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1137944

	registered interest
	date	09/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Data Protection: USA
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what plans they have to design a new, improved data privacy shield that takes on board concerns about the current EU–United States Privacy Shield before negotiating a trade deal with the government of the United States after Brexit, so that it safeguards individuals as well as providing for the promotion of the UK’s life science and technology sectors.
	tabling member printed	Lord Freyberg
	uin	HL17043
	answer	answer is ministerial correction date of answer 23/07/2019 answer text <p>The Government has committed to maintaining a high level of data protection standards, which are set out in the Data Protection Act 2018.</p><p>These safeguards allow the public to have trust in how and why their data is used and it is important that we maintain them. Access and use of data should always be done lawfully, safely and securely. We reiterate that National Health Service data must always be held securely, with appropriate and strong privacy and cyber-security protections.</p><p>As the United Kingdom leaves the European Union we have made arrangements with the United States that will ensure that in both ‘deal’ and ‘no deal’ scenarios, transfers of personal data from the UK to US Privacy Shield participant organisations can continue to be made under the Privacy Shield Framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17044 question first answered 23/07/2019 15:33:07 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1137945

	registered interest
	date	09/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Health Services and Social Services: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what plans they have to explore the scope to design a dedicated privacy shield confined to health and care data before negotiating a trade deal with the government of the United States after Brexit.
	tabling member printed	Lord Freyberg
	uin	HL17044
	answer	answer is ministerial correction date of answer 23/07/2019 answer text <p>The Government has committed to maintaining a high level of data protection standards, which are set out in the Data Protection Act 2018.</p><p>These safeguards allow the public to have trust in how and why their data is used and it is important that we maintain them. Access and use of data should always be done lawfully, safely and securely. We reiterate that National Health Service data must always be held securely, with appropriate and strong privacy and cyber-security protections.</p><p>As the United Kingdom leaves the European Union we have made arrangements with the United States that will ensure that in both ‘deal’ and ‘no deal’ scenarios, transfers of personal data from the UK to US Privacy Shield participant organisations can continue to be made under the Privacy Shield Framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17043 question first answered 23/07/2019 15:33:07 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1139561

	registered interest
	date	16/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medicine: Research
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what assessment they have made of the amount of research and development funding required by organisations involved in (1) health research, and (2) data-driven health research, in the UK.
	tabling member printed	Lord Freyberg
	uin	HL17208
	answer	answer is ministerial correction date of answer 25/07/2019 answer text <p>The Department’s National Institute for Health Research (NIHR) budget for 2019/20 is just over £1 billion and welcomes funding applications for research into any aspect of human health. The NIHR funds research projects, training and research infrastructure. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p><p>The NIHR also is a co-funder of Health Data Research UK who are committed to uniting the United Kingdom’s health data to enable discoveries and ensure that every health and care interaction and research endeavour will be enhanced by access to large scale data and advanced analytics. The NIHR also supports a number of initiatives to help researchers to access health data, samples and to identify participants for research.</p><p>The future of budgets outside of the NHS England resource settlement, including capital budgets for research and development, will be confirmed later this year at the Spending Review 2019.</p><p> </p> answering member printed Baroness Blackwood of North Oxford question first answered 25/07/2019 11:15:13 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1141914

	registered interest
	date	24/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medical Records: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, published on 15 July, what is meant by "fair terms" for (1) NHS organisations, and (2) the NHS as a whole.
	tabling member printed	Lord Freyberg
	uin	HL17458
	answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17459 HL17460 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1141915

	registered interest
	date	24/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medical Records: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, which organisation or body will hold to account the boards of NHS organisations in ensuring that "any arrangements entered into by their organisation are fair, including recognising and safeguarding the value of the data that is shared and the resources which are generated as a result of the arrangement”.
	tabling member printed	Lord Freyberg
	uin	HL17459
	answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17458 HL17460 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1141916

	registered interest
	date	24/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medical Records: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, whether, in referring to NHS organisations, national NHS organisations, pertinent departments and arms-length bodies are required not to enter into “exclusive arrangements for raw data held by them”.
	tabling member printed	Lord Freyberg
	uin	HL17460
	answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17458 HL17459 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1145225

	registered interest
	date	05/09/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Department of Health and Social Care: Databases
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government how many reports have been commissioned in the last three years on the value or curation of data controlled or generated by (1) the National Health Service, (2) the Department of Health and Social Care, and (3) arms-length bodies of that department; which departments commissioned those reports; when those reports were completed or are due to be completed; which organisations produced those reports; what was the cost of each of those reports; what are the titles of those reports; and whether those reports are in the public domain.
	tabling member printed	Lord Freyberg
	uin	HL17752
	answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The information is not held centrally and could only be obtained at disproportionate cost.</p> answering member printed Baroness Blackwood of North Oxford question first answered 09/09/2019 16:55:40 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1200284

	registered interest
	date	03/06/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Coronavirus: Equality
	house id	2
	legislature	25277 pref label House of Lords
	question text	Her Majesty's Government, further to the Summary of Impacts: Coronavirus Bill, published on 19 March, when they will publish the equalities assessment undertaken as part of the Public Sector Equalities Duty.
	tabling member printed	Lord Freyberg
	uin	HL5182
	answer	answer is ministerial correction date of answer 30/06/2020 answer text <p>The duty to have regard to the impact on equalities is an ongoing one.</p><p>The Government’s commitment to transparency and accountability is reflected in the duties set out in the Coronavirus Act 2020 to publish a status report every two months; carry out a review every six months with a debate and vote in the House of Commons; and publish a status report for debate in both Houses after one year.</p><p>We are considering how best to update Parliament on the equalities impact of the legislation as part of this broader commitment.</p> answering member printed Lord Bethell question first answered 30/06/2020 15:32:12 answering member 4708 label Biography information for Lord Bethell
	tabling member	2593 label Biography information for Lord Freyberg

1218109

	registered interest
	date	25/06/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Technology: Coronavirus
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what plans they have to competitively tender for future technology products and services that were commissioned during the first stage of the COVID-19 pandemic.
	tabling member printed	Lord Freyberg
	uin	HL6152
	answer	answer is ministerial correction date of answer 20/07/2020 answer text <p>The Department and its agencies have always secured digital and technology products and services in accordance with the requirements of United Kingdom procurement laws and will continue to do so; in responding quickly to the COVID-19 pandemic, it has made direct awards where permitted under regulation 32 of the Public Contracts Regulations 2015.</p> answering member printed Lord Bethell question first answered 20/07/2020 14:42:14 answering member 4708 label Biography information for Lord Bethell
	tabling member	2593 label Biography information for Lord Freyberg

1218110

	registered interest
	date	25/06/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	NHS: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what plans they have to consult key stakeholders and external experts on future Data Protection Impact Assessments for the management, storage and handling of NHS controlled data.
	tabling member printed	Lord Freyberg
	uin	HL6153
	answer	answer is ministerial correction date of answer 30/07/2020 answer text <p>Under the General Data Protection Regulations 2016, data controllers are under a legal obligation to complete Data Protection Impact Assessments (DPIAs) particularly where it involves high risk processing. All National Health Service organisations processing patient data as data controllers are therefore required to complete DPIAs and where necessary, to consult with key stakeholders to ensure risks to privacy are identified and mitigated as far as possible.</p><p>A DPIA for the NHS COVID-19 Data Store has been completed and is published on the NHS England website. The data held in the Data Store has gone through a process of pseudonymisation. Identifiable data is not held or made available to users and nor are they permitted to remove the data from the controlled area.</p> answering member printed Lord Bethell question first answered 30/07/2020 12:27:18 answering member 4708 label Biography information for Lord Bethell
	tabling member	2593 label Biography information for Lord Freyberg