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answer › answering member constituency	Winchester
uin	903031
answer › answering member › label	Biography information for Steve Brine

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registered interest

date

exactly:

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and

answering body

answering dept id

answering dept short name

answering dept sort name

hansard heading

house id

legislature


pref label

question text

tabling member constituency

tabling member printed

uin

answer

is ministerial correction

date of answer

exactly:

or between:
and

answer text

answering member constituency

answering member printed

question first answered

answering member


label

tabling member


label

809126

registered interest

date

19/12/2017

answering body

Department of Health

answering dept id

answering dept short name

Health

answering dept sort name

Health

hansard heading

Skin Diseases

house id

legislature

25259

	pref label	House of Commons

question text

What estimate he has made of the number of patients with Erythropoietic Protoporphyria.

tabling member constituency

Newport East

tabling member printed

Jessica Morden

uin

903031

answer

is ministerial correction

date of answer

19/12/2017

answer text

In 2016/17 there were 54 National Health Service admissions in England with a primary diagnosis of Erythropoietic Protoporphyria. Whilst the numbers of people with a particular rare disease can be very small, 3.5 million people in the United Kingdom have a rare disease. We know, as with the hon. Member’s constituent, that these diseases can have a heart-breaking impact on a person’s health. That‘s why the UK is committed to building on our position as a world-leader in the diagnosis and treatment of rare diseases.

answering member constituency

Winchester

answering member printed

Steve Brine

question first answered

19/12/2017 17:07:30

answering member

4067

	label	Biography information for Steve Brine

tabling member

1548

	label	Biography information for Jessica Morden