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1056690

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Multiple Sclerosis: Stem Cells
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, why my constituent’s stem cell treatment for MS has been halted due to NHS England’s decision to no longer allow GPs to refer patients for the treatment.
tabling member constituency	West Lancashire
tabling member printed	Rosie Cooper
uin	218236
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>NHS England first published its commissioning policy in 2013, revised in 2015, which permits access to autologous haematopoietic stem cell transplant (HSCT) as a clinical option for some patients with multiple sclerosis (MS). The commissioning policy is available at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/01/b04-haematp-stem-cll-transplt.pdf" target="_blank">https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/01/b04-haematp-stem-cll-transplt.pdf</a></p><p> </p><p>As with any HSCT there are risks to the procedure and when considering this treatment for patients with MS the balance of risk and benefit must be carefully assessed for each patient. Neurologists and transplant doctors in the United Kingdom are guided by the recommendations of the European Society for Blood and Marrow Transplantation, published in 2012, and the guidance of the British Society of Blood and Marrow Transplantation when considering the suitability of transplant. These criteria restrict the use of autologous HSCT to a small group of MS patients with high levels of inflammatory activity despite one or more approved disease modifying therapies and very rare patients with 'malignant' forms of MS. Patients should be assessed by both MS and transplant specialists.</p><p> </p><p>Neurologist and transplant doctors should be guided by these recommendations and decisions related to a patient’s care are a matter for clinicians.</p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 218237 218238 question first answered 12/02/2019 16:26:03 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1538 label Biography information for Rosie Cooper

1056691

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Multiple Sclerosis: Stem Cells
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, for what reason Ms Helen Townsend’s Stem Cell treatment for MS was halted part way through as a result of NHS England's decision that GPs can longer refer people for the treatment and that patients must now be referred by a MS Neurology Specialist.
tabling member constituency	West Lancashire
tabling member printed	Rosie Cooper
uin	218237
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>NHS England first published its commissioning policy in 2013, revised in 2015, which permits access to autologous haematopoietic stem cell transplant (HSCT) as a clinical option for some patients with multiple sclerosis (MS). The commissioning policy is available at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/01/b04-haematp-stem-cll-transplt.pdf" target="_blank">https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/01/b04-haematp-stem-cll-transplt.pdf</a></p><p> </p><p>As with any HSCT there are risks to the procedure and when considering this treatment for patients with MS the balance of risk and benefit must be carefully assessed for each patient. Neurologists and transplant doctors in the United Kingdom are guided by the recommendations of the European Society for Blood and Marrow Transplantation, published in 2012, and the guidance of the British Society of Blood and Marrow Transplantation when considering the suitability of transplant. These criteria restrict the use of autologous HSCT to a small group of MS patients with high levels of inflammatory activity despite one or more approved disease modifying therapies and very rare patients with 'malignant' forms of MS. Patients should be assessed by both MS and transplant specialists.</p><p> </p><p>Neurologist and transplant doctors should be guided by these recommendations and decisions related to a patient’s care are a matter for clinicians.</p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 218236 218238 question first answered 12/02/2019 16:26:03 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1538 label Biography information for Rosie Cooper

1056692

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Multiple Sclerosis: Stem Cells
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he will make an assessment of the effect of NHS England’s decision not to allow GPs to refer patients for Stem Cell treatment for MS on (a) patient health and (b) West Lancashire constituent Ms Townsend's (i) halted treatment and (b) recovery.
tabling member constituency	West Lancashire
tabling member printed	Rosie Cooper
uin	218238
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>NHS England first published its commissioning policy in 2013, revised in 2015, which permits access to autologous haematopoietic stem cell transplant (HSCT) as a clinical option for some patients with multiple sclerosis (MS). The commissioning policy is available at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/01/b04-haematp-stem-cll-transplt.pdf" target="_blank">https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/01/b04-haematp-stem-cll-transplt.pdf</a></p><p> </p><p>As with any HSCT there are risks to the procedure and when considering this treatment for patients with MS the balance of risk and benefit must be carefully assessed for each patient. Neurologists and transplant doctors in the United Kingdom are guided by the recommendations of the European Society for Blood and Marrow Transplantation, published in 2012, and the guidance of the British Society of Blood and Marrow Transplantation when considering the suitability of transplant. These criteria restrict the use of autologous HSCT to a small group of MS patients with high levels of inflammatory activity despite one or more approved disease modifying therapies and very rare patients with 'malignant' forms of MS. Patients should be assessed by both MS and transplant specialists.</p><p> </p><p>Neurologist and transplant doctors should be guided by these recommendations and decisions related to a patient’s care are a matter for clinicians.</p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 218236 218237 question first answered 12/02/2019 16:26:03 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1538 label Biography information for Rosie Cooper

1056732

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Lumacaftor/ivacaftor
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what progress his Department has made on securing the availability of Orkambi on the NHS for patients with cystic fibrosis.
tabling member constituency	Sheffield, Brightside and Hillsborough
tabling member printed	Gill Furniss
uin	218344
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>The National Institute for Health and Care Excellence (NICE) and NHS England are leading the dialogue with Vertex Pharmaceuticals around access to their portfolio of cystic fibrosis medicines. It is critical that Vertex now re-engages fully with the NICE appraisal process and gives serious consideration to the portfolio deal offer that NHS England made at the end of July. This deal would provide immediate access for patients to all Vertex licensed medicines and future pipeline products once licensed and in advance of the individual NICE appraisals concluding.</p><p> </p><p>The Government fully supports the approach that NICE and NHS England are adopting. It is crucial that patients have access to the most effective and innovative medicines at a price that represents value to the National Health Service.</p><p> </p><p>NHS England has proposed its best offer ever for a drug. This offer, in the region of £500 million over five years, is the largest ever commitment of its kind in the 70-year history of the NHS and would guarantee immediate and expanded access to both Orkambi and the drug Kalydeco for patients who need it. Whilst it is disappointing that Vertex has not taken up NHS England’s offer, we are encouraged that there is continued dialogue between all parties.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/02/2019 15:33:24 answering member 4067 label Biography information for Steve Brine
tabling member	4571 label Biography information for Gill Furniss

1056733

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Cystic Fibrosis: Medical Treatments
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure the NHS is able to offer all treatment options for patients with cystic fibrosis.
tabling member constituency	Sheffield, Brightside and Hillsborough
tabling member printed	Gill Furniss
uin	218345
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>Specialised services for the support and treatment of patients with cystic fibrosis (CF) are commissioned nationally by NHS England. CF services are delivered in about 20 Paediatric Cystic Fibrosis Centres and about 20 Adult Cystic Fibrosis Centres. There are separate service specifications for adults and children. These specifications are important in clearly defining what NHS England expects to be in place for providers to offer evidence-based, safe and effective care and treatment. The support equity of access to a nationally consistent, high quality service.</p><p> </p><p>The specifications can be found via the following links:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2018/08/Cystic-fibrosis-adult.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2018/08/Cystic-fibrosis-adult.pdf</a></p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2018/07/a01Sb-spec-cystic-fibrosis-child.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2018/07/a01Sb-spec-cystic-fibrosis-child.pdf</a></p><p> </p><p>In October 2017, the National Institute for Health and Care Excellence (NICE) published new guidance for the diagnosis and management of CF. This includes specific details on how to monitor the condition and manage the symptoms to improve quality of life. This guidance can be found via the following link:</p><p> </p><p><a href="http://www.nice.org.uk/guidance/ng78" target="_blank">www.nice.org.uk/guidance/ng78</a></p><p> </p><p>NICE is the organisation responsible for assessing the clinical and cost effectiveness of medicines for the National Health Service.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/02/2019 15:53:01 answering member 4067 label Biography information for Steve Brine
tabling member	4571 label Biography information for Gill Furniss

1056765

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Dental Services: Fees and Charges
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the press release entitled, Dentists welcome official investigation into fines hitting vulnerable NHS patients, published on 30 January 2019 by the British Dental Association; what steps his Department is taking to ensure that fear of receiving a fine for ticking the wrong box when claiming for free dental care does not discourage people from low income families from attending the dentist.
tabling member constituency	Barnsley Central
tabling member printed	Dan Jarvis
uin	218312
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>All National Health Service dental practices are required to display a poster showing patient charges and to offer patients a free leaflet which sets out in detail who is entitled to free NHS dental services. Information on exemptions and support for people who are on a low income can also be found at the following link:</p><p> </p><p><a href="http://www.nhs.uk/healthcosts" target="_blank">www.nhs.uk/healthcosts</a></p><p> </p><p>Eligibility checks are carried out on claims received for exemption from NHS Dental Patient Charges. Where eligibility cannot be verified, patients are asked to confirm their eligibility or to pay the relevant dental charge plus a penalty charge. Patients are, however, able to challenge penalty charges they believe are unjustified.</p><p> </p><p>The Department, NHS Business Services Authority and NHS England have recognised the concern that some patients may not be clear on whether they are exempt from charges and has been working to further improve the information available to patients around eligibility. This includes promoting an easy read patient information booklet, creating an online eligibility checker and developing a national awareness campaign.</p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 218313 question first answered 12/02/2019 15:25:29 answering member 4067 label Biography information for Steve Brine
tabling member	4243 label Biography information for Dan Jarvis

1056768

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Dental Services: Fees and Charges
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the announcement entitled Dentists welcome official investigation into fines hitting vulnerable NHS patients, published by the British Dental Association on 30 January 2019, what steps his Department is taking to ensure that patients ticking the wrong box for free dental care does not negatively affect vulnerable patients.
tabling member constituency	Barnsley Central
tabling member printed	Dan Jarvis
uin	218313
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>All National Health Service dental practices are required to display a poster showing patient charges and to offer patients a free leaflet which sets out in detail who is entitled to free NHS dental services. Information on exemptions and support for people who are on a low income can also be found at the following link:</p><p> </p><p><a href="http://www.nhs.uk/healthcosts" target="_blank">www.nhs.uk/healthcosts</a></p><p> </p><p>Eligibility checks are carried out on claims received for exemption from NHS Dental Patient Charges. Where eligibility cannot be verified, patients are asked to confirm their eligibility or to pay the relevant dental charge plus a penalty charge. Patients are, however, able to challenge penalty charges they believe are unjustified.</p><p> </p><p>The Department, NHS Business Services Authority and NHS England have recognised the concern that some patients may not be clear on whether they are exempt from charges and has been working to further improve the information available to patients around eligibility. This includes promoting an easy read patient information booklet, creating an online eligibility checker and developing a national awareness campaign.</p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 218312 question first answered 12/02/2019 15:25:29 answering member 4067 label Biography information for Steve Brine
tabling member	4243 label Biography information for Dan Jarvis

1056784

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Brain: Injuries
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to reduce waiting times for children who have suffered brain injuries.
tabling member constituency	Barnsley Central
tabling member printed	Dan Jarvis
uin	218315
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>There is variation nationally in the length of time some children and young people wait for paediatric neurorehabilitation services and further data is required to fully understand and address this. NHS England’s Women and Children’s Programme of Care Board and the Paediatric Neuroscience Clinical Reference Group are leading on work to gather the data and will report back to the Women and Children’s Programme of Care Board in spring 2019.</p><p> </p><p>The NHS Long Term Plan identified children and young people’s (CYP) services as a priority and commits to a reduction in serious brain injury of 50% by 2025. We know that early intervention for CYP with a brain injury leads to improved outcomes, with United Kingdom paediatric neurorehabilitation networks and teams playing an important role.</p><p> </p><p>To ensure there is funding to support this, the Government is providing an extra £20.5 billion a year to the National Health Service by 2023/24, £33.9 billion in cash terms, – supporting commitments in the Long Term Plan to reduce long waits for life-changing treatment. The additional funding will drive the reforms that deliver a better and more sustainable NHS with improved care for patients.</p> answering member constituency Wimbledon answering member printed Stephen Hammond question first answered 12/02/2019 15:18:22 answering member 1585 label Biography information for Stephen Hammond
tabling member	4243 label Biography information for Dan Jarvis

1056860

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Cancer: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the NHS Long Term Plan, what plans the Government has to support cancer alliances to change their footprints to align with sustainability and transformation plans.
tabling member constituency	Kingston upon Hull North
tabling member printed	Diana Johnson
uin	218234
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>The vast majority of Cancer Alliances are already coterminous with one or more sustainability and transformation plans/integrated care systems (STP/ICSs). The NHS Cancer Programme is working closely with regional and Cancer Alliance colleagues in the few areas where STP/ICS are not yet coterminous to assess where boundaries need to change to meet this requirement, to ensure footprints align with cancer patient flows, optimise use of capacity and resources across Alliance geographies and support robust governance.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/02/2019 15:28:22 answering member 4067 label Biography information for Steve Brine
tabling member	1533 label Biography information for Dame Diana Johnson

1056868

registered interest
date	07/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Alcoholic Drinks: Misuse
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the effect of the reduction to the public health budget on the number of patients admitted to hospital because of alcohol-related diseases and injuries.
tabling member constituency	Liverpool, Wavertree
tabling member printed	Luciana Berger
uin	218297
answer	answer is ministerial correction date of answer 12/02/2019 answer text <p>Local authorities (LAs) will receive over £3 billion in 2019/20, ring-fenced exclusively for use on public health. It is for LAs themselves to determine how best to use these resources based on their assessment of local need and with regard to their statutory duties. Regulations require all LAs to provide an open-access sexual health service, and a condition attached to the grant requires them to use it with regard to the need to improve their substance misuse services.</p><p> </p><p>Public Health England monitors and publishes data for every LA on a wide range of indicators of public health, and most are stable or improving. Last year 98% of adults accessed drug treatment services within three weeks, and attendances at sexual health services increased by 13% between 2013 and 2017.</p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 218298 question first answered 12/02/2019 15:27:15 answering member 4067 label Biography information for Steve Brine
tabling member	4036 label Biography information for Luciana Berger