project.</p><p> </p>
star this property answering member printed Earl Howe remove filter
star this property grouped question UIN
HL5891 more like this
HL5892 more like this
HL5894 more like this
star this property question first answered
less than 2015-03-25T14:05:28.52Zmore like thismore than 2015-03-25T14:05:28.52Z
star this property answering member
2000
unstar this property label Biography information for Earl Howe more like this
star this property tabling member
3756
unstar this property label Biography information for Baroness Deech more like this