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<p>The role of the Rare Diseases Advisory Group (RDAG) is to make recommendations
to the Clinical Priorities Advisory Group on which highly specialised services or
technologies should be prioritised for investment; this includes services or technologies
already commissioned and services and technologies that have not previously been commissioned.</p><p>
</p><p>The terms of reference for RDAG set out that the committee, in undertaking
its functions:</p><p> </p><p>- formulates its advice by calling on sources of sound
evidence from outside the National Health Service, such as professional bodies, and
recommends the commissioning of external assessment as necessary;</p><p> </p><p>-
improves the effectiveness and transparency of its recommendations, by ensuring input
from a wide range of clinical, commissioning and finance experts, as well as patients/carers
and lay members; and by using a consistent decision-making process to develop recommendations;</p><p>
</p><p>- streamlines the decision-making process by combining different sources of
advice and by reducing the number of endorsement tiers required before the final decision;
and</p><p> </p><p>- undertakes economic evaluation of proposals for services for rare
diseases as necessary.</p>
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