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800571

registered interest
date	04/12/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what assessment he has made of the (a) extent and (b) effect on patient care of variation in specialist services for multiple sclerosis and Parkinson's among clinical commissioning groups in England.
tabling member constituency	York Outer
tabling member printed	Julian Sturdy
uin	117192
answer	answer is ministerial correction date of answer 12/12/2017 answer text <p>We know that variation exists between clinical commissioning groups (CCGs) in the provision of care for neurological conditions, such as Parkinson’s disease and multiple sclerosis. Whilst it is right that CCGs have autonomy to shape services for local populations, there is a range of work ongoing at a national level to identify unwarranted variation in order to drive improvement, including:</p><p> </p><p>- Through the RightCare programme, which was rolled out to every CCG in 2016/17, NHS England provides practical support to commissioners to tackle unwarranted variation and identify improvements and savings, including for neurological services;</p><p>- Public Health England’s Neurology intelligence network collates and interprets data on adult neurological conditions to provide intelligence for the National Health Service, policy makers, and clinicians; and</p><p>- The Getting it Right First Time programme, supported by NHS Improvement, expanded earlier in 2017 to include neurology and will soon provide insight to demonstrate the value of better neurological services both in hospitals and in the community.</p><p> </p><p>NHS England will continue to work with the Neurological Alliance (an umbrella organisation for neurological condition charities) to support the new national Neurology Advisory Group (NAG), led by consultant neurologist Professor Adrian Williams. The NAG brings together system partners, professional bodies stakeholders to align work to improve neurological care, and has working to understand how best to utilise new and emerging data in services and outcomes. More information on national initiatives to reduce unwarranted variation and drive improvement can be found at the following links:</p><p> </p><p><a href="http://www.england.nhs.uk/rightcare/" target="_blank">www.england.nhs.uk/rightcare/</a></p><p> </p><p><a href="http://www.gov.uk/guidance/neurology-data-and-analysis-a-guide-for-health-professionals" target="_blank">www.gov.uk/guidance/neurology-data-and-analysis-a-guide-for-health-professionals</a></p><p> </p><p><a href="http://gettingitrightfirsttime.co.uk/" target="_blank">gettingitrightfirsttime.co.uk/</a></p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 117193 question first answered 12/12/2017 17:07:27 answering member 4067 label Biography information for Steve Brine
tabling member	4079 label Biography information for Julian Sturdy

800572

registered interest
date	04/12/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what assessment his Department has made of the potential for improved specialist services for multiple sclerosis and Parkinson's delivering significant savings for the NHS; and if he will make a statement.
tabling member constituency	York Outer
tabling member printed	Julian Sturdy
uin	117193
answer	answer is ministerial correction date of answer 12/12/2017 answer text <p>We know that variation exists between clinical commissioning groups (CCGs) in the provision of care for neurological conditions, such as Parkinson’s disease and multiple sclerosis. Whilst it is right that CCGs have autonomy to shape services for local populations, there is a range of work ongoing at a national level to identify unwarranted variation in order to drive improvement, including:</p><p> </p><p>- Through the RightCare programme, which was rolled out to every CCG in 2016/17, NHS England provides practical support to commissioners to tackle unwarranted variation and identify improvements and savings, including for neurological services;</p><p>- Public Health England’s Neurology intelligence network collates and interprets data on adult neurological conditions to provide intelligence for the National Health Service, policy makers, and clinicians; and</p><p>- The Getting it Right First Time programme, supported by NHS Improvement, expanded earlier in 2017 to include neurology and will soon provide insight to demonstrate the value of better neurological services both in hospitals and in the community.</p><p> </p><p>NHS England will continue to work with the Neurological Alliance (an umbrella organisation for neurological condition charities) to support the new national Neurology Advisory Group (NAG), led by consultant neurologist Professor Adrian Williams. The NAG brings together system partners, professional bodies stakeholders to align work to improve neurological care, and has working to understand how best to utilise new and emerging data in services and outcomes. More information on national initiatives to reduce unwarranted variation and drive improvement can be found at the following links:</p><p> </p><p><a href="http://www.england.nhs.uk/rightcare/" target="_blank">www.england.nhs.uk/rightcare/</a></p><p> </p><p><a href="http://www.gov.uk/guidance/neurology-data-and-analysis-a-guide-for-health-professionals" target="_blank">www.gov.uk/guidance/neurology-data-and-analysis-a-guide-for-health-professionals</a></p><p> </p><p><a href="http://gettingitrightfirsttime.co.uk/" target="_blank">gettingitrightfirsttime.co.uk/</a></p> answering member constituency Winchester answering member printed Steve Brine grouped question UIN 117192 question first answered 12/12/2017 17:07:27 answering member 4067 label Biography information for Steve Brine
tabling member	4079 label Biography information for Julian Sturdy

778195

registered interest
date	26/10/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what discussions his Department has had with Sheffield Teaching Hospitals NHS Foundation Trust on its continuing to provide neuromuscular care advisor support.
tabling member constituency	Sheffield, Brightside and Hillsborough
tabling member printed	Gill Furniss
uin	109848
answer	answer is ministerial correction date of answer 31/10/2017 answer text <p>The Department has not had any discussions with Sheffield Teaching Hospitals NHS Foundation Trust on this issue.</p><p> </p><p>However, NHS England has stated that there are no plans to change the provision of neuromuscular care advisor support at the Trust and Sheffield Clinical Commissioning Group has advised that they are not aware of any changes to the provision of neuromuscular care advisor support in the area.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 31/10/2017 16:28:12 answering member 4067 label Biography information for Steve Brine
tabling member	4571 label Biography information for Gill Furniss

758768

registered interest
date	07/09/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what steps he is taking to increase the number of neuromuscular care advisors for people with muscle-wasting conditions.
tabling member constituency	Falkirk
tabling member printed	John McNally
uin	9390
answer	answer is ministerial correction date of answer 12/09/2017 answer text <p>NHS England is responsible for commissioning specialised neurological services, including some services for patients with neuromuscular disorders. NHS England has published a service specification for neurological care that includes an exemplar service specification for neuromuscular conditions which sets out what providers must have in place to offer evidence-based, safe and effective services. The service specification for neurological care can be found at the following link:</p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p>NHS providers, working with local area teams, may establish patient access to neuromuscular care advisers if they consider it would benefit service provision and such decisions are a local matter.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/09/2017 16:35:04 answering member 4067 label Biography information for Steve Brine
tabling member	4424 label Biography information for John McNally

758182

registered interest
date	06/09/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what steps he is taking to increase the number of neuromuscular care advisors for people with muscle-wasting conditions.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	9105
answer	answer is ministerial correction date of answer 14/09/2017 answer text <p>NHS England is responsible for commissioning specialised neurological services, including some services for patients with neuromuscular disorders. NHS England has published a service specification for neurological care that includes an exemplar service specification for neuromuscular conditions which sets out what providers must have in place to offer evidence-based, safe and effective services. The service specification for neurological care can be found at the following link:</p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p>NHS providers, working with local area teams, may establish patient access to neuromuscular care advisers if they consider it would benefit service provision and such decisions are a local matter.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 14/09/2017 14:26:57 answering member 4067 label Biography information for Steve Brine
tabling member	4131 label Biography information for Jim Shannon

732562

registered interest
date	26/06/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what proposals he has made to ensure that patients do not experience delays in accessing emerging treatments for muscle-wasting conditions after the UK leaves the EU.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	1192
answer	answer is ministerial correction date of answer 29/06/2017 answer text <p>The Government wants patients to access cost-effective innovative medicines and technologies, which may include emerging treatments for muscle-wasting conditions, at a price that the National Health Service can afford. That is why we commissioned the Accelerated Access Review, which reported in October last year. We are considering the review’s recommendations and will respond in due course.</p><p> </p><p>As part of the exit negotiations the Government will discuss with the European Union and Member States how best to continue cooperation on medicine research and development and regulation in the best interests of both the United Kingdom and the EU. It would not be appropriate to pre-judge the outcome of the negotiations, but we are clear that whatever happens NHS patients should have access to cost-effective life-changing treatments as soon as possible.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 29/06/2017 11:03:21 answering member 4067 label Biography information for Steve Brine
tabling member	4488 label Biography information for Martyn Day

713499

registered interest
date	23/03/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what assessment his Department has made of whether Neurosciences centres are meeting the NHS England service specification for neurological care (a) in general and (b) related to neuromuscular conditions.
tabling member constituency	Central Ayrshire
tabling member printed	Dr Philippa Whitford
uin	68995
answer	answer is ministerial correction date of answer 28/03/2017 answer text <p>The compliance level for the specialised neurology services specification is very high with only a small number of services requiring a provider action plan or commissioner action.</p><p> </p><p>Information relating to specialised neurological care is recorded under the following categories: Paediatric Neurosciences, Neurosciences – Specialised Neurology, and Neurosurgery – Adult. As such, information regarding specialised neuromuscular disorders is not considered separately.</p> answering member constituency Warrington South answering member printed David Mowat question first answered 28/03/2017 12:27:43 answering member 4080 label Biography information for David Mowat
tabling member	4385 label Biography information for Dr Philippa Whitford

712990

registered interest
date	21/03/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, whether Neurosciences centres fulfil the NHS England service specification for neurological care.
tabling member constituency	Pudsey
tabling member printed	Stuart Andrew
uin	68782
answer	answer is ministerial correction date of answer 27/03/2017 answer text <p>The compliance level for the neurosciences specification is very high with only a small number of services requiring a provider action plan or commissioner action.</p> answering member constituency Warrington South answering member printed David Mowat question first answered 27/03/2017 10:00:52 answering member 4080 label Biography information for David Mowat
tabling member	4032 label Biography information for Stuart Andrew

711022

registered interest
date	14/03/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what steps his Department is taking to encourage clinical commissioning groups to increase access to cough-assist machines for people with muscle-wasting conditions, such as muscular dystrophy.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	67796
answer	answer is ministerial correction date of answer 20/03/2017 answer text <p>The provision of cough assist machines is a matter for local clinical commissioning groups (CCGs). CCGs have the independence and autonomy to make commissioning decisions for local populations, taking into account the available evidence and individual circumstances as appropriate.</p><p>Currently, the evidence base to support the routine use of cough assist machines in muscle-wasting conditions is not well established. NHS England worked with Muscular Dystrophy UK through its Bridging the Gap project to address areas of concern raised by patients and their representatives, one of which was the provision of cough assist machines. Through this work, a number of CGGs developed commissioning policies which set out the circumstances in which to consider these devices. In addition, in February 2016 the National institute for Health and Care Excellence published new guidance on the assessment and management of motor neurone disease, recommending that cough assist machines should be considered if assisted breath stacking is not effective, and/or during a respiratory tract infection.</p> answering member constituency Warrington South answering member printed David Mowat question first answered 20/03/2017 16:41:19 answering member 4080 label Biography information for David Mowat
tabling member	4131 label Biography information for Jim Shannon

711023

registered interest
date	14/03/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what assessment he has made of the effectiveness of neuroscience centres in meeting NHS England service specifications of neurological care.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	67795
answer	answer is ministerial correction date of answer 20/03/2017 answer text <p>As part of NHS England’s Quality Assurance programme, an annual assessment is conducted for all specialised services. This commences with a provider self-declaration against a range of key requirements drawn from the service specification. The provider declaration is then considered alongside a range of other quality data such as information derived from the specialised services quality dashboards and from local commissioners who meet routinely with providers.</p><p> </p><p>This process, undertaken in full for the first time in 2016/17, has provided NHS England with a strengthened ability to assess provider compliance. Where non-compliance is identified, local commissioners have assessed what areas are affected, and whether the issue is amenable to a short term action plan which the provider develops and implements with oversight from local commissioners. Where the non-compliance is not considered to be amenable to a short term action plan, commissioner action is required to ensure availability of a compliant service for the future.</p><p> </p><p>The compliance level for the specialised neurology services specification is very high with only a small number of services requiring a provider action plan or commissioner action.</p> answering member constituency Warrington South answering member printed David Mowat question first answered 20/03/2017 16:43:04 answering member 4080 label Biography information for David Mowat
tabling member	4131 label Biography information for Jim Shannon