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1088440

	registered interest
	date	13/03/2019
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, what assessment he has made of the potential merits of ring-fencing Medical Research Council funds for biomedical research into ME in order to ensure that overall research funding for ME is proportional to that spent on research into similarly prevalent health conditions.
	tabling member constituency	North West Norfolk
	tabling member printed	Sir Henry Bellingham
	uin	231931
	answer	answer is ministerial correction date of answer 20/03/2019 answer text <p>The Medical Research Council (MRC) is part of the BEIS partner organisation, UK Research and Innovation. The MRC supports research relating to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in response to high-quality proposals from the research community.</p><p> </p><p>The MRC does not generally ring-fence funding for specific conditions, however CFS/ME is an identified priority area for the MRC. Proposals are particularly encouraged in areas that explore the underpinning mechanisms of CFS/ME (including immune dysregulation), pain, improved sub-phenotyping and stratification of CFS/ME disease, and mechanisms of CFS/ME in children.</p><p> </p><p>All proposals are subject to peer review and judged in open competition, with awards being made according to their scientific quality and importance to human health.</p><p> </p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 20/03/2019 11:25:25 answering member 4021 label Biography information for Chris Skidmore
	tabling member	1441 label Biography information for Lord Bellingham

1091289

	registered interest
	date	19/03/2019
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, what assessment he has made of the potential merits of ring-fencing Medical Research Council funds for biomedical research on myalgic encephalomyelitis (ME) in order to ensure that overall research funding for ME is proportional to that spent on research into similarly prevalent health conditions.
	tabling member constituency	Loughborough
	tabling member printed	Nicky Morgan
	uin	234154
	answer	answer is ministerial correction date of answer 28/03/2019 answer text <p>I refer my rt. hon. Friend to the answer I gave to my hon. Friend the Member for North West Norfolk on 20th March 2019 to Question <a href="https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-03-13/231931/" target="_blank">231931</a>.</p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 28/03/2019 16:59:08 answering member 4021 label Biography information for Chris Skidmore
	tabling member	4027 label Biography information for Baroness Morgan of Cotes

1109504

	registered interest
	date	03/04/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he make an assessment of the potential merits of ring-fencing funding for high-quality ME research as the Government has done for dementia and brain cancer.
	tabling member constituency	Derby North
	tabling member printed	Chris Williamson
	uin	240545
	answer	answer is ministerial correction date of answer 08/04/2019 answer text <p>The Department for Health and Social Care funds research through the National Institute for Health Research (NIHR). The Government also supports research relating to myalgic encephalomyelitis (ME) through the Medical Research Council (MRC), part of the Department for Business, Environment and Industrial Strategy partner organisation, UK Research and Innovation. Both the NIHR and the MRC welcome funding applications for research into any aspect of human health, including ME; it is not usual practice to ring-fence funds for particular topics or conditions. Applications to the NIHR and the MRC are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p><p> </p><p>Research into chronic fatigue syndrome CFS/ME is an area of strategic importance for the MRC and the only medical condition for which the MRC has a dedicated Highlight Notice which identifies areas where proposals are particularly encouraged. These include proposals which have a focus on the underpinning mechanisms of ME/CFS, with priority areas including immune dysregulation; pain; improved sub-phenotyping and stratification of ME/CFS; and mechanisms of ME/CFS in children and young people.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 08/04/2019 15:29:48 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	3976 label Biography information for Chris Williamson

1174940

	registered interest
	date	30/01/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much money from the public purse has been allocated to funding research on myalgic encephalomyelitis since 2010.
	tabling member constituency	Portsmouth South
	tabling member printed	Mr Stephen Morgan
	uin	10460
	answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10461 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4653 label Biography information for Stephen Morgan

1174944

	registered interest
	date	30/01/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he will make an assessment of the effect of recent changes in the level of funding for research into myalgic encephalomyelitis on clinical understanding of that condition.
	tabling member constituency	Portsmouth South
	tabling member printed	Mr Stephen Morgan
	uin	10461
	answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10460 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4653 label Biography information for Stephen Morgan

1221575

	registered interest
	date	07/07/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much Government funding was allocated to biomedical research into myalgic encephalomyelitis in the financial years (a) 2017-18, (b) 2018-19 and (c) 2019-20.
	tabling member constituency	Mole Valley
	tabling member printed	Sir Paul Beresford
	uin	70282
	answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>The following table shows how much Government funding was allocated to biomedical research into myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS) for financial years 2017-18, 2018-19 and 2019-20.</p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2017-18</p></td><td><p>226,470</p></td></tr><tr><td><p>2018-19</p></td><td><p>396,467</p></td></tr><tr><td><p>2019-20</p></td><td><p>443,719</p></td></tr></tbody></table><p> </p><p>In addition to the funding set out above, the National Institute for Health Research, funded through the Department, and the Medical Research Council have recently announced a £3.2 million award to fund research into potential genetic connections to ME/CFS. The project will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or increase the risk of developing the condition.</p><p> </p><p> </p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 23/07/2020 17:08:44 answering member 4527 label Biography information for Helen Whately
	tabling member	103 label Biography information for Sir Paul Beresford

1273898

	registered interest
	date	06/01/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase biomedical research on the causes and treatment of myalgic encephalomyelitis in the UK.
	tabling member constituency	Bristol North West
	tabling member printed	Darren Jones
	uin	134061
	answer	answer is ministerial correction date of answer 26/01/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). In 2020, the NIHR and the Medical Research Council, through UK Research and Innovation, came together to fund the world’s largest genome-wide association study of myalgic encephalomyelitis (ME), sometimes referred to as Chronic Fatigue Syndrome (CFS). This £3.2 million study, ‘DecodeME’, will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. DecodeME is a partnership between biomedical scientists at the University of Edinburgh and ME/CFS charities and people with lived experience of ME/CFS. It is hoped that the outcomes of this study will aid the development of diagnostic tests and targeted treatments.</p><p> </p> answering member constituency Charnwood answering member printed Edward Argar question first answered 26/01/2021 09:48:36 answering member 4362 label Biography information for Edward Argar
	tabling member	4621 label Biography information for Darren Jones

1349461

	registered interest
	date	22/07/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much Government funding has been provided to ME research in each of the last three years.
	tabling member constituency	Nottingham North
	tabling member printed	Alex Norris
	uin	38397
	answer	answer is ministerial correction date of answer 06/09/2021 answer text <p>The following table shows the funding for research into myalgic encephalomyelitis through the National Institute for Health Research and UK Research and Innovation in the last three years.</p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2018-19</p></td><td><p>£862,212</p></td></tr><tr><td><p>2019-20</p></td><td><p>£691,516</p></td></tr><tr><td><p>2020-21</p></td><td><p>£907,848</p></td></tr></tbody></table> answering member constituency Charnwood answering member printed Edward Argar question first answered 06/09/2021 11:40:51 answering member 4362 label Biography information for Edward Argar
	tabling member	4641 label Biography information for Alex Norris

1351181

	registered interest
	date	18/08/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he has made a recent assessment of the potential merits of increasing funding for research into ME and Chronic Fatigue Syndrome.
	tabling member constituency	Lewisham East
	tabling member printed	Janet Daby
	uin	41247
	answer	answer is ministerial correction date of answer 06/09/2021 answer text <p>The Government invests in health research through the National Institute for Health Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. The NIHR and MRC both welcome high-quality applications for research into all aspects of myalgic encephalomyelitis (ME), otherwise known as chronic fatigue syndrome (CFS). No assessment has been made of the merits of increasing funding for research into ME/CFS. While it is not usual practice for the NIHR and MRC to ring-fence funds for particular topics or conditions, the MRC has had a cross-board highlight notice on CFS/ME open since 2003.</p> answering member constituency Charnwood answering member printed Edward Argar question first answered 06/09/2021 11:52:14 answering member 4362 label Biography information for Edward Argar
	tabling member	4698 label Biography information for Janet Daby

1382722

	registered interest
	date	26/11/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he has plans to fund research into mitochondria cells and the effect upon them in relation to sufferers of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome; and if he will make a statement.
	tabling member constituency	Arfon
	tabling member printed	Hywel Williams
	uin	82269
	answer	answer is ministerial correction date of answer 01/12/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). However, it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. We will continue to work with stakeholders to consider how best to support continued research into ME/CFS.</p> answering member constituency Lewes answering member printed Maria Caulfield question first answered 01/12/2021 16:41:45 answering member 4492 label Biography information for Maria Caulfield
	tabling member	1397 label Biography information for Hywel Williams