| answer text |
<p>There are three patient/lay representatives on the methods working group with a
wide range of experience, covering a range of topic areas, reflecting the programmes
under review. Two of the patient/lay representatives also belong to the Patients Involved
in NICE coalition.</p><p>Patient groups will be involved in the review of each of
the specific methodological areas as detailed in the paper presented to the NICE board
on 17 July 2019. Experts in the area will be invited to participate in topic specific
methods task and finish groups.</p><p>NICE has established a dedicated patient working
group. There are six patient organisation representatives on the group, including
those who belong to the Patients Involved in NICE coalition. The group will work directly
with patient/carer groups to coordinate the patient perspective on both methods and
process. A stakeholder workshop with patient groups was held in January 2019 that
included representatives from 22 patient organisations.</p><p>The patient working
group has recently disseminated a survey to patient umbrella groups to develop a clear
understanding of the patient perspective on both methods and processes. The survey
runs until 5pm on Monday 12 August 2019. It will be promoted via social media and
sent directly to groups working with NICE. Patient organisations can communicate with
representatives on the methods working group and patient working group outside of
this survey.</p><p>Patient organisations will have the opportunity to comment directly
on proposals during the public consultation in summer 2020.</p><p>NICE is implementing
other opportunities to encourage more patient group involvement throughout the review
via provision of a subscription based bulletin for updates and information (which
people can subscribe to via their website) and exploring arrangements of additional
engagement sessions (i.e. webinars), as and when appropriate.</p><p> </p>
|
|
