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809126
star this property registered interest false more like this
star this property date less than 2017-12-19more like thismore than 2017-12-19
star this property answering body
Department of Health more like this
unstar this property answering dept id 17 more like this
star this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Skin Diseases remove filter
unstar this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
unstar this property question text What estimate he has made of the number of patients with Erythropoietic Protoporphyria. more like this
star this property tabling member constituency Newport East more like this
star this property tabling member printed
Jessica Morden more like this
unstar this property uin 903031 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer less than 2017-12-19more like thismore than 2017-12-19
star this property answer text <p>In 2016/17 there were 54 National Health Service admissions in England with a primary diagnosis of Erythropoietic Protoporphyria.</p><p> </p><p>Whilst the numbers of people with a particular rare disease can be very small, 3.5 million people in the United Kingdom have a rare disease. We know, as with the hon. Member’s constituent, that these diseases can have a heart-breaking impact on a person’s health.</p><p> </p><p>That‘s why the UK is committed to building on our position as a world-leader in the diagnosis and treatment of rare diseases.</p> more like this
star this property answering member constituency Winchester remove filter
star this property answering member printed Steve Brine more like this
star this property question first answered
less than 2017-12-19T17:07:30.853Zmore like thismore than 2017-12-19T17:07:30.853Z
unstar this property answering member
4067
star this property label Biography information for Steve Brine more like this
star this property tabling member
1548
star this property label Biography information for Jessica Morden more like this
882728
star this property registered interest false more like this
star this property date less than 2018-04-13more like thismore than 2018-04-13
star this property answering body
Department of Health and Social Care more like this
unstar this property answering dept id 17 more like this
star this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
star this property hansard heading Skin Diseases remove filter
unstar this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
unstar this property question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure patients in England with (a) skin conditions and (b) atopic dermatitis are able to access to new innovative treatments. more like this
star this property tabling member constituency Penistone and Stocksbridge more like this
star this property tabling member printed
Angela Smith more like this
unstar this property uin 135790 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer less than 2018-04-23more like thismore than 2018-04-23
star this property answer text <p>The National Institute for Health and Care Excellence (NICE) is the independent body that provides guidance on the prevention and treatment of ill health and the promotion of good health and social care. NICE has published a range of guidance products for the management of skin conditions, including technology appraisals, guidelines and quality standards, which can be accessed at the following link:</p><p> </p><p><a href="https://www.nice.org.uk/guidance/conditions-and-diseases/skin-conditions/skin-conditions--general-and-other#technology-appraisal-guidance" target="_blank">https://www.nice.org.uk/guidance/conditions-and-diseases/skin-conditions/skin-conditions--general-and-other#technology-appraisal-guidance</a></p><p> </p><p>National Health Service commissioners are legally required to fund treatments recommended by NICE in its technology appraisal guidance.</p><p> </p><p>The Government takes the issue of ensuring rapid access to innovative therapies very seriously, which is why on 3 November 2017, we published our response to the Accelerated Access Review. We set out plans to give patients quicker access to life-changing treatments and make the United Kingdom the best place in the world for industry to invest and innovate.</p>
star this property answering member constituency Winchester remove filter
star this property answering member printed Steve Brine more like this
star this property question first answered
less than 2018-04-23T15:39:05.96Zmore like thismore than 2018-04-23T15:39:05.96Z
unstar this property answering member
4067
star this property label Biography information for Steve Brine more like this
star this property tabling member
1564
star this property label Biography information for Angela Smith more like this