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167080

	registered interest
	date	01/12/2014
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Sickle Cell Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, how much the NHS spends on sickle cell anaemia; and what proportion this is of the total NHS budget.
	tabling member constituency	Wolverhampton South East
	tabling member printed	Mr Pat McFadden
	uin	216527
	answer	answer is ministerial correction date of answer 08/12/2014 answer text <p>There are an estimated 250,000 people with <ins class="ministerial">the</ins> sickle cell <ins class="ministerial">trait</ins> <del class="ministerial">anaemia</del> in the United Kingdom. The Department has made no estimation of the annual cost of treating sickle cell anaemia in the National Health Service nor does it hold information on the total NHS spend on sickle cell anaemia.</p><p> </p><p> </p><p> </p><p>The Department does hold estimated costs for admitted patient care episodes as reported by Healthcare Resource Groups. In 2013-14 the total estimated figure for sickle anaemia was £23.8 million; in 2012-13 it was £21.9 million. This figure does not include other costs such as primary and social care.</p><p> </p> answering member constituency Battersea answering member printed Jane Ellison question first answered 08/12/2014 15:12:22 question first ministerially corrected 10/12/2014 16:29:44 answering member 3918 label Biography information for Jane Ellison previous answer version 32239 answering member constituency Battersea answering member printed Jane Ellison answering member 3918 label Biography information for Jane Ellison
	tabling member	1587 label Biography information for Pat McFadden

167082

	registered interest
	date	01/12/2014
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Sickle Cell Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what estimate he has made of the annual cost to the NHS of treating sickle cell anaemia.
	tabling member constituency	Wolverhampton South East
	tabling member printed	Mr Pat McFadden
	uin	216529
	answer	answer is ministerial correction date of answer 08/12/2014 answer text <p>There are an estimated 250,000 people with <ins class="ministerial">the</ins> sickle cell <ins class="ministerial">trait</ins> <del class="ministerial">anaemia</del> in the United Kingdom. The Department has made no estimation of the annual cost of treating sickle cell anaemia in the National Health Service nor does it hold information on the total NHS spend on sickle cell anaemia.</p><p> </p><p> </p><p> </p><p>The Department does hold estimated costs for admitted patient care episodes as reported by Healthcare Resource Groups. In 2013-14 the total estimated figure for sickle anaemia was £23.8 million; in 2012-13 it was £21.9 million. This figure does not include other costs such as primary and social care.</p><p> </p> answering member constituency Battersea answering member printed Jane Ellison question first answered 08/12/2014 15:12:22 question first ministerially corrected 10/12/2014 16:29:44 answering member 3918 label Biography information for Jane Ellison previous answer version 32239 answering member constituency Battersea answering member printed Jane Ellison answering member 3918 label Biography information for Jane Ellison
	tabling member	1587 label Biography information for Pat McFadden

167078

	registered interest
	date	01/12/2014
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Sickle Cell Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what research his Department has published on sickle cell anaemia in the last four years.
	tabling member constituency	Wolverhampton South East
	tabling member printed	Mr Pat McFadden
	uin	216525
	answer	answer is ministerial correction date of answer 08/12/2014 answer text <p>The NIHR Journals Library comprises a suite of open access journals providing a permanent archive of research funded by the Department’s National Institute for Health Research (NIHR) through five NIHR programmes (Efficacy and Mechanism Evaluation; Health Services and Delivery Research; Health Technology Assessment; Programme Grants for Applied Research; Public Health Research). The NIHR Journals Library is available at:</p><p> </p><p> </p><p> </p><p><a href="http://www.journalslibrary.nihr.ac.uk/" target="_blank">http://www.journalslibrary.nihr.ac.uk/</a></p><p> </p><p> </p><p> </p><p>The following reports relating to sickle cell anaemia have been published in the NIHR Journals Library in the last four years:</p><p> </p><p><strong> </strong></p><p> </p><p>- The clinical effectiveness and cost-effectiveness of primary stroke prevention in children with sickle cell disease: a systematic review and economic evaluation (2012)</p><p> </p><p><strong> </strong></p><p> </p><p>- Antenatal screening for haemoglobinopathies in primary care: a cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial (2010)</p><p> </p><p><strong> </strong></p><p> </p><p>Across all NIHR funding streams, and across all topic areas including sickle cell anaemia, the Department and the NIHR require that NIHR funded researchers seek to publish their research outputs in a peer-reviewed journal that is compliant with the NIHR policy on open access.</p><p> </p> answering member constituency Mid Norfolk answering member printed George Freeman question first answered 08/12/2014 15:18:07 answering member 4020 label Biography information for George Freeman
	tabling member	1587 label Biography information for Pat McFadden

167079

	registered interest
	date	01/12/2014
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Sickle Cell Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, when he last met the Sickle Cell Society; and if he will make a statement.
	tabling member constituency	Wolverhampton South East
	tabling member printed	Mr Pat McFadden
	uin	216526
	answer	answer is ministerial correction date of answer 08/12/2014 answer text <p>Genetic Alliance UK, of which the Sickle Cell Society is a member, are represented on the Department’s UK Rare Disease Forum, which meets regularly to discuss issues of United Kingdom rare diseases policy and to monitor the implementation of the UK Strategy for Rare Diseases.</p><p> </p><p> </p><p> </p><p>There have been no recent direct discussions between my Rt. hon. Friend the Secretary of State for Health and the Sickle Cell Society.</p><p> </p> answering member constituency Battersea answering member printed Jane Ellison question first answered 08/12/2014 16:01:15 answering member 3918 label Biography information for Jane Ellison
	tabling member	1587 label Biography information for Pat McFadden

167081

	registered interest
	date	01/12/2014
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Sickle Cell Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, how many consultant and nursing specialists in sickle cell anaemia are employed by the NHS; and if he will make a statement.
	tabling member constituency	Wolverhampton South East
	tabling member printed	Mr Pat McFadden
	uin	216528
	answer	answer is ministerial correction date of answer 08/12/2014 answer text <p>Information about the number of consultant and nursing specialists in sickle cell anaemia is not collected centrally.</p><p> </p><p><strong> </strong></p><p> </p> answering member constituency Battersea answering member printed Jane Ellison question first answered 08/12/2014 15:13:14 answering member 3918 label Biography information for Jane Ellison
	tabling member	1587 label Biography information for Pat McFadden