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1134907

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	100,000 Genomes Project
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans his Department has to evaluate the 100,000 Genomes Project.
	tabling member constituency	Birmingham, Yardley
	tabling member printed	Jess Phillips
	uin	269788
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>As a Government Major Project, the 100,000 Genomes Project has been under regular review by the Infrastructure and Projects Authority (IPA) which provides independent assurance of the most complex and strategically significant projects across Government. As part of this, the 100,000 Genomes Project has undergone several significant reviews which considered the Project’s delivery, requiring the collation of extensive documentation evidencing the progress of the Project and several days of interviews with key stakeholders. Conclusions of each review were shared across delivery partners to inform successful delivery of the Project.</p><p>The Department, Genomics England and NHS England recognised the importance in embedding robust testing, assessment and evaluation throughout the delivery of the Project to inform the introduction of whole genome sequencing in the National Health Service under the new Genomics Medicine Service.</p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 05/07/2019 11:40:47 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4370 label Biography information for Jess Phillips

1134829

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Antimicrobials: Drug Resistance
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what research his Department has undertaken (a) directly, (b) through research councils and (c) with international partners on antimicrobial resistance.
	tabling member constituency	Stroud
	tabling member printed	Dr David Drew
	uin	269618
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>The Department is investing over £1 billion a year in health research through the National Institute for Health Research (NIHR). The NIHR supports a wide portfolio of research on antimicrobial resistance (AMR) through various funding streams. In the United Kingdom, investment includes £32 million of capital funding to support AMR research, £19.1 million for AMR research at four NIHR Biomedical Research Centres, and £8.8 million for two NIHR Health Protection Research Units on Healthcare Associated Infections and Antimicrobial Resistance.</p><p>The NIHR also supports research into AMR in low and middle-income countries (LMICs), with official development assistance (ODA) funding through the NIHR Global Health Research programme. Investment includes support for the NIHR Global Health Research Unit on Genomic Surveillance of Antimicrobial Resistance, and the NIHR Global Health Research Group on Genomic Surveillance of Malaria in West Africa.</p><p>Working through partnerships with other UK funders, the NIHR Global Health Research programme also supports cross-Research Council initiatives including one led by the Medical Research Council for research into AMR in a global context, and another led by the Economic and Social Research Council to expand understanding of how behaviour within and beyond the healthcare system impacts on AMR.</p><p>In addition, the Department has allocated over £50 million of ODA over five years to AMR research through the Global AMR Innovation Fund. This research is delivered through a range of mechanisms and delivery partners, including research councils such as the Biotechnology and Biological Sciences Research Council and Innovate UK, and international partners including the Wellcome Trust, Bill and Melinda Gates Foundation, the United States and German governments, and Canada’s International Development Research Centre.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 05/07/2019 11:34:34 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	252 label Biography information for Dr David Drew

1134876

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Cancer: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what the cost is of a single whole genome sequencing test for (a) blood cancers and (b) other cancer types.
	tabling member constituency	Scunthorpe
	tabling member printed	Nic Dakin
	uin	269721
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>The National Genomic Test Directory outlines which genomic tests are commissioned by the National Health Service in England, the technology by which they are available, and the patients who will be eligible to access to a test. The Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as whole genome sequencing. As the price of whole genome sequencing falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients. More information on the Directory is available at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>There is considerable variation in the reported costs of genomic analysis. For Genomics England, during the 100,000 Genomes project, these were in order of £2,500 per cancer patient. This included sequencing both the patient’s normal genome and their tumour, as well as the running costs of undertaking both the sequencing and bioinformatics for analysis and interpretation.</p><p>Health Education England established the Genomics Education Programme to support NHS staff to build the knowledge, skills and experience to deliver a whole genome sequencing service. This programme is being embedded into organisations to enable long-term sustainability of the multi-disciplinary clinical workforce.</p><p> </p><p> </p><p> </p><p> </p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 269720 269722 question first answered 05/07/2019 09:26:34 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4056 label Biography information for Nic Dakin

1135183

	registered interest
	date	27/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Genetics: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether the National Genomic Test Directory directly replaces the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing.
	tabling member constituency	Sheffield South East
	tabling member printed	Mr Clive Betts
	uin	270282
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>During 2019, the National Health Service will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test; and</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and acute myeloid leukaemia.</p><p> </p><p>WGS will only replace existing diagnostic tests once the testing is demonstrated to be clinically safe to replace existing diagnostic testing. Initially, existing diagnostic testing will continue to be performed alongside WGS testing where clinically appropriate. This will continue until WGS is able to fully support clinical decision making within clinically appropriate timescales.</p><p>Current testing for blood cancers includes a number of diagnostic tests, the current expectation is that WGS will not be used to replace tests that require very fast turnaround times (under 24 hours) or high sensitivity.</p><p>WGS and non-WGS testing that will be available as part of clinical care is outlined in the National Genomic Test Directory at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>The UK Genetic Testing Network (UKGTN) published the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing, which evaluated and recommended genetic tests for rare and inherited disorders for the National Health Service across the UK. However, there was not an equivalent for cancer genomic testing. The National Genomic Test Directory specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access to a test.</p><p>The National Genomic Test Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as WGS. As the price of WGS falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p><p> </p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 270281 270283 question first answered 05/07/2019 09:24:02 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	394 label Biography information for Mr Clive Betts

1134871

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Genomics
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans his Department has to provide training for NHS staff on whole genome sequencing.
	tabling member constituency	Crawley
	tabling member printed	Henry Smith
	uin	269709
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>As part of the NHS Long Term Plan, the National Health Service has committed to sequencing 500,000 whole genomes by 2023/24.</p><p>To deliver this, NHS England is working closely with the NHS Genomic Laboratory Hubs to monitor the workforce plans that are being put in place to support the delivery of the whole genome sequencing (WGS) service. This will continue after the service has launched as part of ongoing monitoring.</p><p>Health Education England established the Genomics Education Programme to support NHS staff to build the knowledge, skills and experience to deliver a WGS service. This programme is being embedded into organisations to enable long term sustainability of the multi-disciplinary, clinical workforce.</p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 269710 question first answered 05/07/2019 11:49:13 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	3960 label Biography information for Henry Smith

1134877

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Genomics
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what role will genomic multi-disciplinary teams play in whole genome sequencing.
	tabling member constituency	Scunthorpe
	tabling member printed	Nic Dakin
	uin	269722
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>The National Genomic Test Directory outlines which genomic tests are commissioned by the National Health Service in England, the technology by which they are available, and the patients who will be eligible to access to a test. The Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as whole genome sequencing. As the price of whole genome sequencing falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients. More information on the Directory is available at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>There is considerable variation in the reported costs of genomic analysis. For Genomics England, during the 100,000 Genomes project, these were in order of £2,500 per cancer patient. This included sequencing both the patient’s normal genome and their tumour, as well as the running costs of undertaking both the sequencing and bioinformatics for analysis and interpretation.</p><p>Health Education England established the Genomics Education Programme to support NHS staff to build the knowledge, skills and experience to deliver a whole genome sequencing service. This programme is being embedded into organisations to enable long-term sustainability of the multi-disciplinary clinical workforce.</p><p> </p><p> </p><p> </p><p> </p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 269720 269721 question first answered 05/07/2019 09:26:35 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4056 label Biography information for Nic Dakin

1134905

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Genomics England
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what role he plans Genomics England to play in the NHS Genomic Medicine Service after the completion of the 100,000 Genomes Project.
	tabling member constituency	Birmingham, Yardley
	tabling member printed	Jess Phillips
	uin	269786
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>Genomics England is accountable to the Secretary of State for Health and Social Care who is the sole shareholder. Following the completion of the 100,000 Genomes Project, Genomics England will continue to support NHS England with the development, establishment and successful operation of the NHS Genomic Medicine Service, and in particular the NHS Long Term Plan commitment to sequence 500,000 whole genomes by 2023/24.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 269787 question first answered 05/07/2019 11:30:46 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4370 label Biography information for Jess Phillips

1134906

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Genomics England: Accountability
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, which organisation Genomics England is accountable to.
	tabling member constituency	Birmingham, Yardley
	tabling member printed	Jess Phillips
	uin	269787
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>Genomics England is accountable to the Secretary of State for Health and Social Care who is the sole shareholder. Following the completion of the 100,000 Genomes Project, Genomics England will continue to support NHS England with the development, establishment and successful operation of the NHS Genomic Medicine Service, and in particular the NHS Long Term Plan commitment to sequence 500,000 whole genomes by 2023/24.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 269786 question first answered 05/07/2019 11:30:46 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4370 label Biography information for Jess Phillips

1134872

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Genomics: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many additional NHS staff will be required to provide the Genomic Medicine Service.
	tabling member constituency	Crawley
	tabling member printed	Henry Smith
	uin	269710
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>As part of the NHS Long Term Plan, the National Health Service has committed to sequencing 500,000 whole genomes by 2023/24.</p><p>To deliver this, NHS England is working closely with the NHS Genomic Laboratory Hubs to monitor the workforce plans that are being put in place to support the delivery of the whole genome sequencing (WGS) service. This will continue after the service has launched as part of ongoing monitoring.</p><p>Health Education England established the Genomics Education Programme to support NHS staff to build the knowledge, skills and experience to deliver a WGS service. This programme is being embedded into organisations to enable long term sustainability of the multi-disciplinary, clinical workforce.</p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 269709 question first answered 05/07/2019 11:49:13 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	3960 label Biography information for Henry Smith

1134875

	registered interest
	date	26/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Genomics: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, who will hold responsibility for adding new tests to the National Genomic Test Directory.
	tabling member constituency	Scunthorpe
	tabling member printed	Nic Dakin
	uin	269720
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>The National Genomic Test Directory outlines which genomic tests are commissioned by the National Health Service in England, the technology by which they are available, and the patients who will be eligible to access to a test. The Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as whole genome sequencing. As the price of whole genome sequencing falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients. More information on the Directory is available at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>There is considerable variation in the reported costs of genomic analysis. For Genomics England, during the 100,000 Genomes project, these were in order of £2,500 per cancer patient. This included sequencing both the patient’s normal genome and their tumour, as well as the running costs of undertaking both the sequencing and bioinformatics for analysis and interpretation.</p><p>Health Education England established the Genomics Education Programme to support NHS staff to build the knowledge, skills and experience to deliver a whole genome sequencing service. This programme is being embedded into organisations to enable long-term sustainability of the multi-disciplinary clinical workforce.</p><p> </p><p> </p><p> </p><p> </p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 269721 269722 question first answered 05/07/2019 09:26:34 answering member 4008 label Biography information for Dame Caroline Dinenage
	tabling member	4056 label Biography information for Nic Dakin