 |
answer text |
<p>The number of people with neurofibromatosis type 1 (NF1) in England is estimated
to number 11,267. The condition can be mild in some patients, manifesting itself only
in patches of skin discolouration and soft benign bumps under the skin (neurofibromas),
but for others NF1 causes more serious complications, including a rare form of cancer,
curvature of the spine and nerve problems caused by more invasive neurofibromas.</p><p>
</p><p>Since 1 April 2013, NHS England has been responsible for securing high quality
care for all patients with complex NF1 as part of its specialised commissioning responsibilities.
NHS England's NF1 service specification clearly sets out what needs to be in place
for providers to offer evidence-based, safe and effective care, ensuring equity of
access to a nationally consistent, high quality service. Specialist care is delivered
by two designated centres based in Manchester (Central Manchester University Hospitals
NHS Foundation Trust) and London (Guys and St. Thomas' NHS Foundation Trust, London)
and these provide outreach support into other cities. The service is available to
all patients with a suspected or confirmed diagnosis of NF1.</p><p> </p><p>The service
specification can be viewed on the NHS England website at the following link:</p><p>
</p><p>www.england.nhs.uk/wp-content/uploads/2013/06/b13-comp-neurofib-1.pdf.</p>
|
|
