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1125596

registered interest
date	09/05/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Royal College of Obstetricians and Gynaecologists
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what structures and procedures are in place to (a) monitor and (b) assess the effectiveness of the work of the Royal College of Obstetricians and Gynaecologists.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	252526
answer	answer is ministerial correction date of answer 16/05/2019 answer text <p>The Royal College of Obstetricians and Gynaecologists (RCOG) is a professional membership association, independent of government, working to improve health care for women both in the United Kingdom and worldwide.</p><p>The College is governed by a Royal Charter, from which are derived the College Regulations. These guide the governance, management and business arrangements of the College.</p><p>The RCOG is a registered charity in England and Wales and is subject to charity law. The Charity Commission is the independent regulator of charities.</p> answering member constituency Wimbledon answering member printed Stephen Hammond question first answered 16/05/2019 11:46:05 answering member 1585 label Biography information for Stephen Hammond
tabling member	3958 label Biography information for Fiona Bruce

1088682

registered interest
date	14/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Health: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure and monitor that women have full information about the screening available in the public and private sectors and the conditions being screened for, before they embark on the screening pathway.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	232550
answer	answer is ministerial correction date of answer 21/03/2019 answer text <p>When inviting women to participate in young person and adult screening, National Health Service screening programmes send a letter of invitation with information about why screening is being offered and the benefits and risks of the offer, to enable individuals to make a personal informed choice.</p><p> </p><p>In the antenatal period, general practitioners (GPs) provide expectant mothers with the ‘Screening for you and your baby’ booklet, which explains the screening tests offered during and after pregnancy and the GP will discuss each screening offer at subsequent appointments. This booklet is available to view at the following link:</p><p> </p><p><a href="https://www.gov.uk/government/publications/screening-tests-for-you-and-your-baby-description-in-brief" target="_blank">https://www.gov.uk/government/publications/screening-tests-for-you-and-your-baby-description-in-brief</a></p><p> </p><p>It is important that women who wish to participate in screening engage in screening programmes that are recommended by the United Kingdom National Screening Committee (UK NSC), allowing women to make personal informed choices at each step of the screening pathway. The UK NSC helps provide women who wish to engage in private screening with information and has written a blog to help individuals think about the outcomes before engaging in private screening. The blog is available to view at the following link:</p><p> </p><p><a href="https://phescreening.blog.gov.uk/2018/03/02/a-reminder-about-private-screening-and-a-last-opportunity-to-order-leaflets-about-it/" target="_blank">https://phescreening.blog.gov.uk/2018/03/02/a-reminder-about-private-screening-and-a-last-opportunity-to-order-leaflets-about-it/</a></p> answering member constituency Winchester answering member printed Steve Brine question first answered 21/03/2019 17:10:05 answering member 4067 label Biography information for Steve Brine
tabling member	3958 label Biography information for Fiona Bruce

1087267

registered interest
date	12/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Down's Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 18 February 2018 to Question 217546, on Down's Syndrome, what plans she has to address the effect of her Department's description of Down's Syndrome as an abnormality on (a) people with Down's Syndrome who read or hear that description and (b) familities who read or hear that description of a member of their family either before or after birth.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	231430
answer	answer is ministerial correction date of answer 20/03/2019 answer text <p>NHS Fetal Anomaly Screening Programme offers screening to all eligible pregnant women in England to check the baby for 12 fetal anomalies which include Down’s, Edwards’ and Patau’s syndromes. Fetal anomalies are described as structural abnormalities of the developing fetus.</p><p> </p><p>The characteristics, causes and complications of Down’s Syndrome are described on NHS.UK and there is additional information on the support available to families expecting, or who have had a baby with Down’s Syndrome.</p><p> </p><p>Public Health England provides a Fetal Anomaly Screening Programme Handbook which offers practical guidance to support healthcare professionals in the operational delivery of the screening pathway. NHS England encourages clinical staff to refer to these sources of information when explaining Down’s Syndrome to families.</p><p> </p><p>NHS Fetal Anomaly Screening Programme requires that there is equal access to uniform and quality-assured screening across England, and women are provided with high quality information so they can make an personal informed choice about their screening and pregnancy options. Education and training resources are available for staff covering all stages of the process, from informing women of test availability, through to understanding and supporting their decisions.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 20/03/2019 16:22:26 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1087268

registered interest
date	12/03/2019
answering body	Women and Equalities
answering dept id	31
answering dept short name	Women and Equalities
answering dept sort name	Women and Equalities
hansard heading	Down's Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Minister for Women and Equalities, following the Answer to 18 February 2019 to Question 217546 on Down's Syndrome: Abortion, what steps the Government Equalities Office is taking to ensure that women have a complete picture of all the options available to them.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	231431
answer	answer is ministerial correction date of answer 18/03/2019 answer text <p>The Government Equality Office does not provide advice on sexual and reproductive rights and options, which is a matter for the Department of Health and Social Care.</p> answering member constituency Louth and Horncastle answering member printed Victoria Atkins question first answered 18/03/2019 17:55:53 answering member 4399 label Biography information for Victoria Atkins
tabling member	3958 label Biography information for Fiona Bruce

1087269

registered interest
date	12/03/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Down's Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions what research her Department has conducted on life for people with Down's Syndrome in the 21st century.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	231432
answer	answer is ministerial correction date of answer 19/03/2019 answer text <p>This department undertakes research into people’s experience of support into work schemes, including the experiences of disabled people. The Department has not conducted or commissioned research on life experiences for people with Down’s Syndrome in the 21<sup>st</sup> Century.</p><p> </p><p>Equal rights for disabled people, including people with Down’s Syndrome, are provided for under the reasonable adjustments provisions in the Equality Act and the Public Sector Equality duty. Each Government Department and public authority is under a duty to make adequate provision for disabled people including people with Down’s Syndrome.</p><p> </p><p>Disability in the UK is mainstreamed. This means that every department is ultimately responsible for considering disability in the development and implementation of its policies and services.</p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 19/03/2019 14:57:51 answering member 4105 label Biography information for Justin Tomlinson
tabling member	3958 label Biography information for Fiona Bruce

1087271

registered interest
date	12/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Pregnancy: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 18 February 2019 to Question 217546, on Down's Syndrome, what research his Department has conducted on the effect of screening for (a) sickle cell anaemia and (b) gene-linked deafness on people and families who live with those conditions.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	231433
answer	answer is ministerial correction date of answer 20/03/2019 answer text <p>Since 2010, the National Institute for Health Research has funded three studies which provide evidence on the effects of screening for sickle cell anaemia and deafness on individuals and families who live with these conditions:</p><p>- “Involving fathers in ante-natal screening for sickle cell disorders: improving informed decision making”, which explored fathers’ attitudes and perceptions of the ante-natal testing for sickle cell disorders, identifying potential factors which influence uptake of testing to improve take-up;</p><p>- “Rethinking Strategies for Positive Newborn Screening Result Delivery (ReSPoND): a process evaluation of co-designing interventions to minimise impact on parental emotional well-being and stress”. This project is active and aims to bring parents and health professionals together to co-design interventions to facilitate effective communication of positive results to parents by health professionals to minimise any long-term negative health and psychological consequences; and</p><p>- “The diagnostic accuracy of hearing tests and cost-effectiveness of school entry hearing screening programmes”, which asked about the impact for children, and their families, who do not “pass” the screen and are then confirmed to have a hearing loss (true positives) or not (false positives); and the impact for a child who does “pass” the screen but is later found to have a hearing loss.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 20/03/2019 14:41:52 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	3958 label Biography information for Fiona Bruce

1055868

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Abortion
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, for what reason NICE in developing its guidelines on termination of pregnancy has not included an assessment of the physical, emotional and economic effect of premature births and their correlation with previous abortions.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217542
answer	answer is ministerial correction date of answer 14/02/2019 answer text <p>The Department referred the topic of termination of pregnancy to the National Institute for Health and Care Excellence (NICE) for the development of a guideline on service delivery of termination of pregnancy. NICE, as part of the planning for this guideline explored the views of stakeholders on what would be most useful to focus on through a workshop, meetings and through a scope consultation. The final scope of the termination of pregnancy guideline was based on the input that NICE received from the stakeholders that engaged with NICE.</p><p> </p><p>The scope of the termination of pregnancy guideline clearly sets out that the NICE guideline is for women who have already decided to have a termination of pregnancy or have undergone a life-saving termination of pregnancy.</p><p> </p><p>NICE is looking at the evidence for common harms such as, haemorrhage and infection where there may be evidence of a difference in long-term outcomes. NICE will also be considering what information women who have requested a termination of pregnancy be given before they have the procedure if the legal grounds are met.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price grouped question UIN 217543 question first answered 14/02/2019 12:06:28 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055869

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Abortion
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, for what reason NICE has omitted from its new guidance on termination of pregnancy an assessment of the the long-term effect of abortion on the (a) mortality, (b) future premature births, (c) infertility, (d) mental illness and (e) other health issues of women (i) under 25 and (ii) of other ages.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217543
answer	answer is ministerial correction date of answer 14/02/2019 answer text <p>The Department referred the topic of termination of pregnancy to the National Institute for Health and Care Excellence (NICE) for the development of a guideline on service delivery of termination of pregnancy. NICE, as part of the planning for this guideline explored the views of stakeholders on what would be most useful to focus on through a workshop, meetings and through a scope consultation. The final scope of the termination of pregnancy guideline was based on the input that NICE received from the stakeholders that engaged with NICE.</p><p> </p><p>The scope of the termination of pregnancy guideline clearly sets out that the NICE guideline is for women who have already decided to have a termination of pregnancy or have undergone a life-saving termination of pregnancy.</p><p> </p><p>NICE is looking at the evidence for common harms such as, haemorrhage and infection where there may be evidence of a difference in long-term outcomes. NICE will also be considering what information women who have requested a termination of pregnancy be given before they have the procedure if the legal grounds are met.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price grouped question UIN 217542 question first answered 14/02/2019 12:06:28 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055870

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Spina Bifida: Surgery
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether painkiller will be administered to unborn babies with spina bifida who undergo spinal surgery; and at what age those unborn babies will undergo that surgery.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217544
answer	answer is ministerial correction date of answer 14/02/2019 answer text <p>Spinal surgery for spina bifida for babies in the womb is among new, innovative treatments that will be routinely available on the National Health Service for the first time.</p><p> </p><p>The procedure for unborn children with spina bifida, whose spine and spinal cord do not develop properly, allows pregnant women to be treated closer to home and their families.</p><p> </p><p>Pain relief for the unborn baby will be delivered intra-operatively. This is administered before the fetal surgery, after the uterus is opened. The fetus will be monitored during the procedure by ultrasound to check the fetal heart rate. The surgery takes place between 20 and 26 weeks of gestation.</p><p> </p><p>This proposed new treatment was independently assessed for its clinical benefit and cost by the Clinical Priorities Advisory Group comprising doctors, health experts and patient representatives.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 14/02/2019 12:08:12 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055872

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Abortion
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what research his Department has commissioned in the last five years into the long-term effect of abortion on (a) future miscarriages, (b) premature births, (c) suicide and (d) other health issues among women (i) under 25 and (ii) of other ages.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217545
answer	answer is ministerial correction date of answer 14/02/2019 answer text <p>The Department funds research on health and social care through the National Institute for Health Research. The Department has not commissioned any such studies directly concerned with the long-term effects of abortion. However, a study currently underway, aims to provide the research and practical evidence base to deliver quality improvement in preconception care, to prevent unplanned pregnancies and abortion, and to mitigate the adverse impacts of unplanned pregnancies. This study is due to report in December 2021.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 14/02/2019 12:07:16 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce