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177189
unstar this property registered interest false remove filter
star this property date less than 2015-02-02more like thismore than 2015-02-02
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what steps his Department has taken to help early diagnosis of very long-chain acyl-CoA dehydrogenase deficiency. more like this
star this property tabling member constituency Harlow more like this
star this property tabling member printed
Robert Halfon more like this
star this property uin 222853 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-02-09more like thismore than 2015-02-09
star this property answer text <p>The UK National Screening Committee (UK NSC) advises Ministers and the National Health Service in all four countries about all aspects of screening policy and supports implementation.</p><p> </p><p> </p><p> </p><p>The UK NSC is currently reviewing newborn screening for very long chain acyl CoA dehydrogenase deficiency (VLCADD) against its internationally recognised criteria. A public consultation on the screening review opened on 21 November 2014 and will close on 23 February 2015. A copy of the consultation is available at:</p><p> </p><p> </p><p> </p><p><a href="http://www.screening.nhs.uk/fattyacidoxidation" target="_blank">http://www.screening.nhs.uk/fattyacidoxidation</a></p><p> </p><p> </p><p> </p><p>Improving education and awareness of rare diseases across the healthcare professions, including VLCADD, is a commitment in the UK Strategy for Rare Diseases. The Department continues to work closely with its delivery partners to implement the Strategy.</p><p> </p> more like this
star this property answering member constituency Central Suffolk and North Ipswich more like this
star this property answering member printed Dr Daniel Poulter remove filter
star this property question first answered
less than 2015-02-09T15:58:41.897Zmore like thismore than 2015-02-09T15:58:41.897Z
star this property answering member
3932
unstar this property label Biography information for Dr Dan Poulter more like this
star this property tabling member
3985
unstar this property label Biography information for Robert Halfon more like this
223632
unstar this property registered interest false remove filter
star this property date less than 2015-02-25more like thismore than 2015-02-25
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what assessment his Department has made of the health effects of consanguineous marriages; and what steps he is taking to reduce them. more like this
star this property tabling member constituency Shipley more like this
star this property tabling member printed
Philip Davies more like this
star this property uin 225464 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-03-03more like thismore than 2015-03-03
star this property answer text <p>The NHS Born in Bradford study found that although most babies born to a couple who are related do not have a genetic problem, consanguineous marriage can increase the risk of birth defect from 3% to 6%. Further information is available on the Born in Bradford website at:</p><p> </p><p> </p><p> </p><p><a href="http://www.borninbradford.nhs.uk/parentstudies/130/StudyDetails/studies-into-the-impact-of-congenital-anomalies-on-health/" target="_blank">http://www.borninbradford.nhs.uk/parentstudies/130/StudyDetails/studies-into-the-impact-of-congenital-anomalies-on-health/</a></p><p> </p><p> </p><p> </p><p>It is important that antenatal, paediatric and genetic services work with communities to improve awareness of the risk of consanguineous marriage. Local commissioners are best placed to determine whether action is needed in their area. To support clinical commissioning groups (CCGs), NHS England published in February 2014, <em>Our Ambition to Reduce Premature Mortality: A resource to support commissioners in setting a level of ambition</em>. In line with the document, CCGs may wish to consider investment in community-based health champions and communication campaigns aimed at raising awareness of the implications of genetic inheritance alongside community based access to genetic counselling and family planning services and enhanced diagnostic services.</p><p> </p><p> </p><p> </p><p>A copy of the resource document is available on the NHS England website at:</p><p> </p><p> </p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2014/03/mort-res-22-5.pdf" target="_blank">http://www.england.nhs.uk/wp-content/uploads/2014/03/mort-res-22-5.pdf</a></p><p> </p>
star this property answering member constituency Central Suffolk and North Ipswich more like this
star this property answering member printed Dr Daniel Poulter remove filter
star this property question first answered
less than 2015-03-03T10:37:42.26Zmore like thismore than 2015-03-03T10:37:42.26Z
star this property answering member
3932
unstar this property label Biography information for Dr Dan Poulter more like this
star this property tabling member
1565
unstar this property label Biography information for Philip Davies more like this
224726
unstar this property registered interest false remove filter
star this property date less than 2015-03-03more like thismore than 2015-03-03
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, pursuant to the Answer of 3 March 2015 to Question 225464, if he will estimate the annual cost to the NHS of the implications of genetic inheritance birth defects. more like this
star this property tabling member constituency Shipley more like this
star this property tabling member printed
Philip Davies more like this
star this property uin 226013 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-03-10more like thismore than 2015-03-10
star this property answer text <p>There has been no assessment made of the annual cost to the National Health Service of the implications of genetic inheritance birth defects.</p><p> </p><p><strong> </strong></p><p> </p> more like this
star this property answering member constituency Central Suffolk and North Ipswich more like this
star this property answering member printed Dr Daniel Poulter remove filter
star this property question first answered
less than 2015-03-10T17:23:17.223Zmore like thismore than 2015-03-10T17:23:17.223Z
star this property answering member
3932
unstar this property label Biography information for Dr Dan Poulter more like this
star this property tabling member
1565
unstar this property label Biography information for Philip Davies more like this