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<p>Services for patients with genetic haemochromatosis are commissioned locally through
clinical commissioning groups (CCGs) which have a statutory responsibility to commission
services which meet the needs of their local population. For example, Leeds CCG commissions
the consultant led haematology service at Leeds Teaching Hospitals, which includes
support for haemochromatosis. Sustainability and transformation partnerships (STPs)
are enabling service coordination across wider footprints and the NHS Long Term Plan
sets out the ambition for all STPs to evolve into integrated care systems (ICSs) by
April 2021. ICSs are an ‘evolved’ form of a STP, making faster progress in integrating
care across their area, bringing together organisations to provide more seamless care
for patients.</p><p>The Government is committed to making the United Kingdom a leader
in embedding genomics in healthcare and offer a consistent, world class approach to
the genetic identification of rare diseases, including genetic hemochromatosis. The
Genomics Medicine Service was announced in October 2018, supported by the National
Genomic Test Directory which specifies which genomic tests are commissioned by the
NHS in England, the technology by which they are available, and the patients who will
be eligible to access a test. Genetic haemochromatosis is included in the National
Genomic Test Directory.</p><p> </p><p><strong> </strong></p><p> </p><p> </p>
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