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984927
registered interest false more like this
date less than 2018-10-10more like thismore than 2018-10-10
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Gluten-free Foods: Prescriptions more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, if he will take steps to ensure that gluten-free bread and flour is available to Coeliacs on NHS prescription. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 177784 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-10-15more like thismore than 2018-10-15
answer text <p>The Government proposed changes to the availability of gluten free (GF) foods on National Health Service prescription in its March 2017 public consultation. The majority of consultation respondents agreed with the option to restrict GF prescribing to certain foods. The Government has proposed to restrict to bread and mixes following feedback from the consultation. Evidence submitted to the consultation showed that patients generally found GF mixes easier to use and gave better results for baking GF items such as bread. Prescribing data also showed that mixes were more widely prescribed to patients than flour alone.</p><p> </p><p>This option ensures the best use of NHS resources while maintaining availability of staple GF foods for patients on prescription. Work to implement these changes is underway.</p> more like this
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
question first answered
less than 2018-10-15T14:36:55.427Zmore like thismore than 2018-10-15T14:36:55.427Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4621
label Biography information for Darren Jones more like this
984930
registered interest false more like this
date less than 2018-10-10more like thismore than 2018-10-10
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Medical Records more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what steps he plans to take to ensure that primary care providers are compensated by third party representatives for providing copies of patients' medical records where that information is gathered for purposes other than insurance underwriting. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 177785 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-10-15more like thismore than 2018-10-15
answer text <p>The implications of the General Data Protection Regulation on general practitioner practices have been raised with NHS England as part of the wider General Medical Services contract review discussions. It would not be appropriate to comment while those discussions are ongoing.</p> more like this
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
question first answered
less than 2018-10-15T14:47:10.01Zmore like thismore than 2018-10-15T14:47:10.01Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4621
label Biography information for Darren Jones more like this
984933
registered interest false more like this
date less than 2018-10-10more like thismore than 2018-10-10
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Pancreatic Cancer: Cannabis more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the (a) safety and (b) effectiveness of the use medical cannabis oil in the palliative care of pancreatic cancer patients who have a history of strokes. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 177786 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-10-15more like thismore than 2018-10-15
answer text <p>Earlier this year the Chief Medical Adviser to the United Kingdom Government, Professor Dame Sally Davies, conducted a review in which she examined evidence of the medicinal benefit of cannabis based products. She found conclusive evidence of the therapeutic benefit of cannabis based medicinal products for certain medical conditions and reasonable evidence of therapeutic benefit in several other medical conditions. That review did not specifically address the safety and efficacy of cannabis oil in the palliative care of pancreatic cancer patients who have a history of strokes.</p><p> </p><p>As a result of the Chief Medical Adviser’s advice, and that of the Advisory Council on the Misuse of Drugs, the Home Office has laid legislation that means that, subject to Parliament, from 1 November certain cannabis-based products, that meet conditions related to the quality of their manufacture and supply routes, can be prescribed by doctors on the specialist register of the General Medical Council.</p><p> </p><p>The regulations do not limit the types of conditions that can be considered for treatment and specialist doctors will no longer need to seek approval from an expert panel in order for patients to access the medicines. Prescription of unlicensed cannabis-based products for medicinal use will fall within existing legal requirements and National Health Service governance arrangements for ‘special’ medicines.</p><p> </p><p>There are a number of pieces of work in train to support clinicians in making prescribing decisions. The National Institute for Health and Care Excellence will produce clinical guidance by October 2019. In the meantime, NHS England has commissioned the British Paediatric Neurology Association and the Royal College of Physicians to provide interim clinical advice to specialist doctors ahead of the regulations coming into force.</p>
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
grouped question UIN 177787 more like this
question first answered
less than 2018-10-15T14:40:33.05Zmore like thismore than 2018-10-15T14:40:33.05Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4621
label Biography information for Darren Jones more like this
984936
registered interest false more like this
date less than 2018-10-10more like thismore than 2018-10-10
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Pancreatic Cancer: Cannabis more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, whether medical cannabis oil will be made available for patients with pancreatic cancer that cannot be treated by other available therapies. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 177787 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-10-15more like thismore than 2018-10-15
answer text <p>Earlier this year the Chief Medical Adviser to the United Kingdom Government, Professor Dame Sally Davies, conducted a review in which she examined evidence of the medicinal benefit of cannabis based products. She found conclusive evidence of the therapeutic benefit of cannabis based medicinal products for certain medical conditions and reasonable evidence of therapeutic benefit in several other medical conditions. That review did not specifically address the safety and efficacy of cannabis oil in the palliative care of pancreatic cancer patients who have a history of strokes.</p><p> </p><p>As a result of the Chief Medical Adviser’s advice, and that of the Advisory Council on the Misuse of Drugs, the Home Office has laid legislation that means that, subject to Parliament, from 1 November certain cannabis-based products, that meet conditions related to the quality of their manufacture and supply routes, can be prescribed by doctors on the specialist register of the General Medical Council.</p><p> </p><p>The regulations do not limit the types of conditions that can be considered for treatment and specialist doctors will no longer need to seek approval from an expert panel in order for patients to access the medicines. Prescription of unlicensed cannabis-based products for medicinal use will fall within existing legal requirements and National Health Service governance arrangements for ‘special’ medicines.</p><p> </p><p>There are a number of pieces of work in train to support clinicians in making prescribing decisions. The National Institute for Health and Care Excellence will produce clinical guidance by October 2019. In the meantime, NHS England has commissioned the British Paediatric Neurology Association and the Royal College of Physicians to provide interim clinical advice to specialist doctors ahead of the regulations coming into force.</p>
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
grouped question UIN 177786 more like this
question first answered
less than 2018-10-15T14:40:33.113Zmore like thismore than 2018-10-15T14:40:33.113Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4621
label Biography information for Darren Jones more like this
947669
registered interest false more like this
date less than 2018-07-24more like thismore than 2018-07-24
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Pharmaceutical Price Regulation Scheme more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, if he will make it his policy to maintain the current cost-effectiveness threshold per quality-adjusted life year in the next Pharmaceutical Price Regulation Scheme. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 168184 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-09-05more like thismore than 2018-09-05
answer text <p>The Government is committed to supporting the United Kingdom life sciences industry and ensuring that patients can access cost-effective innovative medicines and technologies at a price the National Health Service can afford. We have been listening to industry feedback and discussing how the medicines market is likely to evolve over the next five years. These discussions have now moved into a more formal phase and are commercially sensitive. The Government will update Parliament if and when agreement is reached.</p> more like this
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
question first answered
less than 2018-09-05T10:24:43.183Zmore like thismore than 2018-09-05T10:24:43.183Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4621
label Biography information for Darren Jones more like this
947670
registered interest false more like this
date less than 2018-07-24more like thismore than 2018-07-24
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Pharmaceutical Price Regulation Scheme more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, if he will make it his policy to establish a formal mechanism to (a) involve and (b) listen to patient groups during the next Pharmaceutical Price Regulation Scheme negotiations. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 168185 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-09-05more like thismore than 2018-09-05
answer text <p>Patient groups have made a valuable input to the development of proposals for a new medicines pricing scheme through correspondence and meetings. While the formal negotiations are confidential between industry and the Government, we will, with the Association of the British Pharmaceutical Industry, continue this dialogue as the negotiations progress.</p> more like this
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
question first answered
less than 2018-09-05T10:26:55.26Zmore like thismore than 2018-09-05T10:26:55.26Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4621
label Biography information for Darren Jones more like this
938715
registered interest false more like this
date less than 2018-07-11more like thismore than 2018-07-11
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Antidepressants and Benzodiazepines: Prescriptions more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, how many prescriptions of (a) individual benzodiazepine drugs and (b) individual antidepressants were dispensed in the community in 2017. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 163180 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-07-16more like thismore than 2018-07-16
answer text <p>The information requested is shown in the following tables.</p><p><strong> </strong></p><p>Number of prescription items for individual benzodiazepine drugs written in the United Kingdom and dispensed in the community in England in 2017</p><table><tbody><tr><td><p>British National Formulary (BNF) Chemical Name</p></td><td><p>BNF Sub Paragraph Name</p></td><td><p>BNF area</p></td><td><p>Items</p></td></tr><tr><td><p>Flurazepam Hydrochloride</p></td><td><p>Hypnotics</p></td><td><p>BNF 4.1.1</p></td><td><p>1</p></td></tr><tr><td><p>Loprazolam Mesilate</p></td><td><p>Hypnotics</p></td><td><p>BNF 4.1.1</p></td><td><p>40,651</p></td></tr><tr><td><p>Lormetazepam</p></td><td><p>Hypnotics</p></td><td><p>BNF 4.1.1</p></td><td><p>22,549</p></td></tr><tr><td><p>Nitrazepam</p></td><td><p>Hypnotics</p></td><td><p>BNF 4.1.1</p></td><td><p>531,070</p></td></tr><tr><td><p>Temazepam</p></td><td><p>Hypnotics</p></td><td><p>BNF 4.1.1</p></td><td><p>1,121,685</p></td></tr><tr><td><p>Alprazolam</p></td><td><p>Anxiolytics</p></td><td><p>BNF 4.1.2</p></td><td><p>6</p></td></tr><tr><td><p>Bromazepam</p></td><td><p>Anxiolytics</p></td><td><p>BNF 4.1.2</p></td><td><p>15</p></td></tr><tr><td><p>Chlordiazepoxide Hydrochloride</p></td><td><p>Anxiolytics</p></td><td><p>BNF 4.1.2</p></td><td><p>66,477</p></td></tr><tr><td><p>Diazepam</p></td><td><p>Anxiolytics</p></td><td><p>BNF 4.1.2</p></td><td><p>5,191,486</p></td></tr><tr><td><p>Lorazepam</p></td><td><p>Anxiolytics</p></td><td><p>BNF 4.1.2</p></td><td><p>1,098,085</p></td></tr><tr><td><p>Oxazepam</p></td><td><p>Anxiolytics</p></td><td><p>BNF 4.1.2</p></td><td><p>95,596</p></td></tr><tr><td><p>Clobazam</p></td><td><p>Control Of Epilepsy</p></td><td><p>BNF 4.8.1</p></td><td><p>294,414</p></td></tr><tr><td><p>Clonazepam</p></td><td><p>Control Of Epilepsy</p></td><td><p>BNF 4.8.1</p></td><td><p>950,178</p></td></tr><tr><td><p>Clonazepam</p></td><td><p>Drugs Used In Status Epilepticus</p></td><td><p>BNF 4.8.2</p></td><td><p>170</p></td></tr><tr><td><p>Midazolam Hydrochloride</p></td><td><p>Drugs Used In Status Epilepticus</p></td><td><p>BNF 4.8.2</p></td><td><p>65,632</p></td></tr><tr><td><p>Midazolam Maleate</p></td><td><p>Drugs Used In Status Epilepticus</p></td><td><p>BNF 4.8.2</p></td><td><p>15,912</p></td></tr><tr><td><p>Midazolam Hydrochloride</p></td><td><p>Benzodiazepines</p></td><td><p>BNF 15.1.4.1</p></td><td><p>194,021</p></td></tr><tr><td><p>Total</p></td><td><p> </p></td><td><p> </p></td><td><p>9,687,948</p></td></tr></tbody></table><p>Source: Prescription Cost Analysis (PCA)</p><p> </p><p>Number of prescription items for individual antidepressants written in the United Kingdom and dispensed in the community in England in 2017</p><table><tbody><tr><td><p>BNF Chemical Name</p></td><td><p>BNF Sub Paragraph Name</p></td><td><p>BNF area</p></td><td><p>Items</p></td></tr><tr><td><p>Agomelatine</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>19,632</p></td></tr><tr><td><p>Amitriptyline Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>13,256,893</p></td></tr><tr><td><p>Amoxapine</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>4</p></td></tr><tr><td><p>Citalopram Hydrobromide</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>14,289,426</p></td></tr><tr><td><p>Citalopram Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>77,560</p></td></tr><tr><td><p>Clomipramine Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>300,358</p></td></tr><tr><td><p>Dosulepin Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>817,105</p></td></tr><tr><td><p>Doxepin</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>30,556</p></td></tr><tr><td><p>Duloxetine Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>2,040,053</p></td></tr><tr><td><p>Escitalopram</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>1,007,713</p></td></tr><tr><td><p>Fluoxetine Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>6,632,295</p></td></tr><tr><td><p>Flupentixol Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>139,723</p></td></tr><tr><td><p>Fluvoxamine Maleate</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>22,509</p></td></tr><tr><td><p>Imipramine Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>156,555</p></td></tr><tr><td><p>Isocarboxazid</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>1,653</p></td></tr><tr><td><p>Lofepramine Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>214,193</p></td></tr><tr><td><p>Mianserin Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>3,834</p></td></tr><tr><td><p>Mirtazapine</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>8,198,345</p></td></tr><tr><td><p>Moclobemide</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>18,867</p></td></tr><tr><td><p>Nefazodone Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>151</p></td></tr><tr><td><p>Nortriptyline</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>589,443</p></td></tr><tr><td><p>Other Antidepressant Preps</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>3</p></td></tr><tr><td><p>Oxitriptan</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>33</p></td></tr><tr><td><p>Paroxetine Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>1,382,209</p></td></tr><tr><td><p>Phenelzine Sulfate</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>15,341</p></td></tr><tr><td><p>Reboxetine</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>28,520</p></td></tr><tr><td><p>Sertraline Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>12,924,636</p></td></tr><tr><td><p>Tranylcypromine Sulfate</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>6,818</p></td></tr><tr><td><p>Trazodone Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>1,133,363</p></td></tr><tr><td><p>Trimipramine Maleate</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>51,824</p></td></tr><tr><td><p>Tryptophan</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>1,927</p></td></tr><tr><td><p>Venlafaxine Hydrochloride</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>4,125,810</p></td></tr><tr><td><p>Vortioxetine</p></td><td><p>Antidepressant Drugs</p></td><td><p>BNF 4.3</p></td><td><p>43,023</p></td></tr><tr><td><p>Total</p></td><td><p> </p></td><td><p> </p></td><td><p>67,530,375</p></td></tr></tbody></table><p>Source: PCA</p>
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
question first answered
less than 2018-07-16T16:11:11.163Zmore like thismore than 2018-07-16T16:11:11.163Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4621
label Biography information for Darren Jones more like this
937489
registered interest false more like this
date less than 2018-07-09more like thismore than 2018-07-09
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Medical Records more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what steps he plans to take to ensure that primary care providers are compensated by third party representatives of patients for providing copies of those patients' medical records. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 162134 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-07-12more like thismore than 2018-07-12
answer text <p>The European Union General Data Protection Regulation (GDPR) came into effect from 25 May, replacing the Data Protection Act 1998. Within the updated regulation is the right of access, which gives individuals the right to obtain a copy of their personal data, including, from a health perspective, copies of medical records. Previously, under the Data Protection Act 1998, organisations were able to make a charge for dealing with the administration required in such a request. Under the GDPR, the ability in law to levy such charges has been removed in most cases.</p><p> </p><p>One exception to this principle is medical information required by insurance companies for underwriting purposes. The right of access under GDPR confers more personal information than is needed or is justified for insurance underwriting. Accordingly, insurance companies should instead use the established mechanism of the Access to Medical Reports Act 1988 (AMRA) to obtain summary medical reports from general practitioners (GPs). The AMRA allows the GP to charge a reasonable fee to cover the cost of copying the report.</p>
answering member constituency Thurrock more like this
answering member printed Jackie Doyle-Price more like this
question first answered
less than 2018-07-12T10:56:11.303Zmore like thismore than 2018-07-12T10:56:11.303Z
answering member
4065
label Biography information for Dame Jackie Doyle-Price more like this
tabling member
4621
label Biography information for Darren Jones more like this
900409
registered interest false more like this
date less than 2018-05-09more like thismore than 2018-05-09
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Social Services: Minimum Wage more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what estimate his Department has made of the number of (a) care homes and (b) individuals who pay directly for care who are unable to afford to pay the six-year back payment liability to carers. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 142500 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-05-16more like thismore than 2018-05-16
answer text <p>The Department commissioned analysis to assess the impact of National Minimum Wage sleep-in liabilities across the social care sector. This work forms part of the evidence base that is being used to assess options and is subject to further analysis and refinement. Consequently, there is currently no timetable for sharing this information.</p><p> </p><p>Personal budget holders and individuals arranging their own care are often amongst the most vulnerable in society. HM Revenue and Customs are working with local authorities to ensure that personal budget holders receive the necessary help and support.</p> more like this
answering member constituency Gosport more like this
answering member printed Caroline Dinenage more like this
question first answered
less than 2018-05-16T12:47:37.007Zmore like thismore than 2018-05-16T12:47:37.007Z
answering member
4008
label Biography information for Dame Caroline Dinenage more like this
tabling member
4621
label Biography information for Darren Jones more like this
891534
registered interest false more like this
date less than 2018-04-25more like thismore than 2018-04-25
answering body
Department of Health and Social Care remove filter
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Hereditary Diseases more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text to ask the Secretary of State for Health and Social Care, what lessons have been learned from the 100,000 Genome Project which will help when deciding what genetic diseases should be screened for at birth. more like this
tabling member constituency Bristol North West more like this
tabling member printed
Darren Jones more like this
uin 138095 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-04-30more like thismore than 2018-04-30
answer text <p>The 100,000 Genomes Project is focussed on recruiting patients, including children, with rare diseases (and their family members) and those with common cancers. These are areas where whole genome sequencing may offer the best opportunity to diagnose disease. From the Project’s pilot phase we have found actionable findings in 20-25% of rare disease patients.</p><p> </p><p>The scope of the project does not include screening at birth. The Chief Medical Officer, in her annual report Generation Genome, recommended that that the National Screening Committee conducts a systematic evaluation of the opportunities offered by genomics for present and potential screening practices.</p> more like this
answering member constituency Gosport more like this
answering member printed Caroline Dinenage more like this
question first answered
less than 2018-04-30T15:41:08.457Zmore like thismore than 2018-04-30T15:41:08.457Z
answering member
4008
label Biography information for Dame Caroline Dinenage more like this
tabling member
4621
label Biography information for Darren Jones more like this