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809126

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Skin Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	What estimate he has made of the number of patients with Erythropoietic Protoporphyria.
	tabling member constituency	Newport East
	tabling member printed	Jessica Morden
	uin	903031
	answer	answer is ministerial correction date of answer 19/12/2017 answer text <p>In 2016/17 there were 54 National Health Service admissions in England with a primary diagnosis of Erythropoietic Protoporphyria.</p><p> </p><p>Whilst the numbers of people with a particular rare disease can be very small, 3.5 million people in the United Kingdom have a rare disease. We know, as with the hon. Member’s constituent, that these diseases can have a heart-breaking impact on a person’s health.</p><p> </p><p>That‘s why the UK is committed to building on our position as a world-leader in the diagnosis and treatment of rare diseases.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 19/12/2017 17:07:30 answering member 4067 label Biography information for Steve Brine
	tabling member	1548 label Biography information for Jessica Morden

809129

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	NHS: Fees and Charges
	house id	1
	legislature	25259 pref label House of Commons
	question text	What recent assessment he has made of trends in the level of fines in relation to dental and prescription charges.
	tabling member constituency	York Central
	tabling member printed	Rachael Maskell
	uin	903036
	answer	answer is ministerial correction date of answer 19/12/2017 answer text <p>The NHS Business Services Authority (NHS BSA) issues penalty charge notices (PCNs) for incorrect claims for exemption from National Health Service dental and prescription charges.</p><p>To ensure the integrity of the exemption system the NHS BSA has recently increased the number of checks. In 2016/17, 365,181 PCNs for dental charges and 975,065 for prescription charges were issued. This represents an increase of 90.11% and 90.23%, respectively, on 2015/16. There is a clear process for patients to appeal a PCN if they believe it is unjustified.</p><p> </p> answering member constituency Winchester answering member printed Steve Brine question first answered 19/12/2017 17:09:22 answering member 4067 label Biography information for Steve Brine
	tabling member	4471 label Biography information for Rachael Maskell

809547

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Cancer: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what the level of availability of cancer gene tests is on the NHS; and whether the NHS prioritises such tests for people whose families have a history of cancer.
	tabling member constituency	Strangford
	tabling member printed	Jim Shannon
	uin	120205
	answer	answer is ministerial correction date of answer 22/12/2017 answer text <p>NHS England is committed to implementing the Independent Cancer Taskforce’s recommendations on molecular diagnostics, meaning that around 25,000 additional people will have their cancers genetically tested every year to identify the most effective treatments. NHS England will continue to invest in building the infrastructure for genomics and by the end of 2018/19, will have developed a genomic medicine service for England, underpinned by a new consolidated genomic laboratory infrastructure and facilitated by informatics, data and analytical platforms to enable the sequencing data we generate to improve clinical practice. Once established, the new genomic laboratory infrastructure for the National Health Service in England will support rare, inherited and acquired disease, to support the NHS to deliver personalised medicine to all eligible patients.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 22/12/2017 11:43:14 answering member 4067 label Biography information for Steve Brine
	tabling member	4131 label Biography information for Jim Shannon

809556

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Contraceptives: Pregnancy
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, if the Medicines and Healthcare Products Regulatory Agency will review the description in ellaOne packaging that states that if you are already pregnant, it [ellaOne] will not interrupt an existing pregnancy.
	tabling member constituency	Congleton
	tabling member printed	Fiona Bruce
	uin	120214
	answer	answer is ministerial correction date of answer 27/12/2017 answer text <p>EllaOne is an ulipristal acetate-containing emergency hormonal contraceptive that is licensed for use within five days of unprotected sexual intercourse or contraceptive failure. It is classified as a female emergency contraceptive; it is not an abortifacient. It exerts its contraceptive action by preventing or delaying ovulation. EllaOne has never been studied as an abortifacient. It is not intended for use during pregnancy and should not be taken by any woman suspected or known to be pregnant. The information provided in each pack of ellaOne clearly informs women and healthcare professionals that it should not be taken by a woman who knows or suspect she is pregnant.</p><p> </p><p>The requirements for medicines labelling are set out within Title V of Council Directive 2001/83/EC. As ellaOne is authorised throughout the European Union the labelling particulars are agreed across all member states by the European Medicines Agency. The Medicines and Healthcare products Regulatory Agency will be liaising with the European Medicines Agency to discuss whether any changes might be desirable within the terms of the marketing authorisation.</p><p> </p><p>As with all other licensed medicines, the Medicines and Healthcare products Regulatory Agency keeps the safety of ellaOne under close review using a wide number of data sources.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 27/12/2017 11:07:57 answering member 4067 label Biography information for Steve Brine
	tabling member	3958 label Biography information for Fiona Bruce

809601

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Mechanical Thrombectomy
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what support his Department plans to offer to those NHS trusts in those areas unlikely to be able to offer mechanial thrombectomy as a treatment immediately.
	tabling member constituency	Newcastle upon Tyne Central
	tabling member printed	Chi Onwurah
	uin	120249
	answer	answer is ministerial correction date of answer 22/12/2017 answer text <p>NHS England does not anticipate being able to offer thrombectomy to all eligible stroke patients immediately, because of the need to develop and train further specialists to undertake the procedure. NHS England is initially proposing to set up 24 thrombectomy centres providing care 24 hours a day, seven days a week which would require a minimum of five interventional clinicians for each centre (120 clinicians). Ultimately NHS England expects to need at least 30 centres to provide equitable geographical coverage, which would require 150 interventionists.</p><p>NHS England anticipates that it will take a minimum of five years to achieve full 24/7 services and in the initial roll out phase of implementation most services will not be in a position to safely deliver this service 24/7, as delivering thrombectomy is a complex and highly technical procedure.</p><p> </p><p> </p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 120250 question first answered 22/12/2017 11:41:14 answering member 4067 label Biography information for Steve Brine
	tabling member	4124 label Biography information for Chi Onwurah

809604

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Mechanical Thrombectomy
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, how his Department plans to ensure that eligible stroke patients get access to mechanical thrombectomy treatment.
	tabling member constituency	Newcastle upon Tyne Central
	tabling member printed	Chi Onwurah
	uin	120250
	answer	answer is ministerial correction date of answer 22/12/2017 answer text <p>NHS England does not anticipate being able to offer thrombectomy to all eligible stroke patients immediately, because of the need to develop and train further specialists to undertake the procedure. NHS England is initially proposing to set up 24 thrombectomy centres providing care 24 hours a day, seven days a week which would require a minimum of five interventional clinicians for each centre (120 clinicians). Ultimately NHS England expects to need at least 30 centres to provide equitable geographical coverage, which would require 150 interventionists.</p><p>NHS England anticipates that it will take a minimum of five years to achieve full 24/7 services and in the initial roll out phase of implementation most services will not be in a position to safely deliver this service 24/7, as delivering thrombectomy is a complex and highly technical procedure.</p><p> </p><p> </p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 120249 question first answered 22/12/2017 11:41:14 answering member 4067 label Biography information for Steve Brine
	tabling member	4124 label Biography information for Chi Onwurah

809659

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Patients: Transport
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, with reference to Age UK’s Painful Journeys campaign, what steps his Department is taking to make travelling to and from hospital easier for older people.
	tabling member constituency	Sheffield Central
	tabling member printed	Paul Blomfield
	uin	120279
	answer	answer is ministerial correction date of answer 27/12/2017 answer text <p>The provision of appropriate patient transport services (PTS) in line with national guidance is a matter for local National Health Service commissioners.</p><p> </p><p>The Department is clear that medically eligible patients must have appropriate access to quality PTS to outpatient appointments. The document ‘Eligibility Criteria for Patient Transport Services’ sets out criteria for establishing which patients are eligible for non-emergency PTS. The guidance states that eligible patients should reach appointments in reasonable time and in reasonable comfort, without detriment to their medical condition.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 27/12/2017 11:03:11 answering member 4067 label Biography information for Steve Brine
	tabling member	4058 label Biography information for Paul Blomfield

809718

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Haim-Munk Syndrome: Medical Treatments
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what recent assessment he has made of the adequacy of treatment provisions for people diagnosed with Haim-Munk syndrome
	tabling member constituency	Coventry South
	tabling member printed	Mr Jim Cunningham
	uin	120338
	answer	answer is ministerial correction date of answer 08/01/2018 answer text <p>Haim-Munk syndrome is a rare genetic disorder characterised by the development of red, scaly thickened patches of skin.</p><p> </p><p>NHS England commissions specialised services for patients with rare or complex skin diseases which includes those which may be due to rare genetic disorders. NHS England has published a national service specification for specialised skin services which sets national standards and has published policies on drug therapies where appropriate. This is available at:</p><p><a href="https://www.england.nhs.uk/commissioning/spec-services/npc-crg/group-a/a08/" target="_blank">https://www.england.nhs.uk/commissioning/spec-services/npc-crg/group-a/a08/</a></p> answering member constituency Winchester answering member printed Steve Brine question first answered 08/01/2018 16:50:05 answering member 4067 label Biography information for Steve Brine
	tabling member	308 label Biography information for Mr Jim Cunningham

809849

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	NHS: Reorganisation
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what assessment he has made of the effectiveness of local authority engagement in the Cheshire and Merseyside STP.
	tabling member constituency	Liverpool, Wavertree
	tabling member printed	Luciana Berger
	uin	120469
	answer	answer is ministerial correction date of answer 08/01/2018 answer text <p>The Department has not made an assessment of the effectiveness of local authority engagement in the Cheshire and Merseyside Sustainability and Transformation Plan.</p><p> </p><p>Across each borough, local authorities are integral partners in developing place-based integrated health and social care systems to provide joined up, better care and improved outcomes for their populations.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 08/01/2018 16:30:46 answering member 4067 label Biography information for Steve Brine
	tabling member	4036 label Biography information for Luciana Berger

809872

	registered interest
	date	19/12/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Chronic Fatigue Syndrome
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what steps he has taken to ensure that the training of GPs includes the latest evidence on how to diagnose and treat ME.
	tabling member constituency	Stroud
	tabling member printed	Dr David Drew
	uin	120492
	answer	answer is ministerial correction date of answer 22/12/2017 answer text <p>The postgraduate training curriculum of doctors is set by the relevant Royal College and has to meet the standards set by the General Medical Council (GMC). It emphasises the skills and attributes that a doctor must develop in order to ensure accurate and timely diagnoses and to develop a treatment plan to meet patients’ needs.</p><p> </p><p>The GMC published revised standards for postgraduate training curricula in May 2017. These provide an integrated standards framework for the development, approval and provision of postgraduate medical education and training in the United Kingdom.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 22/12/2017 11:39:17 answering member 4067 label Biography information for Steve Brine
	tabling member	252 label Biography information for Dr David Drew