Linked Data API

Show Search Form

Search Results

418461
star this property registered interest false more like this
unstar this property date less than 2015-09-11more like thismore than 2015-09-11
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
unstar this property hansard heading Ehlers-Danlos Syndrome more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what recent assessment he has made of patient outcomes of those diagnosed with Ehlers-Danlos syndrome in (a) London and (b) Greater Manchester. more like this
star this property tabling member constituency Bury North more like this
star this property tabling member printed
Mr David Nuttall more like this
star this property uin 9987 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer less than 2015-09-21more like thismore than 2015-09-21
star this property answer text <p>Information on patient outcomes of those diagnosed with Ehlers-Danlos Syndrome (EDS) in London and Greater Manchester is not held centrally by the Department. EDS falls within specialised services managed by NHS England.</p><p> </p><p> </p><p> </p><p>The UK Strategy for Rare Diseases sets out the Government’s on-going commitment to ensuring that patients with rare diseases, including EDS, have access to high quality services. The Strategy is discussed regularly with health bodies including NHS England. The national specialised service for atypical or complex cases aims to reduce times to diagnosis and reduce the number of hospital appointments required to achieve a specific diagnosis.</p><p> </p><p> </p><p> </p><p>Information about the average time from diagnosis to referral for specialist treatment is not available centrally. Patients suspected of having EDS may be assessed and diagnosed in a wide range of settings. These include United Kingdom regional clinical genetics clinics and various other secondary and tertiary speciality clinics.</p><p> </p><p> </p><p> </p>
star this property answering member constituency Mid Norfolk more like this
star this property answering member printed George Freeman more like this
star this property grouped question UIN
9988 remove filter
9989 more like this
star this property question first answered
less than 2015-09-21T10:00:13.587Zmore like thismore than 2015-09-21T10:00:13.587Z
star this property answering member
4020
star this property label Biography information for George Freeman more like this
star this property tabling member
4140
star this property label Biography information for Mr David Nuttall more like this
418457
star this property registered interest false more like this
unstar this property date less than 2015-09-11more like thismore than 2015-09-11
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
unstar this property hansard heading Ehlers-Danlos Syndrome more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what the average length of time is between the diagnosis of a patient with Ehlers-Danlos syndrome and referral for specialist treatment in (a) London and (b) Greater Manchester. more like this
star this property tabling member constituency Bury North more like this
star this property tabling member printed
Mr David Nuttall more like this
star this property uin 9989 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer less than 2015-09-21more like thismore than 2015-09-21
star this property answer text <p>Information on patient outcomes of those diagnosed with Ehlers-Danlos Syndrome (EDS) in London and Greater Manchester is not held centrally by the Department. EDS falls within specialised services managed by NHS England.</p><p> </p><p> </p><p> </p><p>The UK Strategy for Rare Diseases sets out the Government’s on-going commitment to ensuring that patients with rare diseases, including EDS, have access to high quality services. The Strategy is discussed regularly with health bodies including NHS England. The national specialised service for atypical or complex cases aims to reduce times to diagnosis and reduce the number of hospital appointments required to achieve a specific diagnosis.</p><p> </p><p> </p><p> </p><p>Information about the average time from diagnosis to referral for specialist treatment is not available centrally. Patients suspected of having EDS may be assessed and diagnosed in a wide range of settings. These include United Kingdom regional clinical genetics clinics and various other secondary and tertiary speciality clinics.</p><p> </p><p> </p><p> </p>
star this property answering member constituency Mid Norfolk more like this
star this property answering member printed George Freeman more like this
star this property grouped question UIN
9987 more like this
9988 remove filter
star this property question first answered
less than 2015-09-21T10:00:17.887Zmore like thismore than 2015-09-21T10:00:17.887Z
star this property answering member
4020
star this property label Biography information for George Freeman more like this
star this property tabling member
4140
star this property label Biography information for Mr David Nuttall more like this