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1693259

	registered interest
	date	04/03/2024
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to support research into (a) understanding, (b) treating and (c) curing Myalgic Encephalomyelitis.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	16634
	answer	answer is ministerial correction date of answer 12/03/2024 answer text <p>Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.</p><p> </p><p>We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 16633 16635 question first answered 12/03/2024 10:59:35 answering member 4874 label Biography information for Andrew Griffith
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1673063

	registered interest
	date	27/11/2023
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to help facilitate research into the (a) causes and (b) treatment of Myalgic Encephalomyelitis.
	tabling member constituency	Hayes and Harlington
	tabling member printed	John McDonnell
	uin	3687
	answer	answer is ministerial correction date of answer 05/12/2023 answer text <p>Since 2012, UK Research and Innovation (UKRI)’s Medical Research Council (MRC) has awarded £6.2 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This includes <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.decodeme.org.uk%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473322916%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=sd9a0fW9lnkOcouAjOU%2F1vW4HZ%2FmvMMqktjr0ZJ5reo%3D&amp;reserved=0" target="_blank">DecodeME</a>, a significant strategic initiative co-funded by the National Institute of Health and Care Research in 2020, which aims to find genetic causes of ME/CFS in order to better understand the disease and ultimately to find treatments.</p><p> </p><p>The Government works with the ME/CFS Priority Setting Partnership to identify research priorities in this area and MRC has an open <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.ukri.org%2Fopportunity%2Fresearching-me-cfs-highlight-notice%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473331757%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=5DhrpVGI9XBC4oxQOLFvoGnK5h%2FBLfTcaj7j%2F1DwpQg%3D&amp;reserved=0" target="_blank">highlight notice</a> to encourage ME/CFS research.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 3686 question first answered 05/12/2023 16:09:46 answering member 4874 label Biography information for Andrew Griffith
	tabling member	178 label Biography information for John McDonnell

1693258

	registered interest
	date	04/03/2024
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what research the Medical Research Council is funding on the (a) causes and (b) treatment of Myalgic Encephalomyelitis.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	16633
	answer	answer is ministerial correction date of answer 12/03/2024 answer text <p>Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.</p><p> </p><p>We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 16634 16635 question first answered 12/03/2024 10:59:35 answering member 4874 label Biography information for Andrew Griffith
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1673062

	registered interest
	date	27/11/2023
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what assessment she has made of the potential merits of increasing public funding for research into Myalgic Encephalomyelitis.
	tabling member constituency	Hayes and Harlington
	tabling member printed	John McDonnell
	uin	3686
	answer	answer is ministerial correction date of answer 05/12/2023 answer text <p>Since 2012, UK Research and Innovation (UKRI)’s Medical Research Council (MRC) has awarded £6.2 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This includes <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.decodeme.org.uk%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473322916%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=sd9a0fW9lnkOcouAjOU%2F1vW4HZ%2FmvMMqktjr0ZJ5reo%3D&amp;reserved=0" target="_blank">DecodeME</a>, a significant strategic initiative co-funded by the National Institute of Health and Care Research in 2020, which aims to find genetic causes of ME/CFS in order to better understand the disease and ultimately to find treatments.</p><p> </p><p>The Government works with the ME/CFS Priority Setting Partnership to identify research priorities in this area and MRC has an open <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.ukri.org%2Fopportunity%2Fresearching-me-cfs-highlight-notice%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473331757%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=5DhrpVGI9XBC4oxQOLFvoGnK5h%2FBLfTcaj7j%2F1DwpQg%3D&amp;reserved=0" target="_blank">highlight notice</a> to encourage ME/CFS research.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 3687 question first answered 05/12/2023 16:09:46 answering member 4874 label Biography information for Andrew Griffith
	tabling member	178 label Biography information for John McDonnell

809873

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what recent research his Department has commissioned on the diagnosis and treatment of ME.
	tabling member constituency	Stroud
	tabling member printed	Dr David Drew
	uin	120493
	answer	answer is ministerial correction date of answer 22/12/2017 answer text <p>The Department, through the National Institute for Health Research, has recently commissioned one project on the treatment of symptoms of Myalgic Encephalomyelitis (ME). Professor Esther Crawley, of the University of Bristol, was awarded funding for research entitled, ‘Investigating the effectiveness and cost effectiveness of using FITNET to treat paediatric CFS/ME in the UK’. This project began in May 2016. Full details of the research can be found at:</p><p> </p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/hta/14192109/#/summary-of-research" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/hta/14192109/#/summary-of-research</a></p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 22/12/2017 14:31:09 answering member 4065 label Biography information for Dame Jackie Doyle-Price
	tabling member	252 label Biography information for Dr David Drew

1382722

	registered interest
	date	26/11/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he has plans to fund research into mitochondria cells and the effect upon them in relation to sufferers of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome; and if he will make a statement.
	tabling member constituency	Arfon
	tabling member printed	Hywel Williams
	uin	82269
	answer	answer is ministerial correction date of answer 01/12/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). However, it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. We will continue to work with stakeholders to consider how best to support continued research into ME/CFS.</p> answering member constituency Lewes answering member printed Maria Caulfield question first answered 01/12/2021 16:41:45 answering member 4492 label Biography information for Maria Caulfield
	tabling member	1397 label Biography information for Hywel Williams

1351181

	registered interest
	date	18/08/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he has made a recent assessment of the potential merits of increasing funding for research into ME and Chronic Fatigue Syndrome.
	tabling member constituency	Lewisham East
	tabling member printed	Janet Daby
	uin	41247
	answer	answer is ministerial correction date of answer 06/09/2021 answer text <p>The Government invests in health research through the National Institute for Health Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. The NIHR and MRC both welcome high-quality applications for research into all aspects of myalgic encephalomyelitis (ME), otherwise known as chronic fatigue syndrome (CFS). No assessment has been made of the merits of increasing funding for research into ME/CFS. While it is not usual practice for the NIHR and MRC to ring-fence funds for particular topics or conditions, the MRC has had a cross-board highlight notice on CFS/ME open since 2003.</p> answering member constituency Charnwood answering member printed Edward Argar question first answered 06/09/2021 11:52:14 answering member 4362 label Biography information for Edward Argar
	tabling member	4698 label Biography information for Janet Daby

964066

	registered interest
	date	03/09/2018
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support biomedical research on myalgic encephalomyelitis.
	tabling member constituency	Glasgow Central
	tabling member printed	Alison Thewliss
	uin	169455
	answer	answer is ministerial correction date of answer 11/09/2018 answer text <p>The Department’s National Institute for Health Research (NIHR) recognises that myalgic encephalomyelitis (ME) is a debilitating condition. The NIHR is speaking with the Chronic Fatigue Syndrome/ME Research Collaborative and patient representatives about how best we can support a joined up approach to high quality research into this complex disorder.</p><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 11/09/2018 13:55:58 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4430 label Biography information for Alison Thewliss

1273898

	registered interest
	date	06/01/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase biomedical research on the causes and treatment of myalgic encephalomyelitis in the UK.
	tabling member constituency	Bristol North West
	tabling member printed	Darren Jones
	uin	134061
	answer	answer is ministerial correction date of answer 26/01/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). In 2020, the NIHR and the Medical Research Council, through UK Research and Innovation, came together to fund the world’s largest genome-wide association study of myalgic encephalomyelitis (ME), sometimes referred to as Chronic Fatigue Syndrome (CFS). This £3.2 million study, ‘DecodeME’, will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. DecodeME is a partnership between biomedical scientists at the University of Edinburgh and ME/CFS charities and people with lived experience of ME/CFS. It is hoped that the outcomes of this study will aid the development of diagnostic tests and targeted treatments.</p><p> </p> answering member constituency Charnwood answering member printed Edward Argar question first answered 26/01/2021 09:48:36 answering member 4362 label Biography information for Edward Argar
	tabling member	4621 label Biography information for Darren Jones

1667694

	registered interest
	date	07/11/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that funding for biomedical research into myalgic encephalomyelitis (ME) is adequate; and whether he plans to take steps to establish a centre of excellence on ME to (a) promote understanding of and (b) develop effective treatments for that illness.
	tabling member constituency	Cambridge
	tabling member printed	Daniel Zeichner
	uin	236
	answer	answer is ministerial correction date of answer 17/11/2023 answer text <p>The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR has provided around £4.4 million of programme funding for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since 2011.</p><p>Through the NIHR, the Department has co-funded, with the Medical Research Council (MRC) a £3.2 million study called DecodeME into the genetic underpinning of ME/CFS. The study will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. This study aims to increase our understanding of the disease and therefore contribute to the research base on diagnostic tests and targeted treatments for ME/CFS.</p><p>The Department and the NIHR has no specific plans to establish a centre of excellence for ME research. The NIHR welcomes funding applications for research into any aspect of human health, including biomedical research for ME/CFS. These applications are subject to peer review and judged in open competition, with awards being made based on the importance of the topic to patients and health and care services, value for money and scientific quality. In all disease areas, the amount of NIHR funding depends on the volume and quality of scientific activity.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 17/11/2023 12:25:59 answering member 4044 label Biography information for Andrew Stephenson
	tabling member	4382 label Biography information for Daniel Zeichner