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937489

registered interest
date	09/07/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Records
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he plans to take to ensure that primary care providers are compensated by third party representatives of patients for providing copies of those patients' medical records.
tabling member constituency	Bristol North West
tabling member printed	Darren Jones
uin	162134
answer	answer is ministerial correction date of answer 12/07/2018 answer text <p>The European Union General Data Protection Regulation (GDPR) came into effect from 25 May, replacing the Data Protection Act 1998. Within the updated regulation is the right of access, which gives individuals the right to obtain a copy of their personal data, including, from a health perspective, copies of medical records. Previously, under the Data Protection Act 1998, organisations were able to make a charge for dealing with the administration required in such a request. Under the GDPR, the ability in law to levy such charges has been removed in most cases.</p><p> </p><p>One exception to this principle is medical information required by insurance companies for underwriting purposes. The right of access under GDPR confers more personal information than is needed or is justified for insurance underwriting. Accordingly, insurance companies should instead use the established mechanism of the Access to Medical Reports Act 1988 (AMRA) to obtain summary medical reports from general practitioners (GPs). The AMRA allows the GP to charge a reasonable fee to cover the cost of copying the report.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 12/07/2018 10:56:11 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	4621 label Biography information for Darren Jones

900409

registered interest
date	09/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Social Services: Minimum Wage
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what estimate his Department has made of the number of (a) care homes and (b) individuals who pay directly for care who are unable to afford to pay the six-year back payment liability to carers.
tabling member constituency	Bristol North West
tabling member printed	Darren Jones
uin	142500
answer	answer is ministerial correction date of answer 16/05/2018 answer text <p>The Department commissioned analysis to assess the impact of National Minimum Wage sleep-in liabilities across the social care sector. This work forms part of the evidence base that is being used to assess options and is subject to further analysis and refinement. Consequently, there is currently no timetable for sharing this information.</p><p> </p><p>Personal budget holders and individuals arranging their own care are often amongst the most vulnerable in society. HM Revenue and Customs are working with local authorities to ensure that personal budget holders receive the necessary help and support.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 16/05/2018 12:47:37 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4621 label Biography information for Darren Jones

891534

registered interest
date	25/04/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Hereditary Diseases
house id	1
legislature	25259 pref label House of Commons
question text	to ask the Secretary of State for Health and Social Care, what lessons have been learned from the 100,000 Genome Project which will help when deciding what genetic diseases should be screened for at birth.
tabling member constituency	Bristol North West
tabling member printed	Darren Jones
uin	138095
answer	answer is ministerial correction date of answer 30/04/2018 answer text <p>The 100,000 Genomes Project is focussed on recruiting patients, including children, with rare diseases (and their family members) and those with common cancers. These are areas where whole genome sequencing may offer the best opportunity to diagnose disease. From the Project’s pilot phase we have found actionable findings in 20-25% of rare disease patients.</p><p> </p><p>The scope of the project does not include screening at birth. The Chief Medical Officer, in her annual report Generation Genome, recommended that that the National Screening Committee conducts a systematic evaluation of the opportunities offered by genomics for present and potential screening practices.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 30/04/2018 15:41:08 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4621 label Biography information for Darren Jones