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1696290
unstar this property registered interest false remove filter
star this property date less than 2024-03-14more like thismore than 2024-03-14
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Postural Tachycardia Syndrome more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps she is taking to support people living with postural tachycardia syndrome. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 18703 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2024-03-20more like thismore than 2024-03-20
star this property answer text <p>To improve awareness of postural tachycardia syndrome (PoTS) amongst healthcare professionals, and specifically general practices (GPs), the Royal College of General Practitioners provides training on PoTS as part of its Syncope toolkit, which is available at the following link:</p><p> </p><p><a href="https://elearning.rcgp.org.uk/mod/book/view.php?id=12386&amp;chapterid=247" target="_blank">https://elearning.rcgp.org.uk/mod/book/view.php?id=12386&amp;chapterid=247</a></p><p> </p><p>The National Institute for Health and Care Excellence has also produced a clinical knowledge summary, last revised in November 2023, which outlines the method healthcare professionals should follow for diagnosing PoTS. This summary is available at the following link:</p><p> </p><p><a href="https://cks.nice.org.uk/topics/blackouts-syncope/diagnosis/assessment/" target="_blank">https://cks.nice.org.uk/topics/blackouts-syncope/diagnosis/assessment/</a></p><p> </p><p>GPs are asked to investigate symptoms to ensure that it is not misdiagnosed. Following referral, patients are treated within National Health Service cardiology and neurology services. Where more specialist advice is required, a referral will be made to an appropriate clinician.</p><p> </p><p>Services for PoTS are locally commissioned and, as such, it is the responsibility of the local commissioning teams within integrated care boards to ensure that their locally commissioned services meet the needs of their local population.</p><p> </p><p>The Department invests over £1 billion per year in health research through the National Institute for Health and Care Research (NIHR). The NIHR funds research in response to proposals received from scientists rather than allocating funding to specific disease areas. The NIHR welcomes funding applications for research into any aspect of human health, including PoTS, although it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.</p>
star this property answering member constituency Pendle more like this
star this property answering member printed Andrew Stephenson more like this
star this property grouped question UIN 18704 more like this
star this property question first answered
less than 2024-03-20T11:39:46.703Zmore like thismore than 2024-03-20T11:39:46.703Z
star this property answering member
4044
star this property label Biography information for Andrew Stephenson more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1696292
unstar this property registered interest false remove filter
star this property date less than 2024-03-14more like thismore than 2024-03-14
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Postural Tachycardia Syndrome more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps she is taking to increase (a) awareness of and (b) research investment in postural tachycardia syndrome. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 18704 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2024-03-20more like thismore than 2024-03-20
star this property answer text <p>To improve awareness of postural tachycardia syndrome (PoTS) amongst healthcare professionals, and specifically general practices (GPs), the Royal College of General Practitioners provides training on PoTS as part of its Syncope toolkit, which is available at the following link:</p><p> </p><p><a href="https://elearning.rcgp.org.uk/mod/book/view.php?id=12386&amp;chapterid=247" target="_blank">https://elearning.rcgp.org.uk/mod/book/view.php?id=12386&amp;chapterid=247</a></p><p> </p><p>The National Institute for Health and Care Excellence has also produced a clinical knowledge summary, last revised in November 2023, which outlines the method healthcare professionals should follow for diagnosing PoTS. This summary is available at the following link:</p><p> </p><p><a href="https://cks.nice.org.uk/topics/blackouts-syncope/diagnosis/assessment/" target="_blank">https://cks.nice.org.uk/topics/blackouts-syncope/diagnosis/assessment/</a></p><p> </p><p>GPs are asked to investigate symptoms to ensure that it is not misdiagnosed. Following referral, patients are treated within National Health Service cardiology and neurology services. Where more specialist advice is required, a referral will be made to an appropriate clinician.</p><p> </p><p>Services for PoTS are locally commissioned and, as such, it is the responsibility of the local commissioning teams within integrated care boards to ensure that their locally commissioned services meet the needs of their local population.</p><p> </p><p>The Department invests over £1 billion per year in health research through the National Institute for Health and Care Research (NIHR). The NIHR funds research in response to proposals received from scientists rather than allocating funding to specific disease areas. The NIHR welcomes funding applications for research into any aspect of human health, including PoTS, although it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.</p>
star this property answering member constituency Pendle more like this
star this property answering member printed Andrew Stephenson more like this
star this property grouped question UIN 18703 more like this
star this property question first answered
less than 2024-03-20T11:39:46.747Zmore like thismore than 2024-03-20T11:39:46.747Z
star this property answering member
4044
star this property label Biography information for Andrew Stephenson more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1690446
unstar this property registered interest false remove filter
star this property date less than 2024-02-20more like thismore than 2024-02-20
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Motor Neurone Disease more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps she is taking to support people living with motor neurone disease. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 14853 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2024-02-27more like thismore than 2024-02-27
star this property answer text <p>The National Institute for Health and Care Excellence has published a clinical guideline on the assessment and management of motor neurone disease (MND), to support its diagnosis. The guideline recommends coordinated care for people with MND, using a clinic based, MND specialist, multi-disciplinary team approach. The core multi-disciplinary team should consist of healthcare and other professionals with expertise in MND, and should include specialist nurses.</p><p>The Government has committed to delivering at least £50 million to support MND research over five years, from 2022 onwards, as part of a package of £375 million for research into neurodegenerative diseases. In June 2023, the Government announced that more than £35 million of the £50 million pledged to cutting-edge MND research has now been allocated, just two years into a five-year funding commitment. Work continues at pace to support MND researchers in submitting high-quality bids for open funding calls. Further information is available at the following link:</p><p><a href="https://www.gov.uk/government/news/government-continues-delivering-on-50-million-funding-pledge-for-motor-neurone-disease-research" target="_blank">https://www.gov.uk/government/news/government-continues-delivering-on-50-million-funding-pledge-for-motor-neurone-disease-research</a></p><p>NHS England commissions specialised services to support people living with MND, as set out in the published service specification for specialised neurology services. The support provided includes the provision of multi-disciplinary care from specialist clinicians, including neurologists, specialist nurses, speech and language therapists, dietetics and nutrition support, and physiotherapy, depending on individual clinical need. The service specification for specialised neurology services is available at the following link:</p><p><a href="https://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf" target="_blank">https://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p>In addition, NHS England commissions a specialised communication aid service known as Augmentative and Alternative Communication, as set out in the published service specification. This service supports and prioritises individuals with rapidly degenerative conditions, including MND. The service specification for Augmentative and Alternative Communication, is available at the following link:</p><p><a href="https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2016/03/aac-serv-spec-jan-2016.pdf" target="_blank">https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2016/03/aac-serv-spec-jan-2016.pdf</a></p>
star this property answering member constituency Pendle more like this
star this property answering member printed Andrew Stephenson more like this
star this property question first answered
less than 2024-02-27T14:00:16.997Zmore like thismore than 2024-02-27T14:00:16.997Z
star this property answering member
4044
star this property label Biography information for Andrew Stephenson more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1687356
unstar this property registered interest false remove filter
star this property date less than 2024-02-05more like thismore than 2024-02-05
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Dementia: Health Services more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help support people with early onset dementia. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 12951 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2024-02-27more like thismore than 2024-02-27
star this property answer text <p>NHS England is committed to delivering high quality care and support for every person with dementia at every age, and central to this is the provision of personalised care. Provision of dementia health care services is the responsibility of local integrated care boards (ICBs). NHS England would expect ICBs to commission services based on local population needs.</p><p> </p><p>The Dementia Well Pathway includes diagnosing well, living well, supporting well, and dying well, and highlights that services need to be integrated, commissioned, monitored, and aligned with the National Institute for Health and Care Excellence’s (NICE) standards for each component of the pathway. It makes it clear that individual needs, wishes and preferences should be taken into account in planning and providing care.</p><p> </p><p>In January 2023 the Government announced that it will publish a Major Conditions Strategy early 2024. By bringing dementia and other conditions strategies together, we will be able to focus on where there are similarities in approach and ensure care is better centred around the patient.</p>
star this property answering member constituency Faversham and Mid Kent more like this
star this property answering member printed Helen Whately more like this
star this property question first answered
less than 2024-02-27T14:20:12.213Zmore like thismore than 2024-02-27T14:20:12.213Z
star this property answering member
4527
star this property label Biography information for Helen Whately more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1687357
unstar this property registered interest false remove filter
star this property date less than 2024-02-05more like thismore than 2024-02-05
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Care Homes: Dementia and Learning Disability more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help care homes to improve the support they provide to people with (a) learning difficulties and (b) dementia. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 12952 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2024-02-16more like thismore than 2024-02-16
star this property answer text <p>From July 2022, under the Health and Care Act 2022, Care Quality Commission registered health and care providers are required to ensure that staff receive training on learning disability and autism appropriate to their role. This will help to ensure that staff have the right knowledge and skills to provide safe and compassionate care for people with a learning disability.</p><p>We are taking steps to help care homes improve the support they provide through the Care Workforce Pathway that sets clear expectations about training at different stages of a career. This includes learning disability and dementia as specific areas of practice. We are also introducing a new Level 2 Adult Social Care Certificate available to the sector with content that has been underpinned by the Dementia Training Standards and the Core Capabilities Framework on learning disability.</p> more like this
star this property answering member constituency Faversham and Mid Kent more like this
star this property answering member printed Helen Whately more like this
star this property question first answered
less than 2024-02-16T12:56:07.62Zmore like thismore than 2024-02-16T12:56:07.62Z
star this property answering member
4527
star this property label Biography information for Helen Whately more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1665019
unstar this property registered interest false remove filter
star this property date less than 2023-10-16more like thismore than 2023-10-16
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Lung Diseases: Health Education more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase awareness of pulmonary fibrosis. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 202713 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2023-10-19more like thismore than 2023-10-19
star this property answer text <p>Patients with pulmonary fibrosis are cared for by National Health Service regional specialist Interstitial Lung Disease (ILD) services, who are commissioned by NHS England. To be referred to a specialist service patients need to be identified in primary and secondary care. Early and accurate diagnosis is a priority for NHS England, and the work to improve this area of clinical care is underway, which should have an impact on reducing delayed diagnosis of pulmonary fibrosis.</p><p>NHS England is responsible for the commissioning of services for ILD and funds the cost of anti-fibrotic treatments to treat this disease. Access to these treatments has recently been expanded to patients with non-idiopathic pulmonary fibrosis following the publication of the National Institute for Health and Care Excellence’s technology appraisal ‘Nintedanib for treating progressive fibrosing interstitial lung diseases’ in November 2021.</p><p>The Department has no plans for an awareness campaign.</p> more like this
star this property answering member constituency Colchester more like this
star this property answering member printed Will Quince more like this
star this property grouped question UIN 202714 more like this
star this property question first answered
less than 2023-10-19T15:57:32.3Zmore like thismore than 2023-10-19T15:57:32.3Z
star this property answering member
4423
star this property label Biography information for Will Quince more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1665020
unstar this property registered interest false remove filter
star this property date less than 2023-10-16more like thismore than 2023-10-16
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Lung Diseases: Diagnosis and Medical Treatments more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve access to (a) early diagnosis and (b) treatment for people living with pulmonary fibrosis. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 202714 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2023-10-19more like thismore than 2023-10-19
star this property answer text <p>Patients with pulmonary fibrosis are cared for by National Health Service regional specialist Interstitial Lung Disease (ILD) services, who are commissioned by NHS England. To be referred to a specialist service patients need to be identified in primary and secondary care. Early and accurate diagnosis is a priority for NHS England, and the work to improve this area of clinical care is underway, which should have an impact on reducing delayed diagnosis of pulmonary fibrosis.</p><p>NHS England is responsible for the commissioning of services for ILD and funds the cost of anti-fibrotic treatments to treat this disease. Access to these treatments has recently been expanded to patients with non-idiopathic pulmonary fibrosis following the publication of the National Institute for Health and Care Excellence’s technology appraisal ‘Nintedanib for treating progressive fibrosing interstitial lung diseases’ in November 2021.</p><p>The Department has no plans for an awareness campaign.</p> more like this
star this property answering member constituency Colchester more like this
star this property answering member printed Will Quince more like this
star this property grouped question UIN 202713 more like this
star this property question first answered
less than 2023-10-19T15:57:32.273Zmore like thismore than 2023-10-19T15:57:32.273Z
star this property answering member
4423
star this property label Biography information for Will Quince more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1663068
unstar this property registered interest false remove filter
star this property date less than 2023-10-13more like thismore than 2023-10-13
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Dementia: Medical Treatments more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help ensure that new disease-modifying treatments for dementia will be available on the NHS. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 200922 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2023-10-19more like thismore than 2023-10-19
star this property answer text <p>To be made routinely available to National Health Service patients in England, new medicines must receive a marketing authorisation from the Medicines and Healthcare products Regulatory Agency (MHRA) and a positive recommendation from the National Institute for Health and Care Excellence (NICE) to demonstrate clinical and cost effectiveness.</p><p>A number of potential new disease modifying treatments for Alzheimer’s disease are in development and MHRA, NICE, NHS England and the Department are working closely to ensure that arrangements are in place to support the adoption of any new licensed and NICE recommended treatment for Alzheimer’s disease as soon as possible.</p><p>NICE’s appraisal of lecanemab for treating early Alzheimer's disease is currently underway and, subject to licensing and the company engaging in the process, NICE expects to publish final guidance in July 2024 as close to licence as possible. NICE is also due to begin its appraisal of donanemab for treating early Alzheimer’s disease later this year.</p><p>To prepare for these appraisals, and the expected pipeline of further disease modifying dementia treatments, the NICE Health Technology Assessment Innovation Laboratory has already started working on identifying potential challenges that might face the evaluation of these medicines and ways of addressing them.</p>
star this property answering member constituency Colchester more like this
star this property answering member printed Will Quince more like this
star this property question first answered
less than 2023-10-19T14:38:04.853Zmore like thismore than 2023-10-19T14:38:04.853Z
star this property answering member
4423
star this property label Biography information for Will Quince more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1663630
unstar this property registered interest false remove filter
star this property date less than 2023-10-13more like thismore than 2023-10-13
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Epilepsy: Health Services more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help support people living with epilepsy. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 201484 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2023-10-19more like thismore than 2023-10-19
star this property answer text <p>The majority of health services for people with epilepsy are commissioned locally by integrated care boards (ICBs). ICBs are best placed to make decisions regarding the provision of health services to their local population, including for the treatment of epilepsy, subject to local prioritisation and funding.</p><p>At a national level, there are several initiatives supporting service improvement for those with epilepsy, including NHS England’s Neuroscience Service Transformation Programme and RightCare Epilepsy Toolkit.</p> more like this
star this property answering member constituency Colchester more like this
star this property answering member printed Will Quince more like this
star this property question first answered
less than 2023-10-19T16:16:01.423Zmore like thismore than 2023-10-19T16:16:01.423Z
star this property answering member
4423
star this property label Biography information for Will Quince more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this
1663631
unstar this property registered interest false remove filter
star this property date less than 2023-10-13more like thismore than 2023-10-13
star this property answering body
Department of Health and Social Care remove filter
star this property answering dept id 17 more like this
unstar this property answering dept short name Health and Social Care more like this
star this property answering dept sort name Health and Social Care more like this
unstar this property hansard heading Drugs: Patients more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help manage the (a) affordability and (b) value for money in the cost of medicines purchased by patients. more like this
star this property tabling member constituency York Outer remove filter
star this property tabling member printed
Julian Sturdy more like this
star this property uin 201485 more like this
star this property answer
answer
star this property is ministerial correction false more like this
star this property date of answer less than 2023-10-19more like thismore than 2023-10-19
star this property answer text <p>The Department has no role in the costs of medicines purchased in the private sector.</p> more like this
star this property answering member constituency Colchester more like this
star this property answering member printed Will Quince more like this
star this property question first answered
less than 2023-10-19T14:42:20.233Zmore like thismore than 2023-10-19T14:42:20.233Z
star this property answering member
4423
star this property label Biography information for Will Quince more like this
star this property tabling member
4079
unstar this property label Biography information for Julian Sturdy more like this