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1046874

	registered interest
	date	23/01/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent funding has been made available for research into myalgic encephalomyelitis.
	tabling member constituency	Bath
	tabling member printed	Wera Hobhouse
	uin	211844
	answer	answer is ministerial correction date of answer 31/01/2019 answer text <p>The National Institute for Health Research (NIHR), on behalf of the Department, funded £1,495,363 of programme research on myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), over the last three financial years (up to 2017/18). Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 31/01/2019 17:21:07 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4602 label Biography information for Wera Hobhouse

1050033

	registered interest
	date	28/01/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans he has to support biomedical research into the diagnosis and treatment of ME.
	tabling member constituency	Harlow
	tabling member printed	Robert Halfon
	uin	213339
	answer	answer is ministerial correction date of answer 04/02/2019 answer text <p>The National Institute for Health Research welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 04/02/2019 17:24:39 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	3985 label Biography information for Robert Halfon

1055255

	registered interest
	date	05/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans his Department has to allocate additional funding to support biomedical research into the diagnosis and treatment of myalgic encephalomyelitis.
	tabling member constituency	Carshalton and Wallington
	tabling member printed	Tom Brake
	uin	216906
	answer	answer is ministerial correction date of answer 13/02/2019 answer text <p>The National Institute for Health Research welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 13/02/2019 17:11:17 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	151 label Biography information for Tom Brake

1061134

	registered interest
	date	14/02/2019
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, how many grant applications have been made to the Medical Research Council for ME/CFS related research since 2010; how many of those applications have been awarded funding; and if he will make a statement.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	221619
	answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>Since 2009/10, the Medical Research Council (MRC) has received 32 research proposals relating to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), seven of which have been funded.</p><p> </p><p>The MRC supports research in response to proposals from the research community. High quality applications on any aspect of human health are always welcomed and awards are made according to their scientific quality and importance to human health.</p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 22/02/2019 13:02:02 answering member 4021 label Biography information for Chris Skidmore
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1061135

	registered interest
	date	14/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for (a) biopsychological and (b) biopsychosocial research in each year since 2010; and if he will make a statement.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	221620
	answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221621 question first answered 22/02/2019 08:01:04 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1061136

	registered interest
	date	14/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for biomedical research in each year since 2010; and if he will make a statement.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	221621
	answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221620 question first answered 22/02/2019 08:01:05 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

541266

	registered interest
	date	20/07/2016
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, what steps he has taken to encourage research into myalgic encephalomyelitis.
	tabling member constituency	Cheltenham
	tabling member printed	Alex Chalk
	uin	43719
	answer	answer is ministerial correction date of answer 13/09/2016 answer text <p>The Government supports research into Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) through the Medical Research Council (MRC), which receives funding from the Department for Business, Energy and Industrial Strategy; and through the National Institute for Health Research (NIHR), which is funded by the Department of Health.</p><p>Together the MRC and the NIHR welcome high quality applications for research into all aspects of CFS/ME which would include studies to investigate the biological causes of the condition, improve our understanding of it and to evaluate treatments.</p><p>CFS/ME research is a current MRC priority area and has funded such research to the tune of £2.1 million. Research proposals are particularly encouraged that address the mechanisms underlying chronic changes related to CFS/ME and which aim to increase research capacity by bringing new researchers into the field, building partnerships and supporting multidisciplinary teams to tackle research challenges.</p> answering member constituency Orpington answering member printed Joseph Johnson question first answered 13/09/2016 15:12:51 answering member 4039 label Biography information for Lord Johnson of Marylebone
	tabling member	4481 label Biography information for Alex Chalk

642415

	registered interest
	date	22/11/2016
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, if he will take steps to identify those responsible for the Medical Research Council's policies towards ME research over the last decade; and if he will seek those people's removal from positions of influence over future of ME research.
	tabling member constituency	Luton North
	tabling member printed	Kelvin Hopkins
	uin	54353
	answer	answer is ministerial correction date of answer 30/11/2016 answer text <p>Management of individual staff within the Medical Research Council is a matter for the MRC as the legal employer.</p> answering member constituency Orpington answering member printed Joseph Johnson question first answered 30/11/2016 16:41:44 answering member 4039 label Biography information for Lord Johnson of Marylebone
	tabling member	2 label Biography information for Kelvin Hopkins

642427

	registered interest
	date	22/11/2016
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, if he will request that the Medical Research Council conducts an inquiry into the management of the PACE trial to ascertain whether any fraudulent activity has occurred.
	tabling member constituency	Luton North
	tabling member printed	Kelvin Hopkins
	uin	54269
	answer	answer is ministerial correction date of answer 28/11/2016 answer text <p>Queen Mary University of London, as the research organisation which held the award, is responsible for the management of the study, including the investigation of any concerns relating to research conduct and research integrity.</p><p>Whilst the Medical Research Council (MRC) was one of the funders of the PACE trial, the responsibility for the management of the trial rested with the host research institution, Queen Mary University of London (QMUL). This responsibility included oversight of the trial and the investigation of any well-founded allegations of misconduct that are brought to its attention. As part of this oversight, in accordance with MRC guidance on best practice, a trial steering committee was set up and supported by various sub-groups, including a data monitoring committee. The MRC was an observer on the trial steering committee.</p><p>Anyone wishing to raise concerns to over the conduct of individual researchers or research programmes is advised to contact QMUL in the first instance to allow the University to investigate appropriately. It would be inappropriate for BEIS to intervene in such investigations or to impose sanctions against researchers.</p> answering member constituency Orpington answering member printed Joseph Johnson grouped question UIN 54266 question first answered 28/11/2016 10:06:49 answering member 4039 label Biography information for Lord Johnson of Marylebone previous answer version 22830 answering member constituency Orpington answering member printed Joseph Johnson answering member 4039 label Biography information for Lord Johnson of Marylebone
	tabling member	2 label Biography information for Kelvin Hopkins

642428

	registered interest
	date	22/11/2016
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, if he will prevent the PACE trial researchers from being given further public research funding until an inquiry into possible fraudulent activity into the PACE trial has been conducted.
	tabling member constituency	Luton North
	tabling member printed	Kelvin Hopkins
	uin	54266
	answer	answer is ministerial correction date of answer 28/11/2016 answer text <p>Queen Mary University of London, as the research organisation which held the award, is responsible for the management of the study, including the investigation of any concerns relating to research conduct and research integrity.</p><p>Whilst the Medical Research Council (MRC) was one of the funders of the PACE trial, the responsibility for the management of the trial rested with the host research institution, Queen Mary University of London (QMUL). This responsibility included oversight of the trial and the investigation of any well-founded allegations of misconduct that are brought to its attention. As part of this oversight, in accordance with MRC guidance on best practice, a trial steering committee was set up and supported by various sub-groups, including a data monitoring committee. The MRC was an observer on the trial steering committee.</p><p>Anyone wishing to raise concerns to over the conduct of individual researchers or research programmes is advised to contact QMUL in the first instance to allow the University to investigate appropriately. It would be inappropriate for BEIS to intervene in such investigations or to impose sanctions against researchers.</p> answering member constituency Orpington answering member printed Joseph Johnson grouped question UIN 54269 question first answered 28/11/2016 10:06:49 answering member 4039 label Biography information for Lord Johnson of Marylebone previous answer version 22829 answering member constituency Orpington answering member printed Joseph Johnson answering member 4039 label Biography information for Lord Johnson of Marylebone
	tabling member	2 label Biography information for Kelvin Hopkins