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749220

registered interest
date	06/07/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	2
legislature	25277 pref label House of Lords
question text	Her Majesty's Government what assessment they have made of the extent to which parity of esteem between the treatment of mental health and physical health is applied across the NHS.
tabling member printed	Lord Cotter
uin	HL556
answer	answer is ministerial correction date of answer 14/07/2017 answer text <p>The Government set out parity of esteem in physical and mental health in law in the Health and Social Care Act 2012. The Government also set up the first waiting times for mental health – to improve access to psychological therapies and early intervention in psychosis, we have also introduced a waiting time for General Practitioners, reflecting commitments which had existed in physical health for some time. The Government further retained this commitment by welcoming the independent Mental Health Taskforce’s <em>Five Year Forward View for Mental Health</em> report in February 2016. The report set out a strategy for change in four key areas to drive forward improvements in mental health: promoting good mental health and helping people lead the lives they want to live, integrating care, creating a seven-day National Health Service for mental health and hard-wiring mental health across health and social care. The Government accepted all the report’s recommendations in January 2017 and published a detailed action plan for taking forward the recommendations, including how we will monitor progress and report transparently. NHS England’s implementation plan for the Five Year Forward View, published in July 2016, also set out a robust plan for delivering the commitments set out in the <em>Five Year Forward View for Mental Health</em>.</p><p> </p> answering member printed Lord O'Shaughnessy question first answered 14/07/2017 12:50:13 answering member 4545 label Biography information for Lord O'Shaughnessy
tabling member	3786 label Biography information for Lord Cotter

683038

registered interest
date	01/02/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, how many people have been living with a diagnosis of epilepsy in each of the last five years.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	62762
answer	answer is ministerial correction date of answer 09/02/2017 answer text <p>Information concerning the number of people living with a diagnosis of epilepsy in each of the last five years is not collected. However, the National Institute for Health and Care Excellence estimates that epilepsy affects between 362,000 and 415,000 people in England. Total spend on treating individual neurological conditions, such as epilepsy, is not available.</p> answering member constituency Warrington South answering member printed David Mowat grouped question UIN 62764 question first answered 09/02/2017 11:19:05 answering member 4080 label Biography information for David Mowat
tabling member	4131 label Biography information for Jim Shannon

683040

registered interest
date	01/02/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what the cost to the NHS has been of treating people with a diagnosis of epilepsy in each of the last five years.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	62764
answer	answer is ministerial correction date of answer 09/02/2017 answer text <p>Information concerning the number of people living with a diagnosis of epilepsy in each of the last five years is not collected. However, the National Institute for Health and Care Excellence estimates that epilepsy affects between 362,000 and 415,000 people in England. Total spend on treating individual neurological conditions, such as epilepsy, is not available.</p> answering member constituency Warrington South answering member printed David Mowat grouped question UIN 62762 question first answered 09/02/2017 11:19:05 answering member 4080 label Biography information for David Mowat
tabling member	4131 label Biography information for Jim Shannon

626619

registered interest
date	01/11/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what estimate he has made of the number of people suffering from epilepsy in (a) the UK, (b) London and (c) the London North West Healthcare NHS Trust.
tabling member constituency	Ealing, Southall
tabling member printed	Mr Virendra Sharma
uin	51287
answer	answer is ministerial correction date of answer 08/11/2016 answer text <p>The National Institute for Health and Care Excellence estimates that epilepsy affects between 362,000 and 415,000 people in England. No estimates are available of the number of people with epilepsy from different ethnic backgrounds.</p><p>Additional epilepsy prevalence data can be found via the Quality and Outcomes Framework, which includes an indicator based on the number of patients aged 18 or over receiving drug treatment for epilepsy, as recorded on a general practice (GP) register.</p><p>Data are presented at GP and clinical commissioning group level, as well regionally and nationally. Latest results for 2015-16 can be viewed on the NHS Digital website at the following link:</p><p><a href="http://www.content.digital.nhs.uk/catalogue/PUB22266" target="_blank">www.content.digital.nhs.uk/catalogue/PUB22266</a></p> answering member constituency Warrington South answering member printed David Mowat grouped question UIN 51285 51286 question first answered 08/11/2016 09:16:47 answering member 4080 label Biography information for David Mowat
tabling member	1604 label Biography information for Mr Virendra Sharma

521244

registered interest
date	24/05/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what measures his Department uses to identify how often people with a diagnosis of epilepsy receive treatment from a consultant or nurse.
tabling member constituency	Plymouth, Sutton and Devonport
tabling member printed	Oliver Colvile
uin	38287
answer	answer is ministerial correction date of answer 02/06/2016 answer text <p>There are no national measures or means by which the Department monitors frequency of patients reviews, either by consultants or nurses. Guidance is issued by the National Institute for Health and Care Excellence however this does not replace the skills and knowledge of health professionals in managing patients. The arrangements for the management and follow up of people with epilepsy are a local matter and decisions on the frequency with which patients are seen should be made on a case by case basis, taking into account the individual circumstances of each patient.</p><p> </p><p>NHS England advises that the maximum wait for outpatients to receive a neurology appointment is 12 weeks currently. Additionally 92% of patients are being seen under the specified ‘Referral To Treatment’ waiting times of 18 weeks which is within the national target.</p><p> </p><p>The information on the number of people with epilepsy in Plymouth is not available in the format requested.</p> answering member constituency Battersea answering member printed Jane Ellison grouped question UIN 38285 38286 question first answered 02/06/2016 15:32:06 answering member 3918 label Biography information for Jane Ellison
tabling member	4022 label Biography information for Oliver Colvile

510106

registered interest
date	11/04/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, how many patients had epilepsy in the UK in each of the last five years.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	33468
answer	answer is ministerial correction date of answer 19/04/2016 answer text <p>Information concerning the number of people diagnosed with epilepsy in each of the last five years is not collected.</p> answering member constituency Battersea answering member printed Jane Ellison question first answered 19/04/2016 14:09:46 answering member 3918 label Biography information for Jane Ellison
tabling member	4131 label Biography information for Jim Shannon

506572

registered interest
date	08/04/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, pursuant to the Answer of 24 March 2016 to Question 32057, on Epilepsy Death, for what reasons his Department made the decision to retire quality and outcomes framework indicators EP002 and EP003 in 2014.
tabling member constituency	Birmingham, Selly Oak
tabling member printed	Steve McCabe
uin	32720
answer	answer is ministerial correction date of answer 13/04/2016 answer text <p>Senior NHS England clinicians and representatives of the British Medical Association reviewed and agreed all the proposed changes to the Quality and Outcomes Framework (QOF) taking into account the views of the National Institute for Health and Care Excellence and Public Health England.</p><p><strong> </strong></p><p>The removal of QOF indicators will not mean that general practitioners (GPs) will no longer tackle important health issues, rather, the aim is that reducing QOF will help free up time to enable GPs to spend more time on providing more proactive coordinated and individual care for their patients, based on their clinical judgement. The reduction in the number of QOF indicators was intended to reduce bureaucracy, unnecessary patient testing and unnecessary frequency of patient recall and recording.</p> answering member constituency North East Bedfordshire answering member printed Alistair Burt question first answered 13/04/2016 14:05:13 answering member 1201 label Biography information for Alistair Burt
tabling member	298 label Biography information for Steve McCabe

483170

registered interest
date	21/03/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what plans his Department has for the next National Clinical Audit of avoidable deaths in relation to epilepsy.
tabling member constituency	Torridge and West Devon
tabling member printed	Mr Geoffrey Cox
uin	31958
answer	answer is ministerial correction date of answer 24/03/2016 answer text <p>The Healthcare Quality Improvement Partnership commissions, develops and manages the National Clinical Audit and Patient Outcomes Programme (NCAPOP), on behalf of NHS England, Wales and other devolved administrations. Whilst there is no specific audit planned that covers all cases of deaths from epilepsy, the following NCAPOP audits and reviews are of relevance:</p><p>- The audit for paediatric epilepsy, which is being re-commissioned this year, covers the quality of health care services for children and young people with epilepsy in the UK. The audit is managed by the Royal College of Paediatrics and Child Health (RCPCH) and the first audit report can be found at the following link:</p><p>www.rcpch.ac.uk/news/variation-care-children-epilepsy-revealed-first-uk-wide-audit;</p><p>- The 2013 review report into cases of mortality and prolonged seizures in children and young people with epilepsies that was managed by the RCPCH. The report is available at the following link:</p><p>www.rcpch.ac.uk/child-health-reviews-uk/programme-findings/programme-findings-chr-uk;</p><p>- The recently commissioned national mortality case record review programme for England and Scotland which aims to improve understanding and learning about problems in care that may have contributed to a patient’s death:</p><p>www.rcplondon.ac.uk/news/rcp-hosts-pioneering-national-mortality-case-record-review-programme</p><p>- The maternal, newborn and infant clinical outcome review programme will be undertaking a review of cases of mortality and morbidity for pregnant women with severe epilepsy that will report in December 2017. This will be carried out by MBRRACE-UK at The University of Oxford. Further information can be found at the following link:</p><p>www.npeu.ox.ac.uk/mbrrace-uk/topic-proposals</p> answering member constituency Battersea answering member printed Jane Ellison question first answered 24/03/2016 14:41:00 answering member 3918 label Biography information for Jane Ellison
tabling member	1508 label Biography information for Sir Geoffrey Cox

459396

registered interest
date	10/03/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, how many people have been diagnosed with epilepsy in each of the last ten years; and if he will make a statement.
tabling member constituency	Coventry South
tabling member printed	Mr Jim Cunningham
uin	30716
answer	answer is ministerial correction date of answer 15/03/2016 answer text <p>Information concerning the number of people diagnosed with epilepsy in each of the last 10 years is not collected.</p><p><br> NHS England is responsible for securing high quality outcomes for people with long term conditions, including epilepsy. Prompt diagnosis, treatment and seizure control is key to improving outcomes for people with epilepsy. Once diagnosed and receiving the right anti-epileptic drugs the majority of people with epilepsy can achieve good seizure control. In its guideline, <em>Epilepsies: diagnosis and management</em>, published in 2012, the National Institute for Health and Care Excellence recommends the people having a first seizure should be seen as soon as possible by a specialist with training and expertise in epilepsy.</p><p><br> For those whose epilepsy cannot be satisfactorily controlled or whose condition cannot be appropriately diagnosed NHS England commissions specialised neurological services nationally:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p> </p><p>NHS England has published adult and paediatric specifications setting out what providers must have in place to offer specialised care for patients with neurological problems, including epilepsy:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurology.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurology.pdf</a></p><p> </p><p>In addition, NHS England also commissions a national Children’s Epilepsy Surgery Service, designed to improve the uptake and access to surgery in those children for whom surgical control or amelioration for their epilepsy is a possibility:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/e09-child-epilepsy-surg.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/e09-child-epilepsy-surg.pdf</a></p><p> </p><p>Regarding clinical audit, the Healthcare Quality Improvement Partnership commissions, develops and manages the National Clinical Audit and Patient Outcomes Programme (NCAPOP), on behalf of NHS England, Wales and other devolved administrations. Whilst there is no specific morbidity audit planned that covers all cases of epilepsy, the following NCAPOP audits and reviews are of relevance: <br></p><p>- The audit for paediatric epilepsy, which is being re-commissioned this year, looks at the quality of healthcare services for children and young people with epilepsy in the United Kingdom. The audit is managed by the Royal College of Paediatrics and Child Health and the first audit report can be found at the following link:</p><p> </p><p><a href="http://www.rcpch.ac.uk/news/variation-care-children-epilepsy-revealed-first-uk-wide-audit" target="_blank">www.rcpch.ac.uk/news/variation-care-children-epilepsy-revealed-first-uk-wide-audit</a></p><p> </p><p>- The 2013 review report into cases of mortality and prolonged seizures in children and young people with epilepsies that was managed by the RCPCH. The report is available at the following link:</p><p> </p><p><a href="http://www.rcpch.ac.uk/child-health-reviews-uk/programme-findings/programme-findings-chr-uk" target="_blank">www.rcpch.ac.uk/child-health-reviews-uk/programme-findings/programme-findings-chr-uk</a></p><p> </p><p>- The recently commissioned National Mortality Case Record Review; Programme for England and Scotland which aims to improve understanding and learning about problems in care that may have contributed to a patient’s death:</p><p> </p><p><a href="http://www.rcplondon.ac.uk/news/rcp-hosts-pioneering-national-mortality-case-record-review-programme" target="_blank">www.rcplondon.ac.uk/news/rcp-hosts-pioneering-national-mortality-case-record-review-programme</a></p><p> </p><p>- The Maternal, Newborn and Infant Clinical Outcome Review Programme will be undertaking a review of cases of mortality and morbidity for pregnant women with severe epilepsy that will report in December 2017. This will be carried out by MBRRACE-UK at The University of Oxford. Further information can be found at the following:</p><p> </p><p><a href="http://www.npeu.ox.ac.uk/mbrrace-uk/topic-proposals" target="_blank">www.npeu.ox.ac.uk/mbrrace-uk/topic-proposals</a></p> answering member constituency Battersea answering member printed Jane Ellison grouped question UIN 30758 30761 question first answered 15/03/2016 11:33:31 answering member 3918 label Biography information for Jane Ellison
tabling member	308 label Biography information for Mr Jim Cunningham

459398

registered interest
date	10/03/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Epilepsy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what plans he has to commission a National Clinical Audit on the number of avoidable deaths resulting from epilepsy; and if he will make a statement.
tabling member constituency	Coventry South
tabling member printed	Mr Jim Cunningham
uin	30761
answer	answer is ministerial correction date of answer 15/03/2016 answer text <p>Information concerning the number of people diagnosed with epilepsy in each of the last 10 years is not collected.</p><p><br> NHS England is responsible for securing high quality outcomes for people with long term conditions, including epilepsy. Prompt diagnosis, treatment and seizure control is key to improving outcomes for people with epilepsy. Once diagnosed and receiving the right anti-epileptic drugs the majority of people with epilepsy can achieve good seizure control. In its guideline, <em>Epilepsies: diagnosis and management</em>, published in 2012, the National Institute for Health and Care Excellence recommends the people having a first seizure should be seen as soon as possible by a specialist with training and expertise in epilepsy.</p><p><br> For those whose epilepsy cannot be satisfactorily controlled or whose condition cannot be appropriately diagnosed NHS England commissions specialised neurological services nationally:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p> </p><p>NHS England has published adult and paediatric specifications setting out what providers must have in place to offer specialised care for patients with neurological problems, including epilepsy:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurology.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurology.pdf</a></p><p> </p><p>In addition, NHS England also commissions a national Children’s Epilepsy Surgery Service, designed to improve the uptake and access to surgery in those children for whom surgical control or amelioration for their epilepsy is a possibility:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/e09-child-epilepsy-surg.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/e09-child-epilepsy-surg.pdf</a></p><p> </p><p>Regarding clinical audit, the Healthcare Quality Improvement Partnership commissions, develops and manages the National Clinical Audit and Patient Outcomes Programme (NCAPOP), on behalf of NHS England, Wales and other devolved administrations. Whilst there is no specific morbidity audit planned that covers all cases of epilepsy, the following NCAPOP audits and reviews are of relevance: <br></p><p>- The audit for paediatric epilepsy, which is being re-commissioned this year, looks at the quality of healthcare services for children and young people with epilepsy in the United Kingdom. The audit is managed by the Royal College of Paediatrics and Child Health and the first audit report can be found at the following link:</p><p> </p><p><a href="http://www.rcpch.ac.uk/news/variation-care-children-epilepsy-revealed-first-uk-wide-audit" target="_blank">www.rcpch.ac.uk/news/variation-care-children-epilepsy-revealed-first-uk-wide-audit</a></p><p> </p><p>- The 2013 review report into cases of mortality and prolonged seizures in children and young people with epilepsies that was managed by the RCPCH. The report is available at the following link:</p><p> </p><p><a href="http://www.rcpch.ac.uk/child-health-reviews-uk/programme-findings/programme-findings-chr-uk" target="_blank">www.rcpch.ac.uk/child-health-reviews-uk/programme-findings/programme-findings-chr-uk</a></p><p> </p><p>- The recently commissioned National Mortality Case Record Review; Programme for England and Scotland which aims to improve understanding and learning about problems in care that may have contributed to a patient’s death:</p><p> </p><p><a href="http://www.rcplondon.ac.uk/news/rcp-hosts-pioneering-national-mortality-case-record-review-programme" target="_blank">www.rcplondon.ac.uk/news/rcp-hosts-pioneering-national-mortality-case-record-review-programme</a></p><p> </p><p>- The Maternal, Newborn and Infant Clinical Outcome Review Programme will be undertaking a review of cases of mortality and morbidity for pregnant women with severe epilepsy that will report in December 2017. This will be carried out by MBRRACE-UK at The University of Oxford. Further information can be found at the following:</p><p> </p><p><a href="http://www.npeu.ox.ac.uk/mbrrace-uk/topic-proposals" target="_blank">www.npeu.ox.ac.uk/mbrrace-uk/topic-proposals</a></p> answering member constituency Battersea answering member printed Jane Ellison grouped question UIN 30716 30758 question first answered 15/03/2016 11:33:31 answering member 3918 label Biography information for Jane Ellison
tabling member	308 label Biography information for Mr Jim Cunningham