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100728

	registered interest
	date	23/10/2014
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, how much from the public purse has been spent on research into motor neurone disease in each of the last five years.
	tabling member constituency	Leicester West
	tabling member printed	Liz Kendall
	uin	211730
	answer	answer is ministerial correction date of answer 29/10/2014 answer text <p>The following table shows estimated expenditure on research on asthma, motor neurone disease (MND) and osteoporosis by the Medical Research Council, other Research Councils and Innovate UK, and by the National Institute for Health (NIHR) through its research programmes, research centres and units, and research fellowships.</p><p> </p><p> </p><p> </p><p><em>£ million</em></p><p> </p><table><tbody><tr><td> </td><td><p>2009-10</p></td><td><p>2010-11</p></td><td><p>2011-12</p></td><td><p>2012-13</p></td><td><p>2013-14</p></td></tr><tr><td colspan="6"><p>Asthma</p></td></tr><tr><td><p>Medical Research Council</p></td><td><p><del class="ministerial">22.2 </del><ins class="ministerial">6.6</ins></p></td><td><p><del class="ministerial">17.5 </del><ins class="ministerial">5.3</ins></p></td><td><p><del class="ministerial">17.2</del><ins class="ministerial"> 4.5</ins></p></td><td><p><del class="ministerial">19.4</del><ins class="ministerial"> 3.6</ins></p></td><td><p><del class="ministerial">18.8</del><ins class="ministerial"> 5.4</ins></p></td></tr><tr><td><p>Other Research Councils and Innovate UK</p></td><td><p>0.0</p></td><td><p>0.1</p></td><td><p>0.3</p></td><td><p>1.5</p></td><td><p>0.8</p></td></tr><tr><td><p>National Institute for Health Research</p></td><td><p>2.6</p></td><td><p>3.4</p></td><td><p>2.4</p></td><td><p>3.4</p></td><td><p>3.8</p></td></tr><tr><td><p>Total</p></td><td><p><del class="ministerial">24.8</del><ins class="ministerial"> 9.2</ins></p></td><td><p><del class="ministerial">21.0</del><ins class="ministerial"> 8.8</ins></p></td><td><p><del class="ministerial">19.9</del><ins class="ministerial"> 7.2</ins></p></td><td><p><del class="ministerial">24.3 </del><ins class="ministerial">8.5</ins></p></td><td><p><del class="ministerial">23.4</del> <ins class="ministerial">10.0</ins></p></td></tr><tr><td colspan="6"><p>Motor Neurone Research</p></td></tr><tr><td><p>Medical Research Council</p></td><td><p>7.0</p></td><td><p>7.5</p></td><td><p>4.2</p></td><td><p>4.1</p></td><td><p>3.6</p></td></tr><tr><td><p>Other Research Councils and Innovate UK</p></td><td><p>0.2</p></td><td><p>0.2</p></td><td><p>0.4</p></td><td><p>0.7</p></td><td><p>1.0</p></td></tr><tr><td><p>National Institute for Health Research</p></td><td><p>0.1</p></td><td><p>0.1</p></td><td><p>0.4</p></td><td><p>0.7</p></td><td><p>0.5</p></td></tr><tr><td><p>Total</p></td><td><p>7.3</p></td><td><p>7.8</p></td><td><p>5.0</p></td><td><p>5.5</p></td><td><p>5.1</p></td></tr><tr><td colspan="6"><p>Osteoporosis</p></td></tr><tr><td><p>Medical Research Council</p></td><td><p>6.2</p></td><td><p>5.4</p></td><td><p>5.1</p></td><td><p>4.6</p></td><td><p>5.9</p></td></tr><tr><td><p>Other Research Councils and Innovate UK</p></td><td><p>0.0</p></td><td><p>0.0</p></td><td><p>0.1</p></td><td><p>0.4</p></td><td><p>1.0</p></td></tr><tr><td><p>National Institute for Health Research</p></td><td><p>0.3</p></td><td><p>0.7</p></td><td><p>0.8</p></td><td><p>1.3</p></td><td><p>1.8</p></td></tr><tr><td><p>Total</p></td><td><p>6.5</p></td><td><p>6.1</p></td><td><p>6.0</p></td><td><p>6.3</p></td><td><p>8.7</p></td></tr></tbody></table><p> </p><p> </p><p> </p><p>The figures shown for asthma exclude research into air pollution and potential effects on health outcomes including asthma.</p><p> </p><p> </p><p> </p><p>Total spend by the NIHR on asthma, MND and osteoporosis is higher than the figures shown because expenditure by the NIHR Clinical Research Network (CRN) on these diseases cannot be disaggregated from total CRN expenditure. NIHR expenditure relating to development of new drugs for asthma, MND and osteroporosis occurs primarily through NIHR research infrastructure including the CRN and cannot be disaggregated from total expenditure.</p><p> </p><p> </p><p> </p><p>Information on MRC expenditure into the development of new drugs for asthma, MND or osteoporosis is not available.</p><p> </p> answering member constituency Mid Norfolk answering member printed George Freeman question first answered 29/10/2014 17:12:28 question first ministerially corrected 13/11/2014 10:22:56 answering member 4020 label Biography information for George Freeman previous answer version 25123 answering member constituency Mid Norfolk answering member printed George Freeman answering member 4020 label Biography information for George Freeman
	tabling member	4026 label Biography information for Liz Kendall

100401

	registered interest
	date	22/10/2014
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what steps he is taking to ensure that the NHS is meeting the communication needs of people with motor neurone disease.
	tabling member constituency	Birkenhead
	tabling member printed	Mr Frank Field
	uin	211515
	answer	answer is ministerial correction date of answer 29/10/2014 answer text <p>Since 1 April 2013 NHS England has been responsible for commissioning Alternative and Augmentative Communication (AAC) aids for patients with complex disability whose needs require specialised assessment, including for patients with motor neurone disease. Commissioning of non-specialised AAC aids is the responsibility of local clinical commissioning groups.</p><p> </p><p> </p><p> </p><p>NHS England has published a service specification for specialised AAC aids that sets out what should be in place for providers to offer evidence-based, safe and effective services. The specification can be found at:</p><p> </p><p> </p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d01-com-dis-equ-alt-aug-comm-aids.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d01-com-dis-equ-alt-aug-comm-aids.pdf</a></p><p> </p><p> </p><p> </p><p>NHS England has identified an additional £22.5 million funding for AAC and Environmental Controls in 2014-15. They have been working closely with the Motor Neurone Disease Association (MNDA) to ensure this funding is equitably distributed across England in a fair and consistent manner. The MNDA are representing all patients on the panel which is reviewing this funding allocation.</p><p> </p> answering member constituency North Norfolk answering member printed Norman Lamb question first answered 29/10/2014 17:16:16 answering member 1439 label Biography information for Norman Lamb
	tabling member	478 label Biography information for Lord Field of Birkenhead

1062064

	registered interest
	date	15/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, when the next planned review date is for the assessment and management of motor neurone disease.
	tabling member constituency	East Londonderry
	tabling member printed	Mr Gregory Campbell
	uin	221996
	answer	answer is ministerial correction date of answer 20/02/2019 answer text <p>The National Institute for Health and Care Excellence (NICE) has advised that the guideline on ‘Motor Neurone Disease: assessment and management’ is currently not scheduled for review. NICE has processes in place to periodically review its guidelines to ensure that they reflect the latest available evidence. Such reviews are normally carried out every five years. As the guideline was published in 2016, the latest the surveillance review would be undertaken will be 2020/21.</p><p> </p><p>If significant new evidence that is likely to affect the guideline’s recommendations emerges before then, NICE is able to bring forward the surveillance review.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 20/02/2019 17:39:05 answering member 4067 label Biography information for Steve Brine
	tabling member	1409 label Biography information for Mr Gregory Campbell

1316286

	registered interest
	date	19/05/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support targeted research on motor neurone disease.
	tabling member constituency	Crawley
	tabling member printed	Henry Smith
	uin	3840
	answer	answer is ministerial correction date of answer 27/05/2021 answer text <p>We are currently working on ways to significantly boost further research on dementia and neurodegeneration. On 29 April, I hosted a roundtable event on boosting motor neurone disease research with the National Institute for Health Research Sheffield Biomedical Research Centre. The event brought together researchers, charities, people with motor neurone disease and funders. We will be working closely with these stakeholders over the coming months to consider ways forward for this vital area of research.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 27/05/2021 16:57:56 answering member 4527 label Biography information for Helen Whately
	tabling member	3960 label Biography information for Henry Smith

1338849

	registered interest
	date	22/06/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he plans to increase funding for motor neurone disease research and treatment over the next five years.
	tabling member constituency	Bristol East
	tabling member printed	Kerry McCarthy
	uin	20333
	answer	answer is ministerial correction date of answer 28/06/2021 answer text <p><strong> </strong>The Department funds research on health and social care through the National Institute for Health Research (NIHR). It is not usual practice to ring-fence funding for particular topics or conditions. The NIHR welcomes funding applications for research into any aspect of human health, including motor neurone disease (MND). Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.</p><p>NHS England and NHS Improvement commission the specialised care and treatment which patients with MND may receive from the specialised neurological treatment centres across England. Funding decisions for these are made in line with local priorities and in the context of the interim funding regime in place during the pandemic.</p> answering member constituency Charnwood answering member printed Edward Argar question first answered 28/06/2021 11:48:47 answering member 4362 label Biography information for Edward Argar
	tabling member	1491 label Biography information for Kerry McCarthy

1341739

	registered interest
	date	29/06/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what discussions he has had with the Chancellor of the Exchequer on the future funding of motor neurone disease (a) research and (b) treatment ahead of the 2021 Spending Review.
	tabling member constituency	Bristol East
	tabling member printed	Kerry McCarthy
	uin	24129
	answer	answer is ministerial correction date of answer 05/07/2021 answer text <p>There have been no specific discussions. However, we are currently working on ways to significantly boost further research on dementia and neurodegeneration at all stages. The Department funds research on health and social care through the National Institute for Health Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including motor neurone disease (MND). Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p><p>NHS England and NHS Improvement commission the specialised care and treatment that patients with MND may receive from the specialised neurological treatment centres across England. Funding decisions for these are made in line with local priorities and in the context of the interim funding regime in place during the pandemic.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 05/07/2021 16:23:42 answering member 4527 label Biography information for Helen Whately
	tabling member	1491 label Biography information for Kerry McCarthy

1379554

	registered interest
	date	17/11/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to (a) improve support for those with Motor Neurone Disease and (b) increase research in the area of diagnosis and treatment.
	tabling member constituency	Huddersfield
	tabling member printed	Mr Barry Sheerman
	uin	76591
	answer	answer is ministerial correction date of answer 25/11/2021 answer text <p>Care for patients with Motor Neurone Disease (MND) involves a multi-disciplinary approach from MND specialists. NHS England commissions specialised care from 25 specialised neurological treatment centres across England. NHS England has published a service specification setting out what providers must have in place to deliver specialised neurological care. The National Institute for Health and Care Excellence guideline, ‘Motor neurone disease: assessment and management’, contains guidance for clinicians in the diagnosis of MND. Clinicians and commissioners should continue to take this guidance into account, alongside prioritisation advice provided by the Association of British Neurologists and NHS England and NHS Improvement.</p><p>We have committed £50 million for MND research over the next five years. New, innovative projects will help researchers to better understand the disease and its related conditions, develop and test treatments and improve care for those living with MND. We will also establish the National Institute for Health Research’s MND Research Unit to coordinate innovative research applications.</p> answering member constituency Chichester answering member printed Gillian Keegan question first answered 25/11/2021 10:41:59 answering member 4680 label Biography information for Gillian Keegan
	tabling member	411 label Biography information for Mr Barry Sheerman

1381704

	registered interest
	date	24/11/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with motor neurone disease in the last three years.
	tabling member constituency	Strangford
	tabling member printed	Jim Shannon
	uin	80995
	answer	answer is ministerial correction date of answer 15/12/2021 answer text <p>The information is not collected in the format requested.</p> answering member constituency Chichester answering member printed Gillian Keegan question first answered 15/12/2021 13:08:40 answering member 4680 label Biography information for Gillian Keegan
	tabling member	4131 label Biography information for Jim Shannon

1600221

	registered interest
	date	01/03/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many people are diagnosed with motor neurone disease in the UK as of 1 March 2023.
	tabling member constituency	Strangford
	tabling member printed	Jim Shannon
	uin	156132
	answer	answer is ministerial correction date of answer 08/03/2023 answer text <p>The information is not collected in the format requested.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 08/03/2023 14:14:04 answering member 4527 label Biography information for Helen Whately
	tabling member	4131 label Biography information for Jim Shannon

1603878

	registered interest
	date	14/03/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Motor Neurone Disease
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many (a) males and (b) females have been diagnosed with motor neurone disease in each of the last three years.
	tabling member constituency	Strangford
	tabling member printed	Jim Shannon
	uin	165251
	answer	answer is ministerial correction date of answer 23/03/2023 answer text <p>The information is not held in the format requested.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 23/03/2023 12:12:21 answering member 4527 label Biography information for Helen Whately
	tabling member	4131 label Biography information for Jim Shannon