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800571

	registered interest
	date	04/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Neuromuscular Disorders
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what assessment he has made of the (a) extent and (b) effect on patient care of variation in specialist services for multiple sclerosis and Parkinson's among clinical commissioning groups in England.
	tabling member constituency	York Outer
	tabling member printed	Julian Sturdy
	uin	117192
	answer	answer is ministerial correction date of answer 12/12/2017 answer text <p>We know that variation exists between clinical commissioning groups (CCGs) in the provision of care for neurological conditions, such as Parkinson’s disease and multiple sclerosis. Whilst it is right that CCGs have autonomy to shape services for local populations, there is a range of work ongoing at a national level to identify unwarranted variation in order to drive improvement, including:</p><p> </p><p>- Through the RightCare programme, which was rolled out to every CCG in 2016/17, NHS England provides practical support to commissioners to tackle unwarranted variation and identify improvements and savings, including for neurological services;</p><p>- Public Health England’s Neurology intelligence network collates and interprets data on adult neurological conditions to provide intelligence for the National Health Service, policy makers, and clinicians; and</p><p>- The Getting it Right First Time programme, supported by NHS Improvement, expanded earlier in 2017 to include neurology and will soon provide insight to demonstrate the value of better neurological services both in hospitals and in the community.</p><p> </p><p>NHS England will continue to work with the Neurological Alliance (an umbrella organisation for neurological condition charities) to support the new national Neurology Advisory Group (NAG), led by consultant neurologist Professor Adrian Williams. The NAG brings together system partners, professional bodies stakeholders to align work to improve neurological care, and has working to understand how best to utilise new and emerging data in services and outcomes. More information on national initiatives to reduce unwarranted variation and drive improvement can be found at the following links:</p><p> </p><p><a href="http://www.england.nhs.uk/rightcare/" target="_blank">www.england.nhs.uk/rightcare/</a></p><p> </p><p><a href="http://www.gov.uk/guidance/neurology-data-and-analysis-a-guide-for-health-professionals" target="_blank">www.gov.uk/guidance/neurology-data-and-analysis-a-guide-for-health-professionals</a></p><p> </p><p><a href="http://gettingitrightfirsttime.co.uk/" target="_blank">gettingitrightfirsttime.co.uk/</a></p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 117193 question first answered 12/12/2017 17:07:27 answering member 4067 label Biography information for Steve Brine
	tabling member	4079 label Biography information for Julian Sturdy

800572

	registered interest
	date	04/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Neuromuscular Disorders
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what assessment his Department has made of the potential for improved specialist services for multiple sclerosis and Parkinson's delivering significant savings for the NHS; and if he will make a statement.
	tabling member constituency	York Outer
	tabling member printed	Julian Sturdy
	uin	117193
	answer	answer is ministerial correction date of answer 12/12/2017 answer text <p>We know that variation exists between clinical commissioning groups (CCGs) in the provision of care for neurological conditions, such as Parkinson’s disease and multiple sclerosis. Whilst it is right that CCGs have autonomy to shape services for local populations, there is a range of work ongoing at a national level to identify unwarranted variation in order to drive improvement, including:</p><p> </p><p>- Through the RightCare programme, which was rolled out to every CCG in 2016/17, NHS England provides practical support to commissioners to tackle unwarranted variation and identify improvements and savings, including for neurological services;</p><p>- Public Health England’s Neurology intelligence network collates and interprets data on adult neurological conditions to provide intelligence for the National Health Service, policy makers, and clinicians; and</p><p>- The Getting it Right First Time programme, supported by NHS Improvement, expanded earlier in 2017 to include neurology and will soon provide insight to demonstrate the value of better neurological services both in hospitals and in the community.</p><p> </p><p>NHS England will continue to work with the Neurological Alliance (an umbrella organisation for neurological condition charities) to support the new national Neurology Advisory Group (NAG), led by consultant neurologist Professor Adrian Williams. The NAG brings together system partners, professional bodies stakeholders to align work to improve neurological care, and has working to understand how best to utilise new and emerging data in services and outcomes. More information on national initiatives to reduce unwarranted variation and drive improvement can be found at the following links:</p><p> </p><p><a href="http://www.england.nhs.uk/rightcare/" target="_blank">www.england.nhs.uk/rightcare/</a></p><p> </p><p><a href="http://www.gov.uk/guidance/neurology-data-and-analysis-a-guide-for-health-professionals" target="_blank">www.gov.uk/guidance/neurology-data-and-analysis-a-guide-for-health-professionals</a></p><p> </p><p><a href="http://gettingitrightfirsttime.co.uk/" target="_blank">gettingitrightfirsttime.co.uk/</a></p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 117192 question first answered 12/12/2017 17:07:27 answering member 4067 label Biography information for Steve Brine
	tabling member	4079 label Biography information for Julian Sturdy

758182

	registered interest
	date	06/09/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Neuromuscular Disorders
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what steps he is taking to increase the number of neuromuscular care advisors for people with muscle-wasting conditions.
	tabling member constituency	Strangford
	tabling member printed	Jim Shannon
	uin	9105
	answer	answer is ministerial correction date of answer 14/09/2017 answer text <p>NHS England is responsible for commissioning specialised neurological services, including some services for patients with neuromuscular disorders. NHS England has published a service specification for neurological care that includes an exemplar service specification for neuromuscular conditions which sets out what providers must have in place to offer evidence-based, safe and effective services. The service specification for neurological care can be found at the following link:</p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p>NHS providers, working with local area teams, may establish patient access to neuromuscular care advisers if they consider it would benefit service provision and such decisions are a local matter.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 14/09/2017 14:26:57 answering member 4067 label Biography information for Steve Brine
	tabling member	4131 label Biography information for Jim Shannon

778195

	registered interest
	date	26/10/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Neuromuscular Disorders
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what discussions his Department has had with Sheffield Teaching Hospitals NHS Foundation Trust on its continuing to provide neuromuscular care advisor support.
	tabling member constituency	Sheffield, Brightside and Hillsborough
	tabling member printed	Gill Furniss
	uin	109848
	answer	answer is ministerial correction date of answer 31/10/2017 answer text <p>The Department has not had any discussions with Sheffield Teaching Hospitals NHS Foundation Trust on this issue.</p><p> </p><p>However, NHS England has stated that there are no plans to change the provision of neuromuscular care advisor support at the Trust and Sheffield Clinical Commissioning Group has advised that they are not aware of any changes to the provision of neuromuscular care advisor support in the area.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 31/10/2017 16:28:12 answering member 4067 label Biography information for Steve Brine
	tabling member	4571 label Biography information for Gill Furniss

732562

	registered interest
	date	26/06/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Neuromuscular Disorders
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what proposals he has made to ensure that patients do not experience delays in accessing emerging treatments for muscle-wasting conditions after the UK leaves the EU.
	tabling member constituency	Linlithgow and East Falkirk
	tabling member printed	Martyn Day
	uin	1192
	answer	answer is ministerial correction date of answer 29/06/2017 answer text <p>The Government wants patients to access cost-effective innovative medicines and technologies, which may include emerging treatments for muscle-wasting conditions, at a price that the National Health Service can afford. That is why we commissioned the Accelerated Access Review, which reported in October last year. We are considering the review’s recommendations and will respond in due course.</p><p> </p><p>As part of the exit negotiations the Government will discuss with the European Union and Member States how best to continue cooperation on medicine research and development and regulation in the best interests of both the United Kingdom and the EU. It would not be appropriate to pre-judge the outcome of the negotiations, but we are clear that whatever happens NHS patients should have access to cost-effective life-changing treatments as soon as possible.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 29/06/2017 11:03:21 answering member 4067 label Biography information for Steve Brine
	tabling member	4488 label Biography information for Martyn Day

758768

	registered interest
	date	07/09/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Neuromuscular Disorders
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what steps he is taking to increase the number of neuromuscular care advisors for people with muscle-wasting conditions.
	tabling member constituency	Falkirk
	tabling member printed	John McNally
	uin	9390
	answer	answer is ministerial correction date of answer 12/09/2017 answer text <p>NHS England is responsible for commissioning specialised neurological services, including some services for patients with neuromuscular disorders. NHS England has published a service specification for neurological care that includes an exemplar service specification for neuromuscular conditions which sets out what providers must have in place to offer evidence-based, safe and effective services. The service specification for neurological care can be found at the following link:</p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p>NHS providers, working with local area teams, may establish patient access to neuromuscular care advisers if they consider it would benefit service provision and such decisions are a local matter.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/09/2017 16:35:04 answering member 4067 label Biography information for Steve Brine
	tabling member	4424 label Biography information for John McNally