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1054660

registered interest
date	04/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Cerliponase Alfa
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he will hold meetings with families of children with ceroid lipofuscinosis type 2 disease on the availability of Brineura on the NHS.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	216384
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>The Department has no plans currently. The National Institute for Health and Care Excellence is currently developing guidance on Brineura (Cerliponase alfa) for treating neuronal ceroid lipofuscinosis type 2 under the highly specialised technology programme. Further information can be found at the following link:</p><p> </p><p><a href="https://www.nice.org.uk/guidance/indevelopment/gid-hst10008" target="_blank">https://www.nice.org.uk/guidance/indevelopment/gid-hst10008</a></p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/02/2019 15:49:07 answering member 4067 label Biography information for Steve Brine
tabling member	4658 label Biography information for Alex Sobel

1054661

registered interest
date	04/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Treatments
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what the timeframe is for NICE to publish its review of the Highly Specialised Technologies process.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	216385
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>The National Institute for Health and Care Excellence will begin reviewing the process and methods for the Highly Specialised Technology Evaluation Programme in 2019/20 with the anticipation that the publication will be achieved by the end of the 2020 calendar year.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/02/2019 15:29:54 answering member 4067 label Biography information for Steve Brine
tabling member	4658 label Biography information for Alex Sobel

1052416

registered interest
date	01/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Sleep: Young People
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the Journal of Adolescent Health's editorial article, The Role of Sleep on the Pathway to Substance Abuse in Teens, published in February 2017, if his Department will make an assessment of the implications for his policies of the findings that sleep disorders precede and are predictive of future adolescent substance abuse.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	215601
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>The Government has no current plans to carry out such an assessment. The National Institute for Health Research is funding research projects that examine drug and alcohol use in young adults and teenagers but none of these are looking at the relationship with sleep disorders.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/02/2019 11:32:24 answering member 4067 label Biography information for Steve Brine
tabling member	4658 label Biography information for Alex Sobel

1052417

registered interest
date	01/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Cannabis: Abuse
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the British Medical Journal's article, Assessment and management of cannabis use disorders in primary care, published on 1 April 2010, if his Department will make an assessment of the implications for his policies of the findings on cannabis use disorder referenced in that article.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	215602
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>The change to the law to allow access to cannabis-based products for medicinal use does not change existing rules and policies on recreational use and misuse of cannabis. The Government has no plans to legalise cannabis and the penalties for unauthorised supply and possession remain unchanged.</p><p> </p><p>Access to medicinal cannabis is strictly controlled. It must be prescribed by, or under the direction of, a specialist doctor on the Specialist Register of the General Medical Council. The specialist must consider all licensed medicines before prescribing any unlicensed cannabis-based medicine and such a prescription must be in the patient’s best interest, taking into consideration the evidence of benefit and potential for harm to that particular patient.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/02/2019 11:31:10 answering member 4067 label Biography information for Steve Brine
tabling member	4658 label Biography information for Alex Sobel

1052425

registered interest
date	01/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Pancreatic Cancer
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he will make it his policy that pancreatic cancer patients receive treatment within 20 days of diagnosis.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	215608
answer	answer is ministerial correction date of answer 07/02/2019 answer text <p>The NHS Long Term Plan published in January 2019 sets out the Government’s ambitions to see 55,000 more people surviving cancer for five years in England each year from 2028 and three quarters of all cancers detected at an early stage by 2028. To achieve these targets, we will need to make significant progress on survival across all cancers, including pancreatic cancer.</p><p> </p><p>NHS England will shortly be introducing a Faster Diagnostic Standard of 28 days for all cancer patients which, when taken together with the 62-day referral to treatment standard, will mean that all patients should expect to start their treatment within 34 days of diagnosis. This is a maximum, and trusts should continue to treat patients more quickly particularly where there is a strong clinical need.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 07/02/2019 15:20:39 answering member 4067 label Biography information for Steve Brine
tabling member	4658 label Biography information for Alex Sobel

1035320

registered interest
date	04/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Health Services: Hearing Impairment
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that NHS services are accessible for people with hearing loss.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	205415
answer	answer is ministerial correction date of answer 10/01/2019 answer text <p>It is the responsibility of local providers and commissioners of NHS services to make the reasonable adjustments required by the Equality Act 2010 to ensure that disabled people, including those with hearing impairments, are not placed at a disadvantage compared to non-disabled people.</p><p> </p><p>Additionally, under the NHS Constitution for England, National Health Service organisations are required to provide high quality comprehensive services, based on clinical need, which do not discriminate between patients on the basis of disability, including people with hearing impairments.</p><p> </p><p>In order to reduce the unacceptable variation in the provision of accessible information and communication support to disabled people, all organisations in England that provide NHS care or publicly-funded adult social care have been legally required to follow the Accessible Information Standard since 1 August 2016. This ensures that people with a disability, impairment or sensory loss are provided with information they can easily read or understand, with support, so they can communicate effectively with services. This will help ensure that they receive an improved standard of care and be more involved in how that care is delivered.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 10/01/2019 14:07:59 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4658 label Biography information for Alex Sobel

999379

registered interest
date	31/10/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Rheumatology
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential effect on (a) rheumatology healthcare professionals in the NHS and (b) the provision of treatment for people with rheumatology of the UK leaving the EU.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	186432
answer	answer is ministerial correction date of answer 07/11/2018 answer text <p>NHS Digital publishes Hospital and Community Health Services (HCHS) workforce statistics. These include staff working in hospital trusts and clinical commissioning groups (CCGs), but not staff working in primary care or in general practitioner surgeries, local authorities or other providers.</p><p> </p><p>The information in the following table shows the number of Professionally qualified clinical staff in National Health Service trusts and CCGs in England in the rheumatology specialty group and the wider rheumatology area of work by nationality group, as at 30 June each year from 2016 and the latest available data, headcount:</p><p> </p><table><tbody><tr><td><p>Year</p></td><td><p>Nationality Group</p></td><td><p>Staff in the Rheumatology speciality group and the wider Rheumatology area of work, headcount</p></td></tr><tr><td rowspan="7"><p>June 2016</p></td><td><p>All nationalities</p></td><td><p>1,972</p></td></tr><tr><td><p>Of which:</p></td><td><p> </p></td></tr><tr><td><p>United Kingdom</p></td><td><p>1,529</p></td></tr><tr><td><p>European Union</p></td><td><p>127</p></td></tr><tr><td><p>European Economic Area</p></td><td><p>2</p></td></tr><tr><td><p>Rest of the World</p></td><td><p>179</p></td></tr><tr><td><p>Unknown</p></td><td><p>137</p></td></tr><tr><td rowspan="7"><p>June 2017</p></td><td><p>All nationalities</p></td><td><p>2,076</p></td></tr><tr><td><p>Of which:</p></td><td><p> </p></td></tr><tr><td><p>United Kingdom</p></td><td><p>1,601</p></td></tr><tr><td><p>European Union</p></td><td><p>140</p></td></tr><tr><td><p>European Economic Area</p></td><td><p>1</p></td></tr><tr><td><p>Rest of the World</p></td><td><p>193</p></td></tr><tr><td><p>Unknown</p></td><td><p>143</p></td></tr><tr><td rowspan="7"><p>June 2018</p></td><td><p>All nationalities</p></td><td><p>2,097</p></td></tr><tr><td><p>Of which:</p></td><td><p> </p></td></tr><tr><td><p>United Kingdom</p></td><td><p>1,635</p></td></tr><tr><td><p>European Union</p></td><td><p>142</p></td></tr><tr><td><p>European Economic Area</p></td><td><p>0</p></td></tr><tr><td><p>Rest of the World</p></td><td><p>210</p></td></tr><tr><td><p>Unknown</p></td><td><p>111</p></td></tr><tr><td rowspan="7"><p>31 July 2018</p></td><td><p>All nationalities</p></td><td><p>2,108</p></td></tr><tr><td><p>Of which:</p></td><td><p> </p></td></tr><tr><td><p>United Kingdom</p></td><td><p>1,639</p></td></tr><tr><td><p>European Union</p></td><td><p>143</p></td></tr><tr><td><p>European Economic Area</p></td><td><p>0</p></td></tr><tr><td><p>Rest of the World</p></td><td><p>215</p></td></tr><tr><td><p>Unknown</p></td><td><p>112</p></td></tr></tbody></table><p>Source: NHS Digital Quarterly HCHS workforce statistics.</p><p> </p><p>The Department continues to monitor and analyse overall staffing levels across the NHS and we are working across Government to ensure there will continue to be sufficient staff to deliver the high-quality services on which patients rely following the United Kingdom’s exit from the European Union. This includes the provision of treatment for people with rheumatology.</p> answering member constituency North East Cambridgeshire answering member printed Stephen Barclay question first answered 07/11/2018 12:26:12 answering member 4095 label Biography information for Steve Barclay
tabling member	4658 label Biography information for Alex Sobel

983075

registered interest
date	08/10/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Stem Cells: Donors
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to encourage (a) men aged 16-30 and (b) people from black, Asian and ethnic minority backgrounds to register as stem cell donors.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	176656
answer	answer is ministerial correction date of answer 15/10/2018 answer text <p>Young people play a pivotal role in the stem cell landscape. Research has identified that younger donors offer the potential for better patient outcomes and a greater chance of survival. In 2017, 82% of people who donated their stem cells were male, and 58% were men aged 30 and under. In acknowledgement of this fact, the Department provides funding to Anthony Nolan and NHS Blood and Transplant (NHSBT) to support recruitment of young male donors.</p><p> </p><p>In 2017 69% of new potential donors recruited to the United Kingdom registry were under the age of 30, and 40% of new potential donors were male.</p><p> </p><p>The Department also funds Anthony Nolan and NHSBT to improve equity of access to unrelated donor stem cell transplantation for Black, Asian, Minority and Ethnic (BAME) patients through targeted recruitment to the Anthony Nolan and the NHS Stem Cell Registry.</p><p> </p><p>The Department has provided more than £26 million to NHSBT and Anthony Nolan for stem cell donation since 2011 and have set very specific targets about the proportion of donors that must be from BAME backgrounds; for example, in this financial year, Anthony Nolan will continue to target more than 35% of the umbilical cords stored in the UK Cord Blood Bank to be donated by mothers from BAME backgrounds.</p> answering member constituency West Suffolk answering member printed Matt Hancock question first answered 15/10/2018 11:13:01 answering member 4070 label Biography information for Matt Hancock
tabling member	4658 label Biography information for Alex Sobel

944785

registered interest
date	19/07/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Arthritis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that people with Arthritis have adequate access to (a) aids and (b) adaptations that enable them to live independently.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	166259
answer	answer is ministerial correction date of answer 24/07/2018 answer text <p>We know that aids and adaptations can greatly enhance the quality of life of older and disabled people, including those with arthritis, in addition to supporting them to be as independent as possible in their own homes.</p><p> </p><p>The Disabled Facilities Grant (DFG) supports disabled people, on low-incomes, to adapt their homes to make them safe and suitable for their needs. Funding had already increased year-on-year, rising from £220 million in 2015-16 to £431 million in 2017-18. The Autumn Budget 2017 provided an additional £42 million for the remainder of the 2017-18 financial year. The grant is £468 million in 2018-19 and funding will rise further to £505 million by 2019-20.</p><p> </p><p>An independent review of the DFG has recently completed. It assesses how the DFG is currently working, and makes evidence-based recommendations on how it could change in the future. It also considers wider adaptations issues including how the DFG might need to adapt to the changing aids and adaptations market and whether it could support the adoption of new innovations and technology, and new designs. The Department of Health and Social Care, together with the Ministry of Housing, Communities and Local Government, is carefully considering the recommendations and next steps.</p><p> </p><p>Personal health budgets are another way the National Health Service is giving people more choice and control of the services they receive. Personal health budgets can be spent on a range of things agreed as part of a care plan, including community equipment such as aids and minor adaptations.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 24/07/2018 15:32:09 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4658 label Biography information for Alex Sobel

937431

registered interest
date	09/07/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Treatments: Innovation
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what his policy priorities are in the Accelerated Access Pathway programme; and what the implications are of that programme for life-extending treatments.
tabling member constituency	Leeds North West
tabling member printed	Alex Sobel
uin	162145
answer	answer is ministerial correction date of answer 17/07/2018 answer text <p>In December 2017, the Government published the Life Sciences Sector Deal, which detailed our commitments to taking forward the ambition in the Life Sciences Industrial Strategy. This included implementing the response to the Accelerated Access Review, which sets out a plan to increase the rate of uptake of innovative products.</p><p> </p><p>In delivering this response, the Government has brought together the key Government, National Health Service and industry partners to form the Accelerated Access Collaborative (AAC) which will drive the uptake and adoption of innovation in the NHS, identifying and supporting the innovations that will be most transformative for patients.</p><p> </p><p>The AAC will oversee the Accelerated Access Pathway, streamlining regulatory and market access decisions, and providing additional support to increase uptake of the most transformative innovations.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 17/07/2018 11:34:46 answering member 4067 label Biography information for Steve Brine
tabling member	4658 label Biography information for Alex Sobel