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question first answered	2019-02-12T15:49:07.43Z
answering body	Department of Health and Social Care
tabling member constituency	Leeds North West
min ddp created	2018-05-01T20:03:48.807Z
max date	2019-07-18

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registered interest

date

exactly:

or between:
and

answering body

answering dept id

answering dept short name

answering dept sort name

hansard heading

house id

legislature


pref label

question text

tabling member constituency

tabling member printed

uin

answer

is ministerial correction

date of answer

exactly:

or between:
and

answer text

answering member constituency

answering member printed

question first answered

answering member


label

tabling member


label

1054660

registered interest

date

04/02/2019

answering body

Department of Health and Social Care

answering dept id

answering dept short name

Health and Social Care

answering dept sort name

Health and Social Care

hansard heading

Cerliponase Alfa

house id

legislature

25259

pref label	House of Commons

question text

To ask the Secretary of State for Health and Social Care, if he will hold meetings with families of children with ceroid lipofuscinosis type 2 disease on the availability of Brineura on the NHS.

tabling member constituency

Leeds North West

tabling member printed

Alex Sobel

uin

216384

answer

is ministerial correction

date of answer

12/02/2019

answer text

The Department has no plans currently. The National Institute for Health and Care Excellence is currently developing guidance on Brineura (Cerliponase alfa) for treating neuronal ceroid lipofuscinosis type 2 under the highly specialised technology programme. Further information can be found at the following link: <a href="https://www.nice.org.uk/guidance/indevelopment/gid-hst10008" target="_blank">https://www.nice.org.uk/guidance/indevelopment/gid-hst10008</a>

answering member constituency

Winchester

answering member printed

Steve Brine

question first answered

12/02/2019 15:49:07

answering member

4067

label	Biography information for Steve Brine

tabling member

4658

label	Biography information for Alex Sobel