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1174940

	registered interest
	date	30/01/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much money from the public purse has been allocated to funding research on myalgic encephalomyelitis since 2010.
	tabling member constituency	Portsmouth South
	tabling member printed	Mr Stephen Morgan
	uin	10460
	answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10461 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4653 label Biography information for Stephen Morgan

1174944

	registered interest
	date	30/01/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he will make an assessment of the effect of recent changes in the level of funding for research into myalgic encephalomyelitis on clinical understanding of that condition.
	tabling member constituency	Portsmouth South
	tabling member printed	Mr Stephen Morgan
	uin	10461
	answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10460 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4653 label Biography information for Stephen Morgan

1091289

	registered interest
	date	19/03/2019
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, what assessment he has made of the potential merits of ring-fencing Medical Research Council funds for biomedical research on myalgic encephalomyelitis (ME) in order to ensure that overall research funding for ME is proportional to that spent on research into similarly prevalent health conditions.
	tabling member constituency	Loughborough
	tabling member printed	Nicky Morgan
	uin	234154
	answer	answer is ministerial correction date of answer 28/03/2019 answer text <p>I refer my rt. hon. Friend to the answer I gave to my hon. Friend the Member for North West Norfolk on 20th March 2019 to Question <a href="https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-03-13/231931/" target="_blank">231931</a>.</p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 28/03/2019 16:59:08 answering member 4021 label Biography information for Chris Skidmore
	tabling member	4027 label Biography information for Baroness Morgan of Cotes

642415

	registered interest
	date	22/11/2016
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, if he will take steps to identify those responsible for the Medical Research Council's policies towards ME research over the last decade; and if he will seek those people's removal from positions of influence over future of ME research.
	tabling member constituency	Luton North
	tabling member printed	Kelvin Hopkins
	uin	54353
	answer	answer is ministerial correction date of answer 30/11/2016 answer text <p>Management of individual staff within the Medical Research Council is a matter for the MRC as the legal employer.</p> answering member constituency Orpington answering member printed Joseph Johnson question first answered 30/11/2016 16:41:44 answering member 4039 label Biography information for Lord Johnson of Marylebone
	tabling member	2 label Biography information for Kelvin Hopkins

1693258

	registered interest
	date	04/03/2024
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what research the Medical Research Council is funding on the (a) causes and (b) treatment of Myalgic Encephalomyelitis.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	16633
	answer	answer is ministerial correction date of answer 12/03/2024 answer text <p>Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.</p><p> </p><p>We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 16634 16635 question first answered 12/03/2024 10:59:35 answering member 4874 label Biography information for Andrew Griffith
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1693259

	registered interest
	date	04/03/2024
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to support research into (a) understanding, (b) treating and (c) curing Myalgic Encephalomyelitis.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	16634
	answer	answer is ministerial correction date of answer 12/03/2024 answer text <p>Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.</p><p> </p><p>We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 16633 16635 question first answered 12/03/2024 10:59:35 answering member 4874 label Biography information for Andrew Griffith
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

642427

	registered interest
	date	22/11/2016
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, if he will request that the Medical Research Council conducts an inquiry into the management of the PACE trial to ascertain whether any fraudulent activity has occurred.
	tabling member constituency	Luton North
	tabling member printed	Kelvin Hopkins
	uin	54269
	answer	answer is ministerial correction date of answer 28/11/2016 answer text <p>Queen Mary University of London, as the research organisation which held the award, is responsible for the management of the study, including the investigation of any concerns relating to research conduct and research integrity.</p><p>Whilst the Medical Research Council (MRC) was one of the funders of the PACE trial, the responsibility for the management of the trial rested with the host research institution, Queen Mary University of London (QMUL). This responsibility included oversight of the trial and the investigation of any well-founded allegations of misconduct that are brought to its attention. As part of this oversight, in accordance with MRC guidance on best practice, a trial steering committee was set up and supported by various sub-groups, including a data monitoring committee. The MRC was an observer on the trial steering committee.</p><p>Anyone wishing to raise concerns to over the conduct of individual researchers or research programmes is advised to contact QMUL in the first instance to allow the University to investigate appropriately. It would be inappropriate for BEIS to intervene in such investigations or to impose sanctions against researchers.</p> answering member constituency Orpington answering member printed Joseph Johnson grouped question UIN 54266 question first answered 28/11/2016 10:06:49 answering member 4039 label Biography information for Lord Johnson of Marylebone previous answer version 22830 answering member constituency Orpington answering member printed Joseph Johnson answering member 4039 label Biography information for Lord Johnson of Marylebone
	tabling member	2 label Biography information for Kelvin Hopkins

642428

	registered interest
	date	22/11/2016
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, if he will prevent the PACE trial researchers from being given further public research funding until an inquiry into possible fraudulent activity into the PACE trial has been conducted.
	tabling member constituency	Luton North
	tabling member printed	Kelvin Hopkins
	uin	54266
	answer	answer is ministerial correction date of answer 28/11/2016 answer text <p>Queen Mary University of London, as the research organisation which held the award, is responsible for the management of the study, including the investigation of any concerns relating to research conduct and research integrity.</p><p>Whilst the Medical Research Council (MRC) was one of the funders of the PACE trial, the responsibility for the management of the trial rested with the host research institution, Queen Mary University of London (QMUL). This responsibility included oversight of the trial and the investigation of any well-founded allegations of misconduct that are brought to its attention. As part of this oversight, in accordance with MRC guidance on best practice, a trial steering committee was set up and supported by various sub-groups, including a data monitoring committee. The MRC was an observer on the trial steering committee.</p><p>Anyone wishing to raise concerns to over the conduct of individual researchers or research programmes is advised to contact QMUL in the first instance to allow the University to investigate appropriately. It would be inappropriate for BEIS to intervene in such investigations or to impose sanctions against researchers.</p> answering member constituency Orpington answering member printed Joseph Johnson grouped question UIN 54269 question first answered 28/11/2016 10:06:49 answering member 4039 label Biography information for Lord Johnson of Marylebone previous answer version 22829 answering member constituency Orpington answering member printed Joseph Johnson answering member 4039 label Biography information for Lord Johnson of Marylebone
	tabling member	2 label Biography information for Kelvin Hopkins

1061134

	registered interest
	date	14/02/2019
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, how many grant applications have been made to the Medical Research Council for ME/CFS related research since 2010; how many of those applications have been awarded funding; and if he will make a statement.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	221619
	answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>Since 2009/10, the Medical Research Council (MRC) has received 32 research proposals relating to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), seven of which have been funded.</p><p> </p><p>The MRC supports research in response to proposals from the research community. High quality applications on any aspect of human health are always welcomed and awards are made according to their scientific quality and importance to human health.</p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 22/02/2019 13:02:02 answering member 4021 label Biography information for Chris Skidmore
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1673062

	registered interest
	date	27/11/2023
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what assessment she has made of the potential merits of increasing public funding for research into Myalgic Encephalomyelitis.
	tabling member constituency	Hayes and Harlington
	tabling member printed	John McDonnell
	uin	3686
	answer	answer is ministerial correction date of answer 05/12/2023 answer text <p>Since 2012, UK Research and Innovation (UKRI)’s Medical Research Council (MRC) has awarded £6.2 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This includes <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.decodeme.org.uk%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473322916%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=sd9a0fW9lnkOcouAjOU%2F1vW4HZ%2FmvMMqktjr0ZJ5reo%3D&amp;reserved=0" target="_blank">DecodeME</a>, a significant strategic initiative co-funded by the National Institute of Health and Care Research in 2020, which aims to find genetic causes of ME/CFS in order to better understand the disease and ultimately to find treatments.</p><p> </p><p>The Government works with the ME/CFS Priority Setting Partnership to identify research priorities in this area and MRC has an open <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.ukri.org%2Fopportunity%2Fresearching-me-cfs-highlight-notice%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473331757%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=5DhrpVGI9XBC4oxQOLFvoGnK5h%2FBLfTcaj7j%2F1DwpQg%3D&amp;reserved=0" target="_blank">highlight notice</a> to encourage ME/CFS research.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 3687 question first answered 05/12/2023 16:09:46 answering member 4874 label Biography information for Andrew Griffith
	tabling member	178 label Biography information for John McDonnell