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1673062

	registered interest
	date	27/11/2023
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what assessment she has made of the potential merits of increasing public funding for research into Myalgic Encephalomyelitis.
	tabling member constituency	Hayes and Harlington
	tabling member printed	John McDonnell
	uin	3686
	answer	answer is ministerial correction date of answer 05/12/2023 answer text <p>Since 2012, UK Research and Innovation (UKRI)’s Medical Research Council (MRC) has awarded £6.2 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This includes <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.decodeme.org.uk%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473322916%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=sd9a0fW9lnkOcouAjOU%2F1vW4HZ%2FmvMMqktjr0ZJ5reo%3D&amp;reserved=0" target="_blank">DecodeME</a>, a significant strategic initiative co-funded by the National Institute of Health and Care Research in 2020, which aims to find genetic causes of ME/CFS in order to better understand the disease and ultimately to find treatments.</p><p> </p><p>The Government works with the ME/CFS Priority Setting Partnership to identify research priorities in this area and MRC has an open <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.ukri.org%2Fopportunity%2Fresearching-me-cfs-highlight-notice%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473331757%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=5DhrpVGI9XBC4oxQOLFvoGnK5h%2FBLfTcaj7j%2F1DwpQg%3D&amp;reserved=0" target="_blank">highlight notice</a> to encourage ME/CFS research.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 3687 question first answered 05/12/2023 16:09:46 answering member 4874 label Biography information for Andrew Griffith
	tabling member	178 label Biography information for John McDonnell

1673063

	registered interest
	date	27/11/2023
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to help facilitate research into the (a) causes and (b) treatment of Myalgic Encephalomyelitis.
	tabling member constituency	Hayes and Harlington
	tabling member printed	John McDonnell
	uin	3687
	answer	answer is ministerial correction date of answer 05/12/2023 answer text <p>Since 2012, UK Research and Innovation (UKRI)’s Medical Research Council (MRC) has awarded £6.2 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This includes <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.decodeme.org.uk%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473322916%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=sd9a0fW9lnkOcouAjOU%2F1vW4HZ%2FmvMMqktjr0ZJ5reo%3D&amp;reserved=0" target="_blank">DecodeME</a>, a significant strategic initiative co-funded by the National Institute of Health and Care Research in 2020, which aims to find genetic causes of ME/CFS in order to better understand the disease and ultimately to find treatments.</p><p> </p><p>The Government works with the ME/CFS Priority Setting Partnership to identify research priorities in this area and MRC has an open <a href="https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.ukri.org%2Fopportunity%2Fresearching-me-cfs-highlight-notice%2F&amp;data=05%7C01%7Cinformation%40mrc.ukri.org%7Cad2552f7ab2b4ac42f6908dbf0ef755d%7C8bb7e08edaa44a8e927efca38db04b7e%7C0%7C0%7C638368683473331757%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&amp;sdata=5DhrpVGI9XBC4oxQOLFvoGnK5h%2FBLfTcaj7j%2F1DwpQg%3D&amp;reserved=0" target="_blank">highlight notice</a> to encourage ME/CFS research.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 3686 question first answered 05/12/2023 16:09:46 answering member 4874 label Biography information for Andrew Griffith
	tabling member	178 label Biography information for John McDonnell

1693258

	registered interest
	date	04/03/2024
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what research the Medical Research Council is funding on the (a) causes and (b) treatment of Myalgic Encephalomyelitis.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	16633
	answer	answer is ministerial correction date of answer 12/03/2024 answer text <p>Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.</p><p> </p><p>We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 16634 16635 question first answered 12/03/2024 10:59:35 answering member 4874 label Biography information for Andrew Griffith
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1693259

	registered interest
	date	04/03/2024
	answering body	Department for Science, Innovation and Technology
	answering dept id	216
	answering dept short name	Science, Innovation and Technology
	answering dept sort name	Science, Innovation and Technology
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to support research into (a) understanding, (b) treating and (c) curing Myalgic Encephalomyelitis.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	16634
	answer	answer is ministerial correction date of answer 12/03/2024 answer text <p>Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.</p><p> </p><p>We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.</p> answering member constituency Arundel and South Downs answering member printed Andrew Griffith grouped question UIN 16633 16635 question first answered 12/03/2024 10:59:35 answering member 4874 label Biography information for Andrew Griffith
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1667694

	registered interest
	date	07/11/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that funding for biomedical research into myalgic encephalomyelitis (ME) is adequate; and whether he plans to take steps to establish a centre of excellence on ME to (a) promote understanding of and (b) develop effective treatments for that illness.
	tabling member constituency	Cambridge
	tabling member printed	Daniel Zeichner
	uin	236
	answer	answer is ministerial correction date of answer 17/11/2023 answer text <p>The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR has provided around £4.4 million of programme funding for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since 2011.</p><p>Through the NIHR, the Department has co-funded, with the Medical Research Council (MRC) a £3.2 million study called DecodeME into the genetic underpinning of ME/CFS. The study will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. This study aims to increase our understanding of the disease and therefore contribute to the research base on diagnostic tests and targeted treatments for ME/CFS.</p><p>The Department and the NIHR has no specific plans to establish a centre of excellence for ME research. The NIHR welcomes funding applications for research into any aspect of human health, including biomedical research for ME/CFS. These applications are subject to peer review and judged in open competition, with awards being made based on the importance of the topic to patients and health and care services, value for money and scientific quality. In all disease areas, the amount of NIHR funding depends on the volume and quality of scientific activity.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 17/11/2023 12:25:59 answering member 4044 label Biography information for Andrew Stephenson
	tabling member	4382 label Biography information for Daniel Zeichner

1693256

	registered interest
	date	04/03/2024
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps her Department is taking to fund research to (a) tackle the causes of and (b) treat Myalgic Encephalomyelitis.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	16631
	answer	answer is ministerial correction date of answer 08/03/2024 answer text <p>The Department commissions research through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including on the causes and treatment of myalgic encephalomyelitis (ME).</p><p>In the last five years, the NIHR has allocated approximately £3.44 million to support nine research projects on ME and chronic fatigue syndrome. The NIHR is also co-funding, with the Medical Research Council, a £3.2 million study called DecodeME, which is the world’s largest genetic study of the disease.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 08/03/2024 14:48:53 answering member 4044 label Biography information for Andrew Stephenson
	tabling member	1521 label Biography information for Mrs Sharon Hodgson

1046874

	registered interest
	date	23/01/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent funding has been made available for research into myalgic encephalomyelitis.
	tabling member constituency	Bath
	tabling member printed	Wera Hobhouse
	uin	211844
	answer	answer is ministerial correction date of answer 31/01/2019 answer text <p>The National Institute for Health Research (NIHR), on behalf of the Department, funded £1,495,363 of programme research on myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), over the last three financial years (up to 2017/18). Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 31/01/2019 17:21:07 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4602 label Biography information for Wera Hobhouse

1050033

	registered interest
	date	28/01/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans he has to support biomedical research into the diagnosis and treatment of ME.
	tabling member constituency	Harlow
	tabling member printed	Robert Halfon
	uin	213339
	answer	answer is ministerial correction date of answer 04/02/2019 answer text <p>The National Institute for Health Research welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 04/02/2019 17:24:39 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	3985 label Biography information for Robert Halfon

1055255

	registered interest
	date	05/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans his Department has to allocate additional funding to support biomedical research into the diagnosis and treatment of myalgic encephalomyelitis.
	tabling member constituency	Carshalton and Wallington
	tabling member printed	Tom Brake
	uin	216906
	answer	answer is ministerial correction date of answer 13/02/2019 answer text <p>The National Institute for Health Research welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 13/02/2019 17:11:17 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	151 label Biography information for Tom Brake

1061135

	registered interest
	date	14/02/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for (a) biopsychological and (b) biopsychosocial research in each year since 2010; and if he will make a statement.
	tabling member constituency	Washington and Sunderland West
	tabling member printed	Mrs Sharon Hodgson
	uin	221620
	answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221621 question first answered 22/02/2019 08:01:04 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	1521 label Biography information for Mrs Sharon Hodgson