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registered interest false more like this
date less than 2015-09-04more like thismore than 2015-09-04
answering body
Department of Health more like this
answering dept id 17 remove filter
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Huntington's Disease more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, if he will establish a cross-government Huntington's Disease strategy. more like this
tabling member constituency Plymouth, Sutton and Devonport more like this
tabling member printed
Oliver Colvile more like this
uin 8801 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2015-09-14more like thismore than 2015-09-14
answer text <p>There were less than six admissions with a primary diagnosis of Huntingdon’s Disease for Plymouth Hospitals NHS Trust in the year 2013-14; this is not a count of people as the same person may have had more than one admission episode within the same time period. This does not include any cases there may have been with independent providers.</p><p> </p><p> </p><p> </p><p>The Department published a UK Strategy for Rare Diseases in 2013 and established the UK Rare Disease Forum to monitor the progress against the UK Strategy. The UK Rare Disease Forum is due to report on the progress made against the recommendations made in the UK Strategy in 2016.</p><p> </p><p> </p><p> </p><p>Patients with Huntington's disease already have access to a range of NHS services including those provided by general practitioners and associated health professionals, neurology services, occupational therapists, speech and language therapists, local mental health services and palliative care where appropriate.</p><p> </p><p> </p><p> </p><p>Patients with Huntington’s disease will benefit from the implementation of the UK Rare Disease Strategy that will lead to further improvements in the diagnostic pathway for this condition.</p><p> </p><p> </p><p> </p>
answering member constituency Mid Norfolk more like this
answering member printed George Freeman more like this
grouped question UIN 8515 more like this
question first answered
less than 2015-09-14T15:31:00.407Zmore like thismore than 2015-09-14T15:31:00.407Z
answering member
4020
label Biography information for George Freeman more like this
tabling member
4022
label Biography information for Oliver Colvile more like this