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179004
star this property registered interest false remove filter
star this property date less than 2015-02-10more like thismore than 2015-02-10
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, with reference to Part 5 (a) (ii) of the Mitochndrial Donation Regulations 2015, how the Human Fertilisation and Embryology Authority plans to define a "significant risk" of having or developing serious mitochondrial disease. more like this
star this property tabling member constituency Stoke-on-Trent South more like this
star this property tabling member printed
Robert Flello more like this
star this property uin 224080 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-02-23more like thismore than 2015-02-23
star this property answer text <p>The Human Fertilisation and Embryology Authority has advised that if Parliament passes the Human Fertilisation and Embryology (Mitochondrial Donation) Regulations 2015, it will need to design a regulatory process of which the consideration of “significant risk” is a part. In designing that process it will take into account, where relevant, the existing regulatory process for embryo testing (preimplantation genetic diagnosis).</p><p> </p> more like this
star this property answering member constituency Battersea remove filter
star this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2015-02-23T16:05:17.44Zmore like thismore than 2015-02-23T16:05:17.44Z
star this property answering member
3918
unstar this property label Biography information for Jane Ellison more like this
star this property tabling member
1569
unstar this property label Biography information for Robert Flello more like this
171143
star this property registered interest false remove filter
star this property date less than 2014-12-17more like thismore than 2014-12-17
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what steps he is taking to raise awareness of very long chain acyl-CoA dehydrogenase deficiency among (a) practitioners and (b) the public. more like this
star this property tabling member constituency Barnsley Central more like this
star this property tabling member printed
Dan Jarvis more like this
star this property uin 219149 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-01-05more like thismore than 2015-01-05
star this property answer text <p>Raising awareness of all rare diseases amongst practitioners and the public, including very long chain acyl-CoA dehydrogenase deficiency, is a commitment in the UK Strategy for Rare Diseases. The Department continues to work closely with NHS England to implement this commitment.</p><p> </p> more like this
star this property answering member constituency Battersea remove filter
star this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2015-01-05T16:21:42.08Zmore like thismore than 2015-01-05T16:21:42.08Z
star this property answering member
3918
unstar this property label Biography information for Jane Ellison more like this
star this property tabling member
4243
unstar this property label Biography information for Dan Jarvis more like this
178544
star this property registered interest false remove filter
star this property date less than 2015-02-09more like thismore than 2015-02-09
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Hereditary Diseases remove filter
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what estimate he has made of the cost to the public purse of (a) treatments for mitochondrial disease involving mitochondrial donation and (b) treatments for mitochondrial disease that do not involve mitochondrial donation in each of the next five financial years. more like this
star this property tabling member constituency North Tyneside more like this
star this property tabling member printed
Mrs Mary Glindon more like this
star this property uin 223866 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2015-02-12more like thismore than 2015-02-12
star this property answer text <p>The Government’s analysis of estimated costs and benefits is contained in the Impact Assessment that was laid in Parliament, together with the Draft Human Fertilisation and Embryology (Mitochondrial Donation) Regulations 2015, on 17 December 2014.</p><p> </p><p> </p><p> </p><p>The cost over 10 years was estimated at £11.1 million with the monetised benefit estimated at £329.2 million.</p><p> </p> more like this
star this property answering member constituency Battersea remove filter
star this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2015-02-12T17:20:11.13Zmore like thismore than 2015-02-12T17:20:11.13Z
star this property answering member
3918
unstar this property label Biography information for Jane Ellison more like this
star this property tabling member
4126
unstar this property label Biography information for Mary Glindon more like this