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<p>NHS England does not commission separate services for sickle cell patients with
stroke, chronic kidney disease, end-stage renal disease or pulmonary hypertension
and so cannot provide annual per capita costs. These services are commissioned on
behalf of all patients that require them, which would include people living with sickle
cell disease.</p><p>NHS England has recently undertaken a review of haemoglobinopathy
services to ensure that patients living with conditions such as sickle cell disease
are able to access the high-quality services they need for their condition across
the country. NHS England is now commissioning a networked-based model of care for
specialised haemoglobinopathy services which will included specialist haemoglobinopathy
teams across the country, regional haemoglobinopathy coordination centres and a National
Haemoglobinopathy Panel. The new model will enable advice to be provided to local
clinicians on the management of patients with sickle cell disease 24 hours a day,
seven days a week. Haemoglobinopathy coordination centres will organise and run networks
for sickle cell disease, providing leadership and education for local services.</p><p><strong>
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