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1010414
star this property registered interest false more like this
star this property date less than 2018-11-19more like thismore than 2018-11-19
star this property answering body
Northern Ireland Office more like this
star this property answering dept id 21 more like this
unstar this property answering dept short name Northern Ireland more like this
star this property answering dept sort name Northern Ireland more like this
star this property hansard heading Orkambi: Northern Ireland more like this
unstar this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Northern Ireland, if she will meet families of cystic fibrosis sufferers in Northern Ireland who are seeking to secure the availability of Orkambi on the NHS; and if she will make a statement. more like this
star this property tabling member constituency North Down more like this
star this property tabling member printed
Lady Hermon more like this
unstar this property uin 192815 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer less than 2018-11-26more like thismore than 2018-11-26
star this property answer text <p>Thank you for raising this important issue. I realise that the availability of Orkambi is currently the subject of negotiation involving Vertex Pharmaceuticals, NHS England and the National Institute for Health and Care Excellence (NICE).</p><p> </p><p>As these negotiations are ongoing, I will ask my officials to monitor progress on this issue and update you as soon as there is greater clarity.</p> more like this
star this property answering member constituency Weston-super-Mare remove filter
star this property answering member printed John Penrose more like this
star this property question first answered
less than 2018-11-26T11:40:48.57Zmore like thismore than 2018-11-26T11:40:48.57Z
unstar this property answering member
1584
star this property label Biography information for John Penrose more like this
star this property tabling member
1437
star this property label Biography information for Lady Hermon more like this