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1046874

	registered interest
	date	23/01/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent funding has been made available for research into myalgic encephalomyelitis.
	tabling member constituency	Bath
	tabling member printed	Wera Hobhouse
	uin	211844
	answer	answer is ministerial correction date of answer 31/01/2019 answer text <p>The National Institute for Health Research (NIHR), on behalf of the Department, funded £1,495,363 of programme research on myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), over the last three financial years (up to 2017/18). Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 31/01/2019 17:21:07 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4602 label Biography information for Wera Hobhouse

1050033

	registered interest
	date	28/01/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans he has to support biomedical research into the diagnosis and treatment of ME.
	tabling member constituency	Harlow
	tabling member printed	Robert Halfon
	uin	213339
	answer	answer is ministerial correction date of answer 04/02/2019 answer text <p>The National Institute for Health Research welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 04/02/2019 17:24:39 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	3985 label Biography information for Robert Halfon

1055255

	registered interest
	date	05/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans his Department has to allocate additional funding to support biomedical research into the diagnosis and treatment of myalgic encephalomyelitis.
	tabling member constituency	Carshalton and Wallington
	tabling member printed	Tom Brake
	uin	216906
	answer	answer is ministerial correction date of answer 13/02/2019 answer text <p>The National Institute for Health Research welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 13/02/2019 17:11:17 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	151 label Biography information for Tom Brake

1061135

	registered interest
	date	14/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for (a) biopsychological and (b) biopsychosocial research in each year since 2010; and if he will make a statement.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	221620
	answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221621 question first answered 22/02/2019 08:01:04 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1061136

	registered interest
	date	14/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for biomedical research in each year since 2010; and if he will make a statement.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	221621
	answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221620 question first answered 22/02/2019 08:01:05 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1109504

	registered interest
	date	03/04/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he make an assessment of the potential merits of ring-fencing funding for high-quality ME research as the Government has done for dementia and brain cancer.
	tabling member constituency	Derby North
	tabling member printed	Chris Williamson
	uin	240545
	answer	answer is ministerial correction date of answer 08/04/2019 answer text <p>The Department for Health and Social Care funds research through the National Institute for Health Research (NIHR). The Government also supports research relating to myalgic encephalomyelitis (ME) through the Medical Research Council (MRC), part of the Department for Business, Environment and Industrial Strategy partner organisation, UK Research and Innovation. Both the NIHR and the MRC welcome funding applications for research into any aspect of human health, including ME; it is not usual practice to ring-fence funds for particular topics or conditions. Applications to the NIHR and the MRC are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p><p> </p><p>Research into chronic fatigue syndrome CFS/ME is an area of strategic importance for the MRC and the only medical condition for which the MRC has a dedicated Highlight Notice which identifies areas where proposals are particularly encouraged. These include proposals which have a focus on the underpinning mechanisms of ME/CFS, with priority areas including immune dysregulation; pain; improved sub-phenotyping and stratification of ME/CFS; and mechanisms of ME/CFS in children and young people.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 08/04/2019 15:29:48 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	3976 label Biography information for Chris Williamson

1174940

	registered interest
	date	30/01/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much money from the public purse has been allocated to funding research on myalgic encephalomyelitis since 2010.
	tabling member constituency	Portsmouth South
	tabling member printed	Mr Stephen Morgan
	uin	10460
	answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10461 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4653 label Biography information for Stephen Morgan

1174944

	registered interest
	date	30/01/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he will make an assessment of the effect of recent changes in the level of funding for research into myalgic encephalomyelitis on clinical understanding of that condition.
	tabling member constituency	Portsmouth South
	tabling member printed	Mr Stephen Morgan
	uin	10461
	answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10460 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4653 label Biography information for Stephen Morgan

1221575

	registered interest
	date	07/07/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much Government funding was allocated to biomedical research into myalgic encephalomyelitis in the financial years (a) 2017-18, (b) 2018-19 and (c) 2019-20.
	tabling member constituency	Mole Valley
	tabling member printed	Sir Paul Beresford
	uin	70282
	answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>The following table shows how much Government funding was allocated to biomedical research into myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS) for financial years 2017-18, 2018-19 and 2019-20.</p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2017-18</p></td><td><p>226,470</p></td></tr><tr><td><p>2018-19</p></td><td><p>396,467</p></td></tr><tr><td><p>2019-20</p></td><td><p>443,719</p></td></tr></tbody></table><p> </p><p>In addition to the funding set out above, the National Institute for Health Research, funded through the Department, and the Medical Research Council have recently announced a £3.2 million award to fund research into potential genetic connections to ME/CFS. The project will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or increase the risk of developing the condition.</p><p> </p><p> </p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 23/07/2020 17:08:44 answering member 4527 label Biography information for Helen Whately
	tabling member	103 label Biography information for Sir Paul Beresford

1273898

	registered interest
	date	06/01/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase biomedical research on the causes and treatment of myalgic encephalomyelitis in the UK.
	tabling member constituency	Bristol North West
	tabling member printed	Darren Jones
	uin	134061
	answer	answer is ministerial correction date of answer 26/01/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). In 2020, the NIHR and the Medical Research Council, through UK Research and Innovation, came together to fund the world’s largest genome-wide association study of myalgic encephalomyelitis (ME), sometimes referred to as Chronic Fatigue Syndrome (CFS). This £3.2 million study, ‘DecodeME’, will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. DecodeME is a partnership between biomedical scientists at the University of Edinburgh and ME/CFS charities and people with lived experience of ME/CFS. It is hoped that the outcomes of this study will aid the development of diagnostic tests and targeted treatments.</p><p> </p> answering member constituency Charnwood answering member printed Edward Argar question first answered 26/01/2021 09:48:36 answering member 4362 label Biography information for Edward Argar
	tabling member	4621 label Biography information for Darren Jones