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649096

registered interest
date	30/11/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Pregnancy: Screening
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government what assessment they have made of the extent to which the introduction of non-invasive prenatal testing is consistent with disability equality.
tabling member printed	Lord Shinkwin
uin	HL3719
answer	answer is ministerial correction date of answer 13/12/2016 answer text <p>Non-invasive prenatal testing for Down’s, Edwards’ and Patau’s syndromes is an additional test to be offered as part of the current NHS Fetal Anomaly Screening Programme, and as it does not fundamentally alter the choices already available to women, we consider that there will be no impact on race, age, disability, gender reassignment sex or sexual orientation, religion or belief, marriage and civil partnership or pregnancy and maternity for the purposes of the Public Sector Equality Duty under the Equality Act 2010. The Department also considers that the programme is compliant with the Equality Act because it is not discriminatory and, with regard to the three elements of the Public Sector Equality Duty in s.149 of that Act, it has a neutral impact.</p><p> </p><p>All relevant equality duties will be further considered by Public Health England during the evaluative roll out.</p> answering member printed Baroness Chisholm of Owlpen question first answered 13/12/2016 16:51:27 answering member 4330 label Biography information for Baroness Chisholm of Owlpen
tabling member	4557 label Biography information for Lord Shinkwin

647981

registered interest
date	29/11/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Pregnancy: Screening
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government why the decision to approve non-invasive prenatal testing was revealed in an article in the <i>Guardian</i> on 29 October, including a comment from the Health Minister, before that decision was formally published on the government website on 2 November.
tabling member printed	Lord Shinkwin
uin	HL3677
answer	answer is ministerial correction date of answer 13/12/2016 answer text <p>The decision to accept the UK National Screening Committee’s (UK NSC) recommendation of the non-invasive prenatal testing was formally communicated as a matter of public record via the Guardian and Press Association, and subsequently reported by several media organisations, this is usual practice.</p><p>Following subsequent conversations with the Nuffield Council on Bioethics, an agreement was made to amend statements made to reflect their preferred wording. The Department did not contact the Guardian to amend this article.</p> answering member printed Baroness Chisholm of Owlpen grouped question UIN HL3678 question first answered 13/12/2016 16:48:09 answering member 4330 label Biography information for Baroness Chisholm of Owlpen
tabling member	4557 label Biography information for Lord Shinkwin

647982

registered interest
date	29/11/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Pregnancy: Screening
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government, in the light of a statement on the <i>Guardian</i> website on 31 October that an article on the approval of non-invasive prenatal testing (NIPT) had to be amended to correct a statement that the Nuffield Council on Bioethics had confirmed in July that no new ethical issues were raised by NIPT, what statements the Department of Health made to the <i>Guardian</i> or its reporters which led the <i>Guardian</i> to that understanding; whether the Department of Health understood this to be the case at the time of those statements; and if so, why.
tabling member printed	Lord Shinkwin
uin	HL3678
answer	answer is ministerial correction date of answer 13/12/2016 answer text <p>The decision to accept the UK National Screening Committee’s (UK NSC) recommendation of the non-invasive prenatal testing was formally communicated as a matter of public record via the Guardian and Press Association, and subsequently reported by several media organisations, this is usual practice.</p><p>Following subsequent conversations with the Nuffield Council on Bioethics, an agreement was made to amend statements made to reflect their preferred wording. The Department did not contact the Guardian to amend this article.</p> answering member printed Baroness Chisholm of Owlpen grouped question UIN HL3677 question first answered 13/12/2016 16:48:09 answering member 4330 label Biography information for Baroness Chisholm of Owlpen
tabling member	4557 label Biography information for Lord Shinkwin

647983

registered interest
date	29/11/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Abortion
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government whether they have reviewed the compatibility of section 1(1)(d) of the Abortion Act 1967 with Article 5 of the UN Convention on the Rights of Persons with Disabilities.
tabling member printed	Lord Shinkwin
uin	HL3679
answer	answer is ministerial correction date of answer 13/12/2016 answer text <p>The Department has reviewed and is satisfied that section 1(1)(d) of the Abortion Act is compatible with Article 5 of the United Nations Convention on the Rights of Persons with Disabilities.</p> answering member printed Baroness Chisholm of Owlpen question first answered 13/12/2016 16:47:27 answering member 4330 label Biography information for Baroness Chisholm of Owlpen
tabling member	4557 label Biography information for Lord Shinkwin

647985

registered interest
date	29/11/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Abortion
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government, in the light of the report by the Department of Health <i>Matching Department of Health abortion notifications and data from the National Down’s Syndrome Cytogenetic Register</i>, published in May 2014, and of the report by Eurocat <i>Misinterpretation of TOPFA data on website tables</i>, published in 2013, (1) what steps they have taken to end the under-reporting of abortions on the grounds of disability; (2) what evidence they have that under-reporting no longer happens; and (3) what sanctions they have developed to ensure that under-reporting does not recur.
tabling member printed	Lord Shinkwin
uin	HL3681
answer	answer is ministerial correction date of answer 13/12/2016 answer text <p>We continue to carefully monitor reporting of abortions for fetal abnormality. Actions being taken include working directly with hospital staff to understand their specific challenges and help them find solutions to improve reporting of abortions. The Department, the Royal College of Obstetricians and Gynaecologists and the British Maternal and Fetal Health Medicine Society, will shortly be jointly writing to all clinicians in fetal medicine units, antenatal screening midwives, and associated administrative staff to remind all doctors involved in abortion care of their legal responsibility under the Abortion Act 1967 and Abortion Regulations 1991, to submit form HSA4 within 14 days of the termination. The letter also provides practical examples from hospitals the Department has worked with to improve their reporting processes.</p><p> </p><p>In April 2015, Public Health England (PHE) established a new national congenital anomaly and rare disease registration service. We are working with PHE to compare reporting of abortions notified to the Chief Medical Officer and those reported through the register. Overall, between 2013 and 2015, there was an 18% increase in the number of reported abortions for fetal abnormality. While this increase may not solely be the result of increased reporting of these abortions, we do know that this is the case with some of the hospitals we have been working directly with.</p> answering member printed Baroness Chisholm of Owlpen question first answered 13/12/2016 16:46:59 answering member 4330 label Biography information for Baroness Chisholm of Owlpen
tabling member	4557 label Biography information for Lord Shinkwin